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bigecase
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Date Joined Mar 2010
Total Posts : 384
   Posted 7/26/2018 7:46 PM (GMT -6)   
I haven’t posted in a while so i thought i would pop in. I had an mri on neck first week of June. No changes from last time. This report actually didn’t spell out the issues the last one showed. I guess because they were at two different places? I will see PM doc on Tuesday. Was suppose to go today but my boss has gotten crazy. Doesn’t like all the appointments. She will be on vacation next week so i will slide it in.

My left shoulder has started back hurting pretty good. Left wrist as well. This is the one i had surgery on in Feb of this year. Haven’t done anything to it. I really feel like work stress keeps me full of inflammation. I stay in a knot. Wish i could just stay home.

Hope everyone is enjoying summer. It’s very hot here.

straydog
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Date Joined Feb 2003
Total Posts : 16804
   Posted 7/27/2018 8:04 AM (GMT -6)   
B, good hearing from you, yes it's been awhile. Stress at work, ha, that will do a number on you quicker than anything. I walked away from a job of 20 years because the stress was about to kill me. I worked in a law firm & the stress was over the top. I loved it, every day was a different day there. I worked on my own, meaning no supervisor hanging over my head. I had my own files that I was responsible for & had a great secretary. The owner was never around, he was too busy screwing up his life. This added a whole new dimension to the stress. My drs would tell me, look all we are doing is putting a band aid on things, you do not get much benefit from treatment because your body has no time to slow down or heal. My drs were elated when they found out I quit my job. Things truly changed too.

Do whatever it takes to lower the stress level at work. I spent a fortune on massages!! I found someone that knew how to do massages & I went weekly. Was it a cure, no, but it made me feel better for a bit. She said working on me was like working on concrete.

Keep us posted.
Susie
Moderator in Chronic Pain & Psoriasis Forums

bigecase
Regular Member


Date Joined Mar 2010
Total Posts : 384
   Posted 7/27/2018 8:44 AM (GMT -6)   
That is where i am at. Each surgery they say i am full of inflammation and never allow myself to heal. Always rush back to work. I am sure it has something to do with both shoulders freezing. I am working on my situation so i can go home. They pay for our disability insurance. If a doc says i should be home they would have to pay. 😳.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16804
   Posted 7/27/2018 9:27 AM (GMT -6)   
B, you mentioned being in a knot, I can relate. I did a lot of trigger point injections over the years. I would get a 7:30 appt for them. My dr would start at the base of my skull & go down to my rear injecting me plus both shoulders. There were times he would hit a spot that was so knotted the needle would not go in. As soon as he finished up it was off to work, lol.

Talk to your drs about using short & long term disability.
Susie
Moderator in Chronic Pain & Psoriasis Forums

bigecase
Regular Member


Date Joined Mar 2010
Total Posts : 384
   Posted 7/27/2018 11:58 AM (GMT -6)   
I think i am. It’s time to make a change.
bigecase
Age 49

bulging disc C6, c7, L4 &L5, L5S1 Spinal Stenosis, degenerative disc, mild anterolisthesis FAILED back Surgery 2012. Torn rotator cuff, torn bicep tendon, and spurs all in right shoulder--3 shoulder surgeries. ESOPHYX TIFF surgery. Hypothyrodism, anxiety, migraines, tmj,3 left shoulder surgeries
12/14, SCS implant

(Seashell)
Veteran Member


Date Joined Dec 2012
Total Posts : 893
   Posted 7/27/2018 10:52 PM (GMT -6)   
Big Case:
It is good to hear from you.

It is unfortunate that cumulative work stress is negatively impacting your health.
It sounds as though you have a high stress job.

I worked under one CEO that was genuinely diagnosed with boarderline personality disorder. I was the acting COO. The CEO made my life a living nightmare.

I hope you can find a measure of peace and relief.
Karen

bigecase
Regular Member


Date Joined Mar 2010
Total Posts : 384
   Posted 7/28/2018 4:34 PM (GMT -6)   
I could handle my work for the most part if my boss wasn’t so demanding and rude. Also in the back of my mind i blame it for ruining shoulders and back although i never reported it. I lifted boxes that were way to heavy for years. The men didn’t want to help when would ask. After my surgeries i made everyone have two people. One on each end. My son weighed one box and was 60 pounds. Granted i have an office job. Should not have been moving them in first place. I am bitter. I don’t think i would feel to guilty if i went home a few months on shorty term disability. I have mine for three months and then the company pays for a long term on. I am getting ducks in a row in case i get to where i can’t physically make it. Finances in order. I kinda aired it all out today. Normally don’t do that. Sorry guys.
bigecase
Age 49

bulging disc C6, c7, L4 &L5, L5S1 Spinal Stenosis, degenerative disc, mild anterolisthesis FAILED back Surgery 2012. Torn rotator cuff, torn bicep tendon, and spurs all in right shoulder--3 shoulder surgeries. ESOPHYX TIFF surgery. Hypothyrodism, anxiety, migraines, tmj,3 left shoulder surgeries
12/14, SCS implant

bigecase
Regular Member


Date Joined Mar 2010
Total Posts : 384
   Posted 8/1/2018 5:25 AM (GMT -6)   
Had a good visit with yet another new nurse practitioner. Third one in less than a year. I hate getting close to one and bam they are gone. This one is super nice so will be fine. Scheduled epidural injection in my neck for Thursday. Hope to get relief.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16804
   Posted 8/1/2018 11:15 AM (GMT -6)   
B, I am glad the new NP seemed to be ok. My PM dr brought one a year ago & she is great. She takes time with a patient, nothing rushed & even makes some small talk. The time spent in the waiting room & exam room has been reduced greatly. He needed one a couple of years ago believe me. My PCP's office went through a period with new ones, it was like a revolving door for awhile. I don't think any of care much for change, lol.

I hope you get some relief with the eppie.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Lendi
Regular Member


Date Joined Mar 2018
Total Posts : 336
   Posted 8/2/2018 9:57 AM (GMT -6)   
I hope you get some relief soon, one way or another. It's a hard decision as to whether one needs to quit a job or not. It's scary. It sounds like you've got all of your ducks in a row, that's great. I wish you only the best.
What if trials of this life are Your mercies in disguise.

Laura Short

"Blessings"

FM/CFS, BP, gastritis, diverticulitis, anxiety/PTSD, adult ADD, hypothyroid, brain lesions, sleep apnea that doesn't respond to a c-pap as far as sleepiness/fatigue goes, insomnia and only sleep in stages 1 and 2 and REM with a tiny bit in 3 and 4.

bigecase
Regular Member


Date Joined Mar 2010
Total Posts : 384
   Posted 8/2/2018 5:43 PM (GMT -6)   
Thanks everyone. Today was a rough day. I didn’t take anything as i wanted to be in full force pain and boy was I. I couldn’t eat or drink after 630 am anyways. He did the CESI and several trigger point at base of neck. That feels better already. I wonder if he was numbed up. Follow up in three weeks to see if we wi,l try another one or not.
bigecase
Age 49

bulging disc C6, c7, L4 &L5, L5S1 Spinal Stenosis, degenerative disc, mild anterolisthesis FAILED back Surgery 2012. Torn rotator cuff, torn bicep tendon, and spurs all in right shoulder--3 shoulder surgeries. ESOPHYX TIFF surgery. Hypothyrodism, anxiety, migraines, tmj,3 left shoulder surgeries
12/14, SCS implant

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16804
   Posted 8/2/2018 5:48 PM (GMT -6)   
Don't forget to ice those area!! We will just have to wait & see how this plays out. hopefully you get relief.
Susie
Moderator in Chronic Pain & Psoriasis Forums

bigecase
Regular Member


Date Joined Mar 2010
Total Posts : 384
   Posted 8/2/2018 6:44 PM (GMT -6)   
Yea. Ice was first thing i grabbed when i got home. Love ice. Hopefully tomorrow will be better. Thanks for always checking in on me. You know all the secrets so if i forget.
bigecase
Age 49

bulging disc C6, c7, L4 &L5, L5S1 Spinal Stenosis, degenerative disc, mild anterolisthesis FAILED back Surgery 2012. Torn rotator cuff, torn bicep tendon, and spurs all in right shoulder--3 shoulder surgeries. ESOPHYX TIFF surgery. Hypothyrodism, anxiety, migraines, tmj,3 left shoulder surgeries
12/14, SCS implant

bigecase
Regular Member


Date Joined Mar 2010
Total Posts : 384
   Posted 8/3/2018 4:29 AM (GMT -6)   
Well I only slept about 3 hours. Thanks steriods it will be a very long day. I think the pain is just soreness. Really hope so. I feel like it helped some. Just day 1 and I fell optimistic about this. Praying this worked. It has been a long few years of searching for answers on this neck pain.
bigecase
Age 49

bulging disc C6, c7, L4 &L5, L5S1 Spinal Stenosis, degenerative disc, mild anterolisthesis FAILED back Surgery 2012. Torn rotator cuff, torn bicep tendon, and spurs all in right shoulder--3 shoulder surgeries. ESOPHYX TIFF surgery. Hypothyrodism, anxiety, migraines, tmj,3 left shoulder surgeries
12/14, SCS implant

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16804
   Posted 8/3/2018 9:59 AM (GMT -6)   
Oh the steroids made me a crazy person. No sleep for nearly 48 hours, I mean none. Work loved it because I could crank work out in two days that took others a week, lol. Yes, another good reason to walk away a couple months shy of 20 years. I loved the work & could do it, that wasn't the issue. The issue was a high stress load. The original atty I worked for was fantastic, he was a great lawyer & an excellent business man. He had practice law almost 30 years, was not a rookie. He ended up with cancer & sold the practice to another atty. Diabetes took off part of one leg, his health was bad. Any how, in a few short years, the new one started having major personal issues & things were like a ticking bomb there. He told my boss all of those prior issues of his was a thing of the past. Well, they weren't, they came back & haunted his worthless arse, lol. Less than a year after I left, the place closed down. I walked away at the perfect time. My name was not ever mentioned in the lawyer grapevine like the others were, lol.

Rest as much as you can over the weekend so these injections can give you some benefit.
Susie
Moderator in Chronic Pain & Psoriasis Forums

(Seashell)
Veteran Member


Date Joined Dec 2012
Total Posts : 893
   Posted 8/4/2018 9:45 AM (GMT -6)   
Bigcase:
I hope this epidural injection brings you a sound measure of relief from your cervical neck pain. You deserve a break.

Sending you healing wishes,
Karen
Pituitary failure, wide-spread endocrine dysfunction
Addison's disease
Mixed connective tissue disorder
Extensive intestinal perforation with sepsis, permanent ileostomy
Avascular necrosis of both hips and jaw
Receiving Palliative Care (care and comfort)

bigecase
Regular Member


Date Joined Mar 2010
Total Posts : 384
   Posted 8/4/2018 2:46 PM (GMT -6)   
Thanks. First day was good. I guess they numb it up. Second day i felt like i was hit with a baseball, bat. Today still hurts. Currently have ice on it. One area feels better but the main place is still pretty bad.

bigecase
Regular Member


Date Joined Mar 2010
Total Posts : 384
   Posted 8/9/2018 5:34 AM (GMT -6)   
Its been a week since the injections. My optimistic self lost out again. Not sleeping much at all probably due to stressing so because I can't get relief. Sometimes I cope just fine with all this other times it drives me insane. I started creating a time line for when I started "chasing" this neck problem. 2012 was the first visit and that was to a dentist for a root canal. Probably 100 visits later, not exaggerating,and still no answers. I have been sent to every type doc you can think of. I will not give up. I can't do this another 10 years.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16804
   Posted 8/9/2018 9:29 AM (GMT -6)   
B, one little tidbit I am going to pass on to you is this; never let chronic pain define who you really are. I have to remind myself of this daily, gal.

I completely understand the anger, frustration & anything else you want to throw into the mix. I went through the highs of hoping of this or that would fix things. Instead, I had to train my brain to say, it's worth a try, it may or may not work. The feelings of disappointment & anger is really hard on, it brings on more stress that we certainly do not need.

The steroids are definitely interfering with your sleep. Here is something you may want to consider. Go buy some Tylenol PM Sleep Time without Tylenol in it, give it a few days. There is no hangover the next day. I went for years of sleeping 2/4 hours a night, never slept during the day. It took me 10 days to turn my clock back around. To this day I sleep like I should be. A friend of mine had been on Ambien for 13 years. Well, there has been a crack down on sleeping aids, her dr cut her off cold turkey!! She is the one that that told me about this.

Hang in there.
Susie
Moderator in Chronic Pain & Psoriasis Forums

(Seashell)
Veteran Member


Date Joined Dec 2012
Total Posts : 893
   Posted 8/9/2018 10:09 AM (GMT -6)   
Bigcase:
Corticosteroids tend to be systemically “activating” - insomnia is a common occurrence to corticosteroids. H

An epidural injection is often 100 mg of steroid. A whopper of a dose.

Other steroid effects: Heightened emotions or emotional volatility (anger, crying, frustration, feelings of rage). Excessive bursts of energy, followed by exhaustion/crashing (stories of people cleaning their entire house after a steroid injection). Ravenous hunger. Insomnia, restless sleep. Lack of ability to concentrate. Sweating, hot flashes.

I, too, know pain that never ends. It is a sobering reality. I have had to accept that pain will be a constant companion.

I have had to make adjustments to how I live my life in order to keep my sanity in living with constant pain. I live a very quiet and private life to keep the octive of pain within tolerance.

Perhaps decreasing your hours at work would bring you a measure of control with your pain by giving you less cumulative stress. The head is an 8-10 pound bowling ball that sits atop a thin perch of the neck. The neck muscles are thin, straplike muscles that run in succession for 1-2 vertebral lengths like a chain link. The neck muscles and ligaments are not well designed to support the weight of the head. Add in a desk job where there is a forward orientation of the head and shoulders, and chronic pain can ensue.

Hair stylists and dental hygienists have an disportionally high rate of cervical pain and cervical root entrapment. Their job postures for extended hours are causative factors.

Perhaps local lidocaine patches or periodic dosing with IV lidocaine would be worth researching.

Building in periods of rest to unweight your head and shoulder girdle (lying supine with a thin pillow to align the head/neck in meutral or resting in a recliner chair recliner to unweight the head/neck) would be helpful. Hard to do with a demanding job, I know.

I agree with Susie about the product called “Simply Sleep” by the makers of Tylenol. It contains no Tylenol, only a sleeping aide that clears the body fairly quickly. I also use Simply Sleep. Children’s Benadryl is another product that I use routinely. The Benadryl children’s tablets and liquid suspension allow me a lower dosing which is not overly sedating.

I hope you find a measure of easing of your ongoing pain. I am sorry that ongoing pain is your experience.
Karen
Pituitary failure, wide-spread endocrine dysfunction
Addison's disease
Mixed connective tissue disorder
Extensive intestinal perforation with sepsis, permanent ileostomy
Avascular necrosis of both hips and jaw
Receiving Palliative Care (care and comfort)

bigecase
Regular Member


Date Joined Mar 2010
Total Posts : 384
   Posted 8/10/2018 5:03 AM (GMT -6)   
This is all so very helpful. I am frustrated and need to relax. This is life. The lidocaine patches are probably what i need to try. My mother used those for years. If if will numb the pain 12 hours at a time i am willing. I take melatonin eveynight. It puts me to sleep. I just don’t stay.

Thanks for all the kind words and useful information. I cannot tell you guys how much i use the info you suggest.
bigecase
Age 49

bulging disc C6, c7, L4 &L5, L5S1 Spinal Stenosis, degenerative disc, mild anterolisthesis FAILED back Surgery 2012. Torn rotator cuff, torn bicep tendon, and spurs all in right shoulder--3 shoulder surgeries. ESOPHYX TIFF surgery. Hypothyrodism, anxiety, migraines, tmj,3 left shoulder surgeries
12/14, SCS implant

Darla
Regular Member


Date Joined Jun 2018
Total Posts : 150
   Posted 8/10/2018 6:02 AM (GMT -6)   
Hi Bigecase,
I would like to suggest asking your dr about Gabapentin. It is not for everybody but I have many similarities to you from what I have read. I just started taking it a few months ago...My NS recommended it and the primary care Dr did as well. It is for nerve pain and really helps me handle that as well as take things a bit easier! I was initially prescribed it at night as it can make you drowsy and really did help with sleep! Some people don't like it because it can make you sad or gain weight but I have not found that and I am on a high dose now after a 4 level ACDF surgery a few weeks ago. Ask your Dr about it...it is heartily endorsed in the medical community from what I see. Seems like all other meds are not these days!

Best wishes to you...I am going to probably chime in more later.

-Darla

bigecase
Regular Member


Date Joined Mar 2010
Total Posts : 384
   Posted 8/10/2018 6:50 AM (GMT -6)   
I take a 300 mg in am and a 2 300mg at bedtime. I was out a few weeks ago and realized i don’t need to miss this one. Thanks for the input.
bigecase
Age 49

bulging disc C6, c7, L4 &L5, L5S1 Spinal Stenosis, degenerative disc, mild anterolisthesis FAILED back Surgery 2012. Torn rotator cuff, torn bicep tendon, and spurs all in right shoulder--3 shoulder surgeries. ESOPHYX TIFF surgery. Hypothyrodism, anxiety, migraines, tmj,3 left shoulder surgeries
12/14, SCS implant

bigecase
Regular Member


Date Joined Mar 2010
Total Posts : 384
   Posted 8/23/2018 5:18 AM (GMT -6)   
Had 3 week follow up from cesi. NP offered nothing. I was in tears when i left realizing this is life. The only thing she said was have GP do some other testing with next lab work. She was sorry it didn’t work. Uh you think you are?

Darla
Regular Member


Date Joined Jun 2018
Total Posts : 150
   Posted 8/23/2018 7:42 AM (GMT -6)   
I just scanned through this discussion and saw the info about steroids keeping one awake. I had ankle injections yesterday and was so wound up at night! I never think of injections as the same as taking a medication but I can attest to this connection!
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