Posted 7/27/2018 4:06 PM (GMT -6)
I wanted to join the group in hopes of getting support that I cannot get in the medical community anymore.
I am a 42 year old female former athlete and have many injuries that still haunt me to this day and recently had a surgery for Uterine Cancer. Needless to say, I have some pretty bad pain on occasion.
Thank God that I had my last surgery for a sports injury (ACL Autograft) a year ago when pain meds were still being given out. My cancer surgery was the year before that. And even both of those, I had to beg for pain meds because it was just excruciating.
Fast forward to today....I am at one of the world's most renowned hospitals because I was told by my doctor that my cancer spread and I needed surgery again. I elected to come here thinking that I would have adequate treatment. I was wrong.
When I got here they had already had every single record of medications and doctor visits since 2013. I literally saw the computer with every RX I have taken since then on it. It's not the pain meds that have caused a problem. Any time I saw a pain doctor, I always passed the office tests and still have glowing reviews from the doctors. I stopped taking the pain med when the pain stopped.
The problem is the psychotropic meds I took. My husband was diagnosed as terminal a little while back and I became extremely depressed - this was while I was undergoing treatment for cancer as well. It was something I have never had to face but he is the light of my life and I will take care of him until the end.
The doctor's at this specialty hospital saw that I was on meds for depression and anxiety and while they had no issue scheduling me for surgery (the surgery they want me to have is beyond heinous), they let me know that they will not be offering me any pain management afterwards or during because I was a "high risk" group for addiction because of my "mental health issues."
I could not believe what I had just heard but sure enough when they showed me the new FDA recommendations for who NOT to give pain meds to - sure enough the second to the top of the list is "people with mental health issues." Honestly, I don't think I know a single person who doesn't take or hasn't taken medications for depression and anxiety.
This was so disturbing to me - especially since they told me that I would not be able to do anything for 6 weeks post-op because of the severity of the surgery. There is no way I could take care of my husband (we have zero family - it's just us 2 and our dogs) while writhing in pain.
What's weird is that I do not drink alcohol, caffeine, use any kind of drugs and have no history of any substance abuse whatsoever. It's simply because of the meds I took for depression and anxiety.
And I am a pretty strong person and have had many surgeries with no pain meds but when they start operating on your genitals? This is a WHOLE new level of pain.
I declined the surgery altogether.
I even had gotten back into sport to help stay healthy and deal with the stress of my life situation but after having some close calls with ligament injuries again, I simply stopped and am down to just walking and swimming.
There is NO WAY I could or WOULD go through another rotator cuff repair or ACL recon withOUT pain meds the next time. Those two surgeries hurt worse than anything I have ever known and the pain lasted for a solid year easily. The ACL is still healing and most literature and doctors will say that it takes a full 2 years to heal completely. How could I add something else to this already bad situation? I can't.
My prognosis gives me enough time to take care of my husband so that is what I chose. I still cannot get rid of this slimy feeling of being discriminated against because of mental health issues. I do not think they are targeting me or that I am alone. I am aware this is happening on a large scale but I still cannot wrap my head around the fact that this is what things have come to now.
We have had two friends with severe congenital diseases that cause chronic pain and they were both yanked off pain meds. My sister suicided in January of this year because she also had her meds drastically reduced to the point she could no longer deal with the pain from complications from Neurofibromatosis since birth. She died with a spine riddled with gigantic tumors.
Thank you all in advance for being here and I pray we all make it through this very bizarre time of "one-size-fits-all" approach to (lack of) pain management.
Love & Blessings,