You might want to connect with a Lupus forum, in a casual way. Lupus and MCTD share similarities. I am not aware of any MCTD forums.
I would also caution you to avoid rushing to the conclusion that you have MCTD, based on the comments of the physician who was guestioning the legitimacy of your psoriatic arthritis diagnosis.
Physicians do have failings in making accurate diagnoses. In my personal opinion, the problem of misdiagnoses has a basis in the lost art of conducting a thoughtful physical examination. Physicians take a seat across from the patient and type at the computer keyboard far too often. Condensed appointments do not allow physicians to listen to a patient’s self narrative of presenting symptoms and past hostoryZ.
Accurate interpretation of laboratory blood chemistry panels is imperative in making an auto-immune diagnosis. Even if the blood chemistry data is available, if the physician lacks the ability to understand the interrelationships of the laboratory values then an accurate diagnosis may be doomed.
A blood test gives data at a fixed point in time when the blood sample is drawn. However, the body is not a fixed or static entity. The body and its systems are fluid and dynamic and change as a function of time as well as are influenced by natural circadian patterns/rhythms.
Be leary of any physician who dismisses a possible auto-immune condition based on a single blood test. Most auto-immune diagnoses evolve over a period of several months of repeated blood serum testing for immune antibodies.
Be leary, too, of “normal” results. Blood chemistry values generally are reported as a numerical value compared to a statistical population sample, a bell curve. “Normal” can have a wide variance. So, too, a “low normal” or “high normal” finding can be symptomatic for any given individual (sample n= 1). Question any physician who says “You are completely fine, see you for follow-up in 6 months” when there is a low normal or high normal value reported. It is wise to request a copy of all blood chemistry laboratory test results. Keep each page in a 3 ring binder, ordered chronologically by date. Look for trends and repeated patterns. Trends and patterns may be more informative than a single value derived from a one-time blood draw.
Have you also considered Ethos Daniels syndrome? It is a condition marked by joint or ligament laxity (among other features).
open mind in partnering with your new rheumatologist.
Pituitary failure, wide-spread endocrine dysfunction
Mixed connective tissue disorder
Extensive intestinal perforation with sepsis, permanent ileostomy
Avascular necrosis of both hips and jaw
Receiving Palliative Care (care and comfort)
Post Edited ((Seashell)) : 7/31/2018 7:06:16 PM (GMT-6)