Introducing my Symptoms and I!

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BamX2
New Member


Date Joined Sep 2018
Total Posts : 1
   Posted 9/2/2018 2:45 PM (GMT -6)   
Hello everyone! My name is Rachel, I'm 19, I work at Starbucks, I love love love coffee.
I am currently undiagnosed with chronic pain, been in pain for 5 years.

I thought I'd come and introduce myself, share my symptoms see if anyone relates or has advice, but also joining here cause I am really the only one who believes whats going on in my body!! And I know a lot of people have dealt/deal with the same things, so I'm glad to have found someplace that I can let all this out!!

It started when I was 14, every so often I'd have a pain in my lower left abdomen. It feels like someone has a grip on some type of organ in there and won't let go. It started out once every two weeks, so I didn't think much of it. Then I would feel sick, chills and nausea, then over the first year of the pain it got more frequent and ever since I was 15 I can't remember a day I wasn't in pain. My symptoms are wild and all over the place, but the abdominal pain has always been the consistent one.
But, for kicks and giggles, heres a fun list of all my symptoms! tongue

Nausea (vomit only rarely but definitely more than a normal person!), diarrhea, constipation, gas, major stomach bloating, eating small amounts and feeling full, constant fatigue, lower back pain/back ache, occasional pain up the bootyhole (itll be random too, not always during bathroom visits, and itll be sudden), I've had a few times over the years where I've had blood in the stool but nothing too bad, headaches and dizziness come fairly often too.
Over the five years other symptoms have come and gone but I never knew if the related or not, those listed are just the common ones.

I've had one laporoscopy (they thought it was endometriosis) and found nothing, ultra sound, blood tests to infinity and beyond, I couldn't tell you which ones, tried almost every diet on this planet, and on many medications that have never helped one bit.

Planning on seeing the Gastro next, my last one was very rude and made fun of my symptoms, but thats another story!! Hopefully I can find a good one here next.

Anyways, thats me! Anyone relate? I'm really excited to join this forum and its nice to meet you all smile

(Seashell)
Veteran Member


Date Joined Dec 2012
Total Posts : 893
   Posted 9/2/2018 9:17 PM (GMT -6)   
Rachael:
Welcome to this little internet corner of the world although I am sorry that you have the misfortune of experiencing persistent pain that is a common thread shared within this group. Pull up a chair and join our “campfire.”

It can be frustrating to have repeated “normal” findings when your body feels at odds with itself. A gastroenterologist consultation certainly seems like a next best step. Inflammatory bowel disease (IBD) -which includes Chron’s and ulcerative colitis - often first appear in late teens/early 20s.

I am always amazed by the employees at Starbucks. Almost every block in downtown Portland, Ore (where I reside) has a Starbucks cafe. Portland is a sea of caffeine. Interacting with a steady stream of customers, constantly multi-tasking, a barrage of interruptions, and exacting coffee orders. I would not survive a day working at Starbucks. Starbucks is fortunate to have you.

Welcome. I hope you find support, validation, and common understanding here that makes your experience with pain more tolerable.
Karen
Pituitary failure, wide-spread endocrine dysfunction
Addison's disease
Mixed connective tissue disorder
Extensive intestinal perforation with sepsis, permanent ileostomy
Avascular necrosis of both hips and jaw
Receiving Palliative Care (care and comfort)

Post Edited ((Seashell)) : 9/2/2018 8:20:14 PM (GMT-6)


Darla
Regular Member


Date Joined Jun 2018
Total Posts : 150
   Posted 9/3/2018 6:11 AM (GMT -6)   
Welcome, Rachel! It is nice to meet you though not the best circumstances. It is so frustrating to have to convince Dr's who may only believe in broken bones or blood tests that are through the roof. Hang in there. Try and be as specific as you can at your next appt. I go in with my questions written out so I don't forget or get intimidated. Drs only know what they know. That is a frustration of mine...You have to pretty much figure out what is wrong to know which Dr to see.

In any case it is nice to meet you!

--Maybe this is the wrong thing to say, but do you think coffee might be irritating your stomach? Have you tried having very little for a few days to see if it is less irritated? Just a thought.

Post Edited (Darla) : 9/3/2018 6:45:04 AM (GMT-6)


Blackbird123
New Member


Date Joined Aug 2018
Total Posts : 3
   Posted 9/3/2018 8:09 AM (GMT -6)   
Hi Rachel. One can have endo that can't be seen during a laparoscopic look-around. I did. I finally had a hyster at 50 which helped tremendously. But you are too young IMO to consider that route. I put it off as long as I could.

I also had lactose intolerance at your age and it took 8 months and 4 doctors to get it diagnosed. This was 20 years ago b4 it was splashed all over the tv with lactose supplements and lactose-free substitutes.

In my 50s, I developed a intolerance to gluten. Not celiac but enough to make me uncomfortable.

I also gave up diet coke as aspartame can be really hard on one.

Just some ideas. Good job being your own advocate so far -- keep it up!

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16804
   Posted 9/3/2018 8:29 AM (GMT -6)   
Hi Rachel & welcome to Healing Well. Many of the symptoms you are describing should be addressed by a good gi dr. I hope you have success with the next one. Considering the length of time you have been dealing with these problems, hopefully this next dr will order an endoscopy & colonoscopy. Both of these tests can be done at the same time.

I urge you make a list of your symptoms to discuss with the dr.. I would list my symptoms in the order of what gives me the most problems. If you notice certain foods trigger your symptoms make a note of it. Being prepared at the appointment will be to your benefit.

In the meantime, try a heating pad when the stomach pain hits. Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Chutz
Forum Moderator


Date Joined Jan 2005
Total Posts : 9258
   Posted 9/4/2018 12:40 AM (GMT -6)   
Hi BamX2,

And welcome to the forum! I agree with some earlier comments... you need to find a good doctor. Any time you have blood in the stool you need to find out why, sooner rather than later.

Also, as Susie said, make a list of your symptoms. In fact keep a diary with day, time, what you felt, how you treated it if you did. Take this with you to any doctor appointment and have them go over it with you. It will show them you are serious about finding the cause of your problems and help them zero in on a cause easier. One thing you might want to look into is Gastroparesis. It can cause a lot of the symptoms you are having.
https://www.mayoclinic.org/diseases-conditions/gastroparesis/symptoms-causes/syc-20355787

Good luck and keep us posted. You have a lot of new friends here.

Warmly,
Chutz
Moderator: Chronic Pain, Chronic Fatigue Syndrome, Fibromyalgia
Conditions: Fibromyalgia, Chronic pain, IDDM (diabetes). Ulcerative Colitis, Osteoarthritis, Degenerative Disk Disease, Depression, Chronic Fatigue Syndrome, PTSD and others trying to mess up life.
~~~~~
The microwave oven is the consolation prize in our struggle to understand physics. ~Jason Love
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