Posted 9/8/2018 6:28 PM (GMT -8)
Hi, I was wondering if anyone had any insight or experience with the pain i am feeling.
Years ago I had posted about my problem, but not much has changed since then.
I am currently 18 years old and have suffered from this pain for 4-5 years.
In this time, i have been through 5 physiotherapists and two Rheumatologists, all of which have been baffled by the problem.
Most recently a spinal specialist who had involvement in physiotherapy had ruled out piriformis syndrome, and any inflammation or swelling in the region (as shown by scans) Which therefore have left him and the rest of his team, baffled as to what it could be.
He understood the hassle as this has been years of being referred and passed from doctor to doctor with no avail, which can be quite disheartening at times as this pain is almost daily and has been for years.
Symtpoms of the pain:
-A dull ache in the buttocks region, more central can be either side
(Piriformis syndrome, si joint disfuction and inflammation have all been ruled out by examination, the si joint dysfunction through the test where they apply pressure when lying down at the hips and whether you feel any pain)
-Can last for multiple hours, most cases have to wait for it to fade away which it does after a number of hours, normally to usually come back the next day
-I have noticed over the years if i have had the pain for hours and it starts to settle, it WONT come back for a minimum of 10 hours, as in i am ‘safe’ of the pain for a short while after
-Symtoms not really helped by prescription ibuprofen etc, the pain almost feels too concentrated
NOTE: Can feel reasonably strong activation of the pain when doing an isometric exercise (Where you lie on your back, put your knees in the air and put your hand on your kneecap, and push into your hand with your knee)
Never any ‘sharp’ pain, just a predictable constant ache for a long period of time.
Interestingly if i am bending over and i nod my head i almost feel a ‘tug’ in the pain region in the buttocks, as if the movement of my head is pulling on the pain location/activating it.
Lying down only sometimes helps as it can sometimes calm the pain down, but i would have to lie down for a while before getting up otherwise the pain would come back (almost like it needs a while to settle)
Apologies for the legibility of this post as I am just trying to get as much information as I can out, and see if anyone has any insight.