“Tethered spinal cord syndrome” comes to my mind when reading your post and narrative.
Thethered spinal cord syndrome is most often associated with Spina bifida but can also present in otherwise normal people with patent fetal neural tube development. In these cases, symptoms of tethered spinal
Cord often first appear during adolescence where rapid growth places stretching tension on the lumbar and sacral spinal nerves.
Symptoms include localized low back pain and radiating pain to the buttocks, hips, and groin. Bowel and bladder dysfunction may be present as anal/urinate voluntary sphincters are innervated by the cauda equina.
Your age span (onset at age 14 to current age of 18) and presenting symptom profile certainly do give suspicion of tethered spinal cord syndrome. Heightened symptoms when you flex your head also give credibility to tethered spinal syndrome. An MRI or dye study of the lower thoracic/lumbar spine and cauda equina would provide informative information.
Pituitary failure, wide-spread endocrine dysfunction
Mixed connective tissue disorder
Extensive intestinal perforation with sepsis, permanent ileostomy
Avascular necrosis of both hips and jaw
Receiving Palliative Care (care and comfort)
Post Edited ((Seashell)) : 9/8/2018 10:29:15 PM (GMT-6)