Yes . . . My brother’s medical history includes a malignant brain tumor (grade IV glioblastoma multiforma) at the age of 16 and intractable grand meal seizures. He has physical challenges from spasticity that impact his walking and fine motor control (difficulties with writing or buttoning a shirt).
He always travels as part of an expedition company, so that he has accompanied 1:1 support. He has traveled to the far reaches of the globe: the North Pole, Antartica, Peru, Equador, Russia, and more. He always takes tours that involve extensive hiking and outdoor adventures in nature; tuning-in to indigenous people, local customs, and exotic animals; and tuning-out from computers/iPhones and 24-hour newsfeeds. My brother he is a true example of living despite personal limitations. He has a genuine appreciation for the larger world that abounds us.
While at home, my brother volunteers EVERY day at a local nursing home, spending time with residents who are elderly, frail, and largely forgotten. He volunteers as if were a paid employee - he never misses a day. He has been volunteering at this same nursing home for 14 years.
Years of being my brother’s legal guardian has depleted me and has contributed to my own health perils. But I am immensely proud of who my brother is in the face of all that he has been through. If my brother can get up out of bed each day and put both feet on the ground and create a day of meaning, then so too shall I strive to do.
Pituitary failure, wide-spread endocrine dysfunction
Mixed connective tissue disorder
Extensive intestinal perforation with sepsis, permanent ileostomy
Avascular necrosis of both hips and jaw
Receiving Palliative Care (care and comfort)
Post Edited ((Seashell)) : 10/25/2018 9:56:34 AM (GMT-6)