Living with pain as a constant companion is a process of adapting and adjusting over time as well as working to find a combination of tools that lower the intensity/volume of pain experienced unique to you.
Having a reasonable expectation is important. In most cases of ongoing pain, the achieved end point falls far short of full pain resolution.
Most people with ongoing pain will experience pain even with prescript
ion narcotics and holistic/alternative adjuncts (physical therapy for stretching and soft tissue mobilization; yoga; warm and cold modalities; over the counter creams and patches with lidocaine or arnica; relaxation training and visual imagery; on and on). Complete pain relief is rare. More common is learning to live with a certain degree of pain.
I have advanced avascular necrosis of my hips and jaw. I am in a narcotic cocktail of oral dilaudid and fentanyl patch. My dose is higher than the morphine equivalent CDC guideline. Still, my pain relief I would qualify as 50% as compared to no prescript
ion medication. I am grateful for the pain relief that I do have. I think I would literally go insane and have a reach a psychological breaking point without the prescript
ion medications and self-care that I fold into my day.
Self care in addressing pain is essential. Yoga for me is as routine as brushing my teeth. The poses and stretches ease my pain even though the maneuvers may up my pain in the immediate moment. Yoga restores my emotional resolve. I practice visual imagery. Use distracting technique to otherwise occupy my mind (cross word puzzles, needlepoint projects, NetFlix movies). Cuddle with my young Maltese-poodle. I have a warmed buckwheat pack as a constant companion when at home, easy to warm in the microwave.
Conversing with others here, on his forum, can provide a sense of understanding with people who also experience persistent pain.
You mention that you are often short of medication by the end of a month, having to add a dose here and there. Are you on a long-acting time released medication? Or are you on short-acting immediate release medication only? Often folding in a long-acting medication is the preferred strategy in treating persistent pain. Long-acting medication lessens chasing a pill every few hours as pain ramps up as the prior dose is metabolized and pain relief lessens. Talk with your pain physician about
short and long term medication options.
And begin to explore avenues of self-care that you can look to when your level of pain heightens. For most of us with persistent and ongoing pain, quieting pain requires more than taking a prescript
ion medication. Moving, stretching, balancing rest with gentle activity, quieting the mind to reduce incoming stimuli (ex. turn off the television, turn off the radio) - these are a few possible ideas.
Feel free to chat and share your experience. Talking and writing as a means of expression has therapeutic value. Rest assured, people on this forum “get it.” They “get” what it is to live with pain.
Pituitary failure, wide-spread endocrine dysfunction
Mixed connective tissue disorder
Extensive intestinal perforation with sepsis, permanent ileostomy
Avascular necrosis of both hips and jaw
Receiving Palliative Care (care and comfort)
Post Edited ((Seashell)) : 10/29/2018 12:07:30 PM (GMT-6)