Your posts clearly articulate the emotional frustration that accompanies your pain. A frustration that grows and encompasses more of the forefront of your thinking as the pain fails to resolve.
I read an article in this week’s New York Times science section that there are estimated to be 40 million Americans who endure the misery of chronic pain.
That’s a sizeable estimate.
Medicine often has the ability to “fix” what is ailing a person with limited degrees of success. Less than full recovery is true for many people, a simple reality that speaks to the limits of medicine to replicate the inherent anatomical and functional perfection that is a healthy body. Aging and wear and tear are also at play as to why we hurt - more evident as lifespan expectations lengthen.
Living with pain myself, a key aspect has come in working with a counselor/psychologist on being able to express appropriate grieving along with acknowledging my pain and tactfully placing it to the side so not to encompass my every wakful moment. This is constant work in process. Cerrainly not everyday is rainbows and unicorns. But my continued “work” with a pain counselor/psychologist has lessened the weighty burdens that pain imposes on me. A lot of the work with a pain counselor/psychologist filters down to making the best of a less than ideal situation.
I have an ileostomy and wear an ostomy pouch that collects fecal material. I never foresaw that an ostomy pouch would be on my life’s trajectory. Never. Accepting and adjusting to sharing space on my abdomen with a pouch of poop has been a more lengthy process than the physical healing from the surgery and scars.
I think the same is true of persistent pain. Psychologically coping to pain is a lengthy and undulating process. Pain permeates every aspect of a person’s sense of being. It is an unwanted companion. Seeking the help of a trusted pain psychologist/counselor might be a beneficial step in understanding the nature of your pain, how pain affects you and your nuclear family, finding appropriate expression for grief and loss, and finding the whereforeall to live your best life in spite of pain.
Pituitary failure, wide-spread endocrine dysfunction
Mixed connective tissue disorder
Extensive intestinal perforation with sepsis, permanent ileostomy
Avascular necrosis of both hips and jaw
Receiving Palliative Care (care and comfort)
Post Edited ((Seashell)) : 11/2/2018 5:55:14 PM (GMT-6)