Posted 11/3/2018 10:36 AM (GMT -7)
DMO, it is not uncommon for people to have surgery & end up with chronic pain. The drs can fix the mechanical issues but there is always a potential for a patient to have pain later.
Looking at your list of things you are doing to help alleviate some of it seems to be ok. I do have a question, on the days when it's really bad, have you ever thought about what your activities were the day before? Was that a day when the stress level was in high gear, did you do more than usual that day. The other day I had to go to the store, we were out of everything, lol. Normally my husband helps unload the groceries. He is down with his back & walking to the bathroom is sketchy right now. There was no way I would have wanted him trying to help me. I carried in 2 gallons of milk, 4 gallons of tea & close to 20 sacks of groceries. I have my groceries sacked light, the weight does me in. I make numerous trips back & forth getting groceries in the house. The gallon jugs did a number on me. I had the horrible burning in my left shoulder & across my shoulder blades. I take a low dose of Gabapentin, it does help, however, I aggravated things with this activity.
I have probably mentioned this before, I have been in pain mgt since 1994! I live in the DFW area, a very large area. Pain mgt was just starting up here at the time. We had 2 facilities at the time that handled chronic pain patients. My goal with pain mgt was to continue to function so I could have a life & keep working. This is a long time to be a pain mgt patient, lol. But, it was nice having everything done inhouse & not having to go here & there for different things. When I first started water therapy it was with this dr. They had a physical therapy center on the first floor complete with a large pool. Warm water is wonderful. I went to PT after work 3 days a week. I had long days & got home at 8:30 at night. They had extended hours, most places closed at 5:00. None of it was perfect, but it kept me going.
DMO, I have a question for you. What do you do for enjoyment for you, not your family either. Once before, I remember you talking about you wished you could be on an island fishing. Do you like to fish? If you like to fish, go to an area lake or pond if that is possible I love to fish, it is so relaxing to me. I can sit there in the sun & I honestly do not care if I catch a fish or not. It is a place I can be happy & relaxed & I am not thinking about anything! Keeping our minds occupied with things other than pain or how bad we feel goes a long way. We have a place at a lake about 90 miles from here. We go there when we can, but I still like fishing on a bank better than the boat. My grandson is quite the fisherman, he & I go to ponds around here & fish. Both of us love being outdoors. I start my day outside drinking coffee, most of the time it isn't daylight. It is quiet & peaceful & helps me start my day in a better mood. I love to watch the birds & squirrels in the mornings, it has a calming effect on me. I also put out peanuts for the squirrels & I have a couple of regulars, lol. I do this every day, year round, even in the winter. Distraction really does help. I do a lot of different things to help distract myself. Sometimes, it's as simple as going to Star Bucks to get a coffee. I make sure I have "me time".
I understand the fear factor that comes with chronic pain or any condition. I remember the never ending days of worrying about tomorrow out of fear of the present moment. What I did not realize was the fear was robbing me of life. I wasn't in the present moment, I was too busy worrying about the next day. That is no way to live, a great psychologist that understood chronic health issues helped me with this. She was right when she said do not let worrying about tomorrow rob you of today. The unknown fears can cloud reality. I cannot get back what I missed out on when I was in this state of mind, however, I now know how destructive that thought process was. I don't have everything down perfect but, it's not about being perfect.
Just a quick thought, keep in mind when sitting you need to be sitting in a chair that supports your shoulders & neck. Sitting on a couch may not be giving you the firm support you need, unless it is reclining type couch. If you don't have a recliner, you may want to consider getting one. Shopping for a recliner is something to take your time by sitting in one to find the right fit. Some recliners can be too tall & cause the head to lean forward somewhat & that is not a good fit. What about your mattresses on your bed, what is the age of them? Do you swap out your shoes & not wear the same pair every day? I know you walk every day, are you wearing a good walking shoe?
Enough of my rambling!