Posted 11/20/2018 1:36 PM (GMT -6)
Hi TerryN & welcome to Healing Well. I have been around Healing Well for a while now & do not recall ever reading about a situation like yours. You have really been put through your paces trying to get some relief.
What does your pm dr offer as an explanation for these episodes of severe spasms? Are you on a muscle relaxer of any kind, if so which one? Since your situation is so unusual, I am kind at a loss. When I looked up this condition, all articles also speak of rib pain too, but I don't see you mentioning this. I am really stumped.
Like you, I am not sure if the paddle can be removed after this amount of time. I suspect there is quite a bit of scar tissue formation. I don't understand why the paddle was left in when the unit was removed. One thing I do know, if you can have it removed, I would only let a neurosurgeon do the surgery.