Palliative Care would be a welcomed model of care for you, I would think. Pursue this avenue as you meet with your new primary care and forage a relationship.
My own life is marginal, at best. I am able to pluck away at the keyboard in typing posts and replies but typing does not equate with my daily life experience.
Chronic loss of health sucks. Good health provides a foundation for a fulfilling and productive life. When compromised health morphs into months and years of continued erosion and loss, the experience of life fundamentally changes.
I am on Palliative Care with absolutely no desire to continue my life any longer than my maintenance model of medical care supports. I have had enough. I am weary to my core, both mentally and physically. There is no day that offers relief or a recharging of mind/body/soul. I exist but do not live.
I also know that only I can impact to make my days even a smidgen brighter. Only I can impact my thinking and internal conversation to be less dark and cloudy. I put forth effort to make the best of a less then good situation. I am not successful at this on all fronts everyday. Sometimes I need to take a timeout to just be and sit with the enormity of where I am.
And then I dust myself off, and begin again.
From my near death experience, my take is that this worldly existence is not all that there is. Where we are going to next, in death, is not to be feared or afraid of. But until that time, I have a purpose to find and fulfill. And you do, too. Your purpose need not be large and vivacious. At the weakened point where you are now, it may be sharing a smile with someone you pass while at the pharmacy or sipping a coffee at Starbuck’s. Kindness to others is never wasted nor lost.
Come here for a place to hang-out and post. We will get to know the unique you with time and how best to support and aide you. Give back to others in posts, extend a hand through your words. The gift of giving freely is often receprociated in kind when we least expect it.
I hope you are able to find moments of contentment today, perhaps experience something nice and wonderful, and continue to put one foot in front of the other. Keep coming back here. This forum is like Motel 6, advertising, “we keep the lights on 24-7.”
Members here do care. about
Pituitary failure, wide-spread endocrine dysfunction
Mixed connective tissue disorder
Extensive intestinal perforation with sepsis, permanent ileostomy
Avascular necrosis of both hips and jaw
Receiving Palliative Care (care and comfort)
Post Edited ((Seashell)) : 1/27/2019 9:01:57 AM (GMT-7)