Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

Not sure where to start!

Support Forums
>
Chronic Pain
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
Allisonthebaker
New Member
Joined : Apr 2019
Posts : 2
Posted 4/4/2019 6:18 PM (GMT -7)
I just joined Healing Well after researching information regarding the diagnosis I was given yesterday. I found you all that way, so please bear with me while I can gather my wits and get my head wrapped around it all!
I need major cervical spine surgery and ASAP. I am at risk of severely injuring my neck (and going Quad) if something as simple as a fall or bang on the head happens. I was hoping to find out more to understand what will be done and more so about recovery. I have some information from my doctor's appointment in the patient portal that has more detail in terms that despite my home caring background, I had to look up some stuff to get a clearer understanding. The surgeon explained some of the details and the 'reason' lists (verbatim) C3-7 ADCF, C3-7 Posterior laminectomie (sic) and fusion, 8 hrs Detrax, Mayfield Head Rest, Biometrics MAXAN and EMG. I think I must be a walking time bomb!
I'm glad to find a support forum that seems to suit my situation. Not sure if I should be in Arthritis but I'm probably past that now, and here I am. I live in a rural area of northwestern lower Michigan so second opinions are not readily available at short notice so I don't think I have the luxury of waiting 2-3 months for an appointment.
I've been certified by SS as disabled with all sorts of medical and psych disorders for about 2 years. I just took early retirement (IE I'm poor) I was not eligible for full disability because of my work history during the past decade. Just SSI and now have SS retirement, too much to continue on SSI by a hundred dollars or so. They also cut our SNAP benefits, so I'm in the same state as before. At least it's enough to barely scrape by if we get a little help.
I have a college education in Human Services, BA 1980 from Northeastern University in my home state, Massachusetts. I've also been a bakery owner and since then earned a Masters of Hard Knocks. ;)
I had ailing in-laws and thus to help them I pursued healthcare and hospice training and worked quite a while as a CNA and HHA but mainly doing private duty. I hated working in a nursing facility almost as much as for homecare agencies and stopped working for them and work privately, and sold bread at farmers markets.
I'm waiting to see if I can be approved for health care coverage. Should know something after I get Cardio to approve clearance next Friday. Hoping the provider (Meridian Medicaid) review can be done in time. Surgery is tentatively set for 4/22. Whee!

Post Edited (Allisonthebaker) : 4/4/2019 7:23:19 PM (GMT-6)

profile picture
White Beard
Forum Moderator
Joined : Feb 2009
Posts : 3740
Posted 4/4/2019 9:50 PM (GMT -7)
Welcome to HealingWell Chronic Pain Forum Allisonthebaker! Wow! Your surgeon certainly wants to do allot all at one time! May I ask are you getting this done at a major hospital i.e. like a University medical hospital or an other wise major medical facility? I ask this because this is a major type of surgery and not usually done in smaller community hospitals. Also what type of surgeon is to do this surgery? I've had several fusions done in my cervical spine but they were all done one level at a time. ( example C6/7 ACDF 1985, C5/6 ACDF 2009, C3/4 Posterior fusion with rods and pins 2010) but no multiple cervical Discectomy and fusions. However there are several people on this forum who have had multiple cervical levels done at one time. Personally I prefer having a neurosurgeon doing this type of surgery on me! My first ACDF at C6/7 was considered an emergency situation after the problem was finally diagnosed!! The herniated disc was severely pressing into my spinal cord, and the neurosurgeon could honestly not understand why I wasn't a quadrieplegic with the damage I had! (His words not mine!) Anyway I ended up having surgery early the next morning after being diagnosed! I was in the military up in Alaska at the time, but had surgery by a civilian neurosurgeon at civilian hospital in Anchorage. So I can definitely relate and empathize at least to part of your situation!

I can't stress this enough though, what your describing is a major surgery and yes if this is an emergency situation ( are you currently in the hospital or do they have you in a cervical collar or in any other way stabilized your neck from possible further injury?) Then I can definitely understand the need to have this surgery right away! However if there was any possible way of getting a second opinion from a board certified neurosurgeon at a major medical facility or a University medical school I would certainly suggest doing that! I know this must be an extremely scary and difficult situation for you! I do hope some of the other members that have had this type of multiple level cervical fusions come soon and hopefully be of more help to you! One thing I will definitely suggest is you have either an adjustable bed or a good recliner that you can sit in and also sleep in after you come home from your surgery! I personally found this the most helpful thing in my recovery! Also one of those grabbers so you don't have to bend down to pick up stuff!

Not to in any way scare you or anything but have you been told of any of the possible negative side affects that although highly unlikely and usually only temporary, but are still possible with this type of surgery? With the ACDF temporary voice and swallowing problems sometimes can happen. It's rare but not unheard of! I personally think the better informed and prepared a person is, the better chances you have of having a successful out come from your surgery!

I do wish you well with this! If I or any of us here on this forum can be of help to you please let us know! Good Luck to You!

White Beard
profile picture
Darla
Veteran Member
Joined : Jun 2018
Posts : 508
Posted 4/5/2019 3:34 AM (GMT -7)
Hi Allison and welcome! I am a little confused...the 'A' in ACDF is Anterior but your Dr's info says posterior. I had a 4 level ACDF, same areas as you I believe, this past July. I was very afraid but it went smoothly. I had a Neurosurgeon do it though the Orthopedic Surgeon was an option. Recovery is not fun and the pain was not the worst I have had but swallowing took time. Overall you will need patience but it is a helpful surgery and while not perfect I am better. With the fusion I cannot turn my head fully side to side and have to accommodate that somewhat by positioning myself or asking people to move a bit. I could not move fully before the surgery due to the arthritis etc. so it is not a big deal. I hope your surgery goes well and I know I am very glad I had it...sounds like a no-brainer for you! Best wishes! If I can assist please ask away.
profile picture
straydog
Forum Moderator
Joined : Feb 2003
Posts : 18985
Posted 4/5/2019 6:52 AM (GMT -7)
Hello Allisonthebaker & welcome to Healing Well. You have posted in the correct forum. We have had many members over the years have cervical fusions. By chance do you have a copy of the written report of your MRI? A lot of information in that report will tell you why the dr is saying immediate surgery. Did the dr go over the MRI results with you, pointing out the levels that has him concerned? Is this an orthopedic or neurosurgeon? Sorry for so many questions.

While this surgery is considered a common surgery these days, it should not be taken lightly. If you have unanswered questions I would go back in to see the surgeon to get answers. The more informed & prepared you are the better you will do.

You have been given some great information here, ask any questions you may have. We will do our best to help in any way.
profile picture
Allisonthebaker
New Member
Joined : Apr 2019
Posts : 2
Posted 4/5/2019 10:48 AM (GMT -7)
Thank you all for responding!
My doc is a neurosurgical spine specialist. I was referred to him by my neuromuscular rehab doc. He has performed a few EMG tests for carpal tunnel, left arm, and I have another pending in June for my right hand. He also did a spinal injection last October but it did nothing about the numb ness and tingling I was having in my left ear and gradual spread into my left cheek and neck. That's about when he decided to refer me to the neurosurgeon. I have an MRI image of my spine from September 2018, and it seems obvious, even to me and my spouse (who is somewhat clueless about medical issues) that a there's a kink or bend and narrowing (stenosis wasn't mentioned but spondylosis and vertebral damage were in the following report. My chiropractor also took some X-rays and I was able to see that my cord is over to one side of the very top of the column.
I have a report on the XR from August 1, 2018 that reports:
"AP and lateral films of cervical spine as well as cone down view of the T1-2 region is performed.
The vertebral segments appear to be well maintained. Severe degenerative disc disease is seen at all levels between C3 and T1. Facet arthrosis moderate to severe in degree is seen throughout. The apices of the lungs are felt to be normal.
1. Moderate to marked degenerative spondylosis is seen throughout the cervical spine. There does not appear to be an obvious acute abnormal acute osseous abnormality or destructive change."
I live in a rural northern lower area of northwest Michigan. We do have larger hospitals that are affiliated with McLaren and or Munson. He has privileges at both. The actual hospital is Charlevoix Area Hospital now, affiliated with Munson as well as my PCP. Our rehab in town is also affiliated with Munson. I live about 20 minutes from it and although it's in a rural community Charlevoix county, it's a fairly wealthy one. I actually prefer the smallness because the care to patients has a better ratio. If something were to go wrong the trip to Petoskey is about 15 minutes.
McLaren in Petoskey is the next closest, then Munson in Traverse City. The network is fairly new and huge. If I needed care that would be beyond the capabilities in norther MI I would go to Ann Arbor, but that's a haul of at least 6 hours each way. So, I'm fairly comfortable that the doc I'm seeing is about as competent as needed.
What concerns me most right now is what to prepare for once I'm home. Supplies, pain management and possibly in home care with my wound care or who knows!
So glad to find this support forum right now as my anxiety triggers are beginning to kick in!To be clearer, the doc addressed the reason for doing both surgeries is urgency. I hope he makes that clear to Meridian!

Post Edited (Allisonthebaker) : 4/5/2019 11:54:34 AM (GMT-6)

profile picture
straydog
Forum Moderator
Joined : Feb 2003
Posts : 18985
Posted 4/6/2019 2:48 PM (GMT -7)
Glad to read you are using a neurosurgeon plus he specializes in the field. I think neurosurgeons are a bit quirky, just my thoughts. Most of them often do not have much of a personality, however, I can over look that any time, I am more interested in their skill than anything.

Do you have someone at home to help you after surgery? Perhaps some family members or friends that can check on you? It would be up to the dr to determine if home health would be needed. if you live alone you need to discuss this with him prior to surgery. Perhaps you can call his nurse & ask her to check with him. I don't recall any of our members having home health. Everyone's situation is different.

Here are some tips to prepare for coming home; a recliner to sleep & sit in, most find getting in & out of bed too difficult, try to borrow one from a relative or friend, take your medications as directed on a schedule, either prepare some food & freeze it into small portions or get one person meals that can be heated in the microwave, have plenty of drinks of hand such as bottled water. Invest in a grabber/reacher to pick up things off the floor to avoid bending over. These are not expensive at all & work great. We have several at our house & use them alot. Keep your phone charger handy. Ice packs is another thing that will be very helpful especially with pain. Some members have used frozen corn or peas if they had to & they can be refrozen. Cold packs like body buddies will work too, pop them in the freezer. Get some button up shirts, nothing over the head as you will not feel like extending your arms. These are some tips from members that has had surgery. If I think of more to add I will list them.

Take care.
✚ New Topic ✚ Reply


More On Chronic Illness

Seizure-Free : From Epilepsy To Brain Surgery, I Survived And You Can, Too!

Seizure-Free : From Epilepsy To Brain Surgery, I Survived And You Can, Too!

We Are All Connected

We Are All Connected


HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
Facebook Twitter Instagram Pinterest LinkedIn
© 1997-2022 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.