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Chronic pain after neck surgeries & waiting on a trial for a pain pump

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Chronic Pain
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misstrish
New Member
Joined : Apr 2019
Posts : 15
Posted 4/24/2019 11:01 AM (GMT -7)
Oh wow... Never in my years of all this pain, and 3 neck surgeries, and pain med's that don't work, or work at first, then get told by my Pain Dr that they are gonna try the Pain Pump on me. I have been thro so very much, with C6,7, and C3,4 fused from the front, and 3 years ago a whole joint taken out from the back with mass fixations removed. Year ago I got teeth pulled out for snap in supported dentures, and ha d6 implants put in. Now to find out every one of the implants are messed up and put in wrong.. Last week, had Oral surgery to have all the implants taken out. Now on another journey with that. So back to the Pain Pump, my Dr will not put me on a trial until my mouth issues have subsided. Boy, I cannot take anymore.. He has me on Morphine Sulfate 90 mg, and it surely does nothing anymore... Sure wish until he finally decides to put me on a trial, he gives me something to relieve some of this. My pain shoots into my head, and down my chest wall, and both arms now. Frontal Systems basically Kill me.... I don't see too many people with this severe neck pain as I, Please write me, if you have had such pain... God know's each and every one of us.... Hugs From Trish... I pray for all of us here.... PS I also raise a scarlet macaw, and may need to rehome him, which breaks my heart.


I have given your post a title.

Post Edited By Moderator (straydog) : 4/25/2019 7:53:09 AM (GMT-6)

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(Seashell)
Veteran Member
Joined : Dec 2012
Posts : 1080
Posted 4/24/2019 12:24 PM (GMT -7)
Misstrish:
I had to rehome my precious Maltese, Abby, 6 months ago due to my compromised health. It still brings me to tears.

Having a companion pet has been my virtual-lifeline as my health has declined over the years. Making the decision to relinquish Abby was the most painful decision that I have had to make and the most prominent of the losses that I have incurred. But I made the decision keeping Abby’s needs as more important than my own. I was not able to give Abby the life that she deserved.

Happily, Abby is now with a friend and her husband that I know well. Abby’s new family includes 2 dogs, 2 cats, a rabbit, a bird, and 2 pigmy goats and a half acre of fenced property. Abby has ready siblings and playmates. Abby is happy and thriving.

I give my friend a monthly stipend for Abby’s care and provide for all of Abby’s medical expenses. And I always will. I made a commitment to Abby and her well-being that I will always honor.

My heart still feels aches. But knowing that Abby is living fully gives me peace of mind.

Loss of health involves painful losses.

I feel for you and understand the close bond we share with our companion pets. They are not pets. Our companion pets are true gifts of the soul and provide welcomed nurturing and unconditional love.
Karen
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straydog
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Joined : Feb 2003
Posts : 18968
Posted 4/25/2019 6:58 AM (GMT -7)
Hi Misstrish & welcome to the forum. One thing we understand here is chronic pain issues & the impact it can make on one's life.

So sorry to read about the dental implant situation. Are you scheduled for the removal in the near future? Have you been given any idea how long the recovery will be once they are removed?

I am excited to read that a trial for the implanted pain pump is in your future. Provided the trial is a success, I do hope this works in your favor. Many folks have success with the pumps & find the pain relief to exceed more than oral medications. You will never be pain free but you do have a great chance of better quality of life & that is so important.

Please let us know what you find out. Take care.
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Darla
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Joined : Jun 2018
Posts : 508
Posted 4/25/2019 9:58 AM (GMT -7)
What determines who is a candidate for a pain pump?
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misstrish
New Member
Joined : Apr 2019
Posts : 15
Posted 4/25/2019 10:51 AM (GMT -7)
My Bad implants were taken out on May 15th, and now I have to wait 2-3 months to re-do them, and I am hoping for Teeth by October. What a long drawn out ordeal.. It surely didn't have to happen to someone at all, esp with someone with such severe neck problems.... Karma will be on the side of that so called dentist that did this to me for sure....
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misstrish
New Member
Joined : Apr 2019
Posts : 15
Posted 4/25/2019 10:54 AM (GMT -7)
Darla, Being on pain med's as long as I, and with nothing working... then you ask your pain Doctor about the pump... I have exhausted all the options for me... Sad tho, that its come to this... Will see..
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Darla
Veteran Member
Joined : Jun 2018
Posts : 508
Posted 4/26/2019 7:39 AM (GMT -7)
Misstrish, I am sorry to hear how much you are going through. Thanks for the info. I saw my PM person today and did discuss the pain pump but just at an intro level discussion. This is going to sound like a REALLY stupid question but I just don't really get it...Will a pain pump address pain in places other than the back? I have painful, swollen joints from psoriatic arthritis...Will a pain pump provide pain relief for everything (like taking oral medication) or is it specifically to relieve pain in the spine?

Thanks! I know mouth pain is the worst. And that is a long time to suffer.
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misstrish
New Member
Joined : Apr 2019
Posts : 15
Posted 4/26/2019 8:06 AM (GMT -7)
Honey, All I know that the pain pump goes into your fluid thro your spine, and people do have it for DDD disease/ and a lot more Look it up Metronic Pain Pump... I am not sure about your situation... Instead of taking oral med's all the time, and it going thro your whole body the pump goes thro the spine and directly to the source.. I am sorry for every ones pain...
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straydog
Forum Moderator
Joined : Feb 2003
Posts : 18968
Posted 4/26/2019 8:56 AM (GMT -7)
Misstrish, just a thought, is it possible to go into a denture for the time being, in order to speed up the process of doing the trial for the pump? If the trial is a success have the pump implanted & then carry on with the dental implants? Just a thought. When my first pump was put in, I had to undergo an psych evaluation too, did your dr discuss this with you? I have a friend that is in the process of the dental implants & it is a lengthy process.

Hopefully something will go in your favor & you don't have to wait so long. We have had a couple of past members that had pumps for neck issues & they were quite pleased with their results. Catheter placement depends on whether the patient is being treated for neck or back problems.

@Darla, no a pain pump is a targeted delivery system. It is not for pain all over the body. If a person has both neck & back issues, they have to decide which area is the most problematic that they need relief from. When I had my first pump implanted I chose for my low back pain. We were able to get fair control of my neck issues by doing ablations of the nerve endings in my neck. The pump cannot help alleviate both issues. Perhaps one day they will be able to develop something that will handle both the neck & back.
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Darla
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Joined : Jun 2018
Posts : 508
Posted 4/26/2019 9:02 AM (GMT -7)
Just to add my info from today, my PM said a psych eval would be required. Thanks for the info, Susie...picking one place would not be an option for me. Not even picking 2 places.

Misstrish, I hope you are able to work something out to speed that process!
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misstrish
New Member
Joined : Apr 2019
Posts : 15
Posted 4/27/2019 7:25 AM (GMT -7)
Susie.. I really cannot figure out what you meant on your post.? Sorry... The implants have nothing to do with a pain pump honey. Like I said, I had Oral surgery to remove the bad implants in my mouth. Now I have to heal from that for the next step. My Pain Dr will decide when he can do the Pain Pump Trial for my cervical neck issues.... although he wants some of my Mouth issues to subside... Yes I know I will have to see a Therapist or phychiatrist first to see if I am mentally stable for this... Are any of Us..?? too funny really...We all try so hard thro this life, we all just want some sort of a happy life, not just existing.. Right... This forum is wonderfull.. you all have become some friends... thank you Hugs from Trish..
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Darla
Veteran Member
Joined : Jun 2018
Posts : 508
Posted 4/27/2019 9:33 AM (GMT -7)
Trish it is great to meet you. I like your attitude!
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straydog
Forum Moderator
Joined : Feb 2003
Posts : 18968
Posted 4/27/2019 2:56 PM (GMT -7)
MissTrish, my thoughts on possibly dentures was to maybe push up the date on the pain pump situation. I know the recovery with implants can be lengthy. But it seems you & your dr have it figured out. I know of another lady that has denture implants & they were done incorrectly too.

The two key elements of a psych evaluation for are pain pump are; the patient does not have any issues having an implanted device & their expectations of pain relief are reasonable. I did I believe it was called an MMPI for 2 days. The psychiatrist reviewed my answers & then I did a consult with him. It’s nothing to worry over for sure.

Take care.
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Darla
Veteran Member
Joined : Jun 2018
Posts : 508
Posted 4/28/2019 5:47 AM (GMT -7)
The MMPI is the test Psychologists give...it is very lengthy but a paper and pencil test.
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misstrish
New Member
Joined : Apr 2019
Posts : 15
Posted 9/17/2019 11:05 AM (GMT -7)
Hello all.. I haven't been on here for quite awhile... Still waiting on a Neuro stim or pain pump. Our Insurance has denied the neuro, and we have appealed it twice.. Now Insurance wants my Doctor to try another block on my neck issues. Its called the ganglion block.. Well, I do not want this.. I go back to my Dr this coming Friday.. I should have had the trial 3 months ago. I am so upset, and have really gone down hill with depression too./ something has to give for me.../ also, still working on getting my mouth ready for teeth.. I have found a dentist up in Jacksonville, that does permanent teeth, with implants...Life has been real long, after this long hot summer of Florida... I hope by the first of the year, I will have a mouth full of teeth, and a pain pump all done.... I pray each and every one of you here are fighting for a pain free life, as what we all deserve.... Trish loves you all..... I still have my scarlet macaw, but he will be going to a gal, once I get my mouth done, for alittle while... Huge hugs to you all....
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