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3rd injection next Friday

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bebbles
Regular Member
Joined : Sep 2016
Posts : 79
Posted 5/3/2019 4:17 AM (GMT -7)
Hello,
Just a quick update. Having one more injection next Friday. Overall the injections don't work, at least for me they haven't. The doc will ask what percentage improvement did I have and I can say for certain that they have been 100% effective for about 3 1/2 weeks and then the tingling in the fingers and dormant bicep pain flare back up. He's trying to base the levels of fusions on my degree of improvement which scares me because I thought another MRI that they have not done would assist even more but maybe not. I don't see him again until 28 may as I previously mentioned. Seems way off! smile Anyway for now I continue to be active physical fitness wise and my range of motion is very good at this point.


Gave your post a title.

Post Edited By Moderator (straydog) : 5/3/2019 6:48:30 AM (GMT-6)

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straydog
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Posts : 18974
Posted 5/3/2019 5:52 AM (GMT -7)
If your MRI is more than 12 months old, I would ask for another one for comparison views at this stage. I can't remember the date of your last one. If it's been over 12 months I would call the surgeon's nurse & request this be done before your appt towards the end of May. He would have it to review with you at the time of appt. This would not be an unreasonable request.

Obviously the injections are not giving any long term benefit, however, at the same time they are like putting a band aide on a cut. They are not a cure & will not correct your issues.

Just my 2 cents.
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bebbles
Regular Member
Joined : Sep 2016
Posts : 79
Posted 5/4/2019 11:41 AM (GMT -7)
No, MRI is less than 12 months old. I thought the injections would do better than they did being previous injections worked very long term in my shoulder.
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bebbles
Regular Member
Joined : Sep 2016
Posts : 79
Posted 5/4/2019 7:19 PM (GMT -7)
No, MRI is less than 12 months old. I thought the injections would do better than they did being previous injections worked very long term in my shoulder.
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White Beard
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Joined : Feb 2009
Posts : 3740
Posted 5/5/2019 10:14 PM (GMT -7)
bebbles I was told by my neurosurgeons that they want the steroid injections as a diagnostic tool. If they give you some relief (even though it might not last very long, mine never gave me at most.... more than just a couple of weeks relief either) but by giving you any relief at all no matter how brief a time. I was told it indicates to the surgeon that, that indeed is the area that is causing you your pain and problems and needs to be fixed! If on the other hand the injection did absolutely nothing for you and had no affect on your symptoms at all. Then that might indicate that the problem might not be in that area or even something different ?

It's no fun living like that! I empathize with you! Good luck to you bebbles!

White Beard
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bebbles
Regular Member
Joined : Sep 2016
Posts : 79
Posted 5/11/2019 5:26 AM (GMT -7)
hello, another quick update from my C6 C7 injection yesterday. Unfortunately the tingling in the finger are there and prior to this procedure they are tingling more often. Good news is my range of motion is great but there is of course some neck pain. On my follow up visit I will let the Doctor know this. I want to know specifically if I would be a candidate for a disk replacement vice fusion and what are the requirements. Tricare will pay for it but I suppose that's not the only requirement. Anyway feeling good except for some tingling and slight bicep pain is gone now.
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bebbles
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Joined : Sep 2016
Posts : 79
Posted 5/11/2019 8:17 AM (GMT -7)
BTW, can anyone recommend a good cervical brace or at home inexpensive traction machine until I do surgery that I am anticipate won't be till about late june or july. Thanks.!
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straydog
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Posted 5/18/2019 8:35 AM (GMT -7)
Jeez, I missed your two posts. I would not buy a traction unit to use without approval by your surgeon. Cervical traction should never be used without proper instruction by a licensed physical therapist. You run a big risk of causing further damage. The one area that is a big concern in your neck, I would be more concerned about paralysis using traction. I think because of the lack of severe symptoms you are forgetting how serious of an issue you have going on.

As far as a brace goes, again, discuss it with your dr. Back in the old days drs often put patients in back & neck braces. After many studies they found out braces can weaken the muscles further causing more problems. Therefore, drs stopped prescribing them for this reason.

Some surgeons will put a post op patient in a collar for a short period of time only. On the other hand, a lot of surgeons do not use them. It's a mixed bag depending on the dr.

I had horrible problems with traction. First time it was for my back & I was in traction 24 hours a day. Had to have someone take it off to go to the bathroom. The nurse came back to set the traction & did it incorrectly, the weights were not evenly distributed. I told the nurse she needed to check it, she refused. Four hours later my dr shows up & saw the amount of pain I was in & I told him what happened. I heard him yelling at the nurses station, lol. The traction was fixed.

When I did traction for my neck as an out patient at a hospital once again it was not set properly, which caused even more pain. Another day it was not set correctly & it nearly pulled my ears off the side of my head. Bottom line, you need to have someone with plenty of experience when using traction.

Isn't your wife going to be returning from deployment soon?
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bebbles
Regular Member
Joined : Sep 2016
Posts : 79
Posted 6/5/2019 2:06 PM (GMT -7)
hello,
Just a quick update. Looking potential August for a "4 level fusion". I was asking about disk replacement but I guess they feel this is best. Has anyone had a 4 level done or know someone who has? Sounds very restricting. Appears the tingling in the fingers are spreading along with some numbness but neck pain feels fine. They have scheduled a CT myelogram to confirm if 4 levels is necessary.

Post Edited (bebbles) : 6/5/2019 3:10:42 PM (GMT-6)

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straydog
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Posted 6/5/2019 6:03 PM (GMT -7)
Bebbles, you sure have gone the long route on your situation. The mylo will hopefully give the dr the definitive answers he is needing. Often that is what it takes to get things confirmed.

Yes, we have had several members have a 4 level done & did well. It's not an uncommon surgery anymore. While it sounds restrictive a lot of our 4 levelers said they had just a little. Keep in mind, following post op instructions to the letter is crucial & listening to your body. You can use the search feature top right, type in chronic pain forum 4 level ACDF & you can read those stories. Abilene has a great story line.
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Darla
Veteran Member
Joined : Jun 2018
Posts : 508
Posted 6/6/2019 3:20 AM (GMT -7)
Hi Bebbles, I had a 4 level done last July. I am glad I had it done as I was extremely uncomfortable before the surgery. Better now, though not perfect. I still have the tingling down my arm and my NS thinks it is from the elbow but the elbow surgeon is not sure so that is not great. The recovery was not too bad...mostly the swelling in the neck was the issue. 4 level means more time in surgery so more time for the esophagus etc. to be moved out of the way and they do not like it (my Dr's words). But I can move my head pretty well. Even pretty soon after the surgery it was hard to tell that I had it as I can move pretty well. The movement is a little restricted and I position myself so I don't have to twist my neck much in situations but overall it is surprising how much movement there is. Disk replacement was not considered a good option but I do not know why.

Best to you and if I can help please let me know!
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bebbles
Regular Member
Joined : Sep 2016
Posts : 79
Posted 6/6/2019 7:49 AM (GMT -7)
Hi Darla,
Glad to hear you're doing better! Why was disk replacement not an option? What was your first week like? Thanks for any info!
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Darla
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Joined : Jun 2018
Posts : 508
Posted 6/6/2019 9:19 AM (GMT -7)
Hi Bebbles...I am doing better but I am still having problems with my arm and elbow. And my head still feels heavy for my neck. I would say the improvement is that I had awful muscle spasms in the shoulders and neck that are now manageable. I felt like my head was difficult to support a lot of the time...that is improved. I am saying I have improvement and no regrets but not totally a new neck, unfortunately! I think the disk replacement was not an option because too much damage but I am not sure. My almost 26 yr old son had one disk fused this week. He had an injury a few yrs back and surrounding arthritis. Rough. But the surgery went well. He is post-op a few days and doing well. With the 4 level and auto-immune issues my recovery was a little worse but not bad. The first week it was difficult for me to swallow. But as the swelling decreased it got better. Really, it was tolerable and you move on. I was pretty terrified but it was not that bad.

Best wishes to you!
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straydog
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Joined : Feb 2003
Posts : 18974
Posted 6/6/2019 10:30 AM (GMT -7)
Bebbles, check out this site, aans.org, it gives detailed information on who is a candidate for an artificial disc replacement surgery. This is a reputable site with excellent info.
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bebbles
Regular Member
Joined : Sep 2016
Posts : 79
Posted 6/6/2019 11:38 AM (GMT -7)
Forgot to ask how long the surgery was?
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Darla
Veteran Member
Joined : Jun 2018
Posts : 508
Posted 6/6/2019 12:07 PM (GMT -7)
Hi Bebbles, are you asking me? My surgery was long...I want to say around 5 hours. I had a drain in my neck and stayed overnight one night (in the hospital). I was able to walk right away and use the bathroom, so once the drain was removed the next morning I went home. It really was not that bad. The incision looked like I lost a bar fight, but after a few months you had to really look to find it. I did not have to wear a brace or collar. I had to go to a pain mgt appt the next week and follow up at the house dr the next week and wasn't comfortable but was able to do so. Not bad, really.
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bebbles
Regular Member
Joined : Sep 2016
Posts : 79
Posted 6/6/2019 1:45 PM (GMT -7)
WHOA! : ) Well I have started my journey starting with labs and CT myelogram next Friday. So I will have the summer to enjoy but was hoping to do it asap. Thanks for the site straydog! Appreciate the info Darla!
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bebbles
Regular Member
Joined : Sep 2016
Posts : 79
Posted 6/7/2019 11:51 AM (GMT -7)
Hi Darla,
Sorry for so many questions but its been almost a year now so how is your mobility in your neck at this point? I was told that you loose mobility once you do any type of fusion in the neck. When you say you were uncomfortable was it more pain in some places than others or more tingling or both? Most of what I am having coming down the stretch is tingling in the right index and thumb and seems like some numbness is spreading in the fingers. I've had a few failed carpal tunnel surgeries and no one had mentioned anything about the neck possibly being the issue. In fact I had nerve compression surgeries done on the inner forearms which left just horrible looking scars and still maintained numbness and tingling in the finger tips. Wish I could take those surgeries back.
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Darla
Veteran Member
Joined : Jun 2018
Posts : 508
Posted 6/7/2019 12:39 PM (GMT -7)
Hi Bebbles...I am happy to answer any of your questions, please ask away. I do feel I lost a little mobility BUT I did not have full mobility before because of the arthritis...my neck felt very tight and very achy all the time. I was developing tics almost as I tried to crack or adjust it all the time. My husband and I took a trip just before the surgery and I was miserable because of neck problems. I just could not support my head comfortably. So now that is better. My neck feels a little weak but is not awful. I can turn almost fully to the side, left and right. I can look up and down pretty well. I think you would not know I had this done, looking at me. That said, I do position chairs and people I am talking to to have them somewhat straight on for comfort. Not a big deal. The mobility is fine, really, for me.

The arm: I had nerve pain in my arm with trapped nerves- radial and ulnar. I had surgeries to release them.I had carpal tunnel surgery. After I still had tingling/pain in the arm I went back to the elbow/hand dr and he ordered an MRI. That showed the neck damage. I had a neurosurgeon do the 4 level acdf.

I still have the hand & elbow issues. That is pretty frustrating to say the least. So...the surgery was not that bad, the worst problem was swallowing and that improved pretty quickly. The mobility is not bad, the results for the neck are OK. I should strengthen my neck I think. My arm and hand are still problems.

I later found out I have spinal stenosis. I have psoriatic arthritis (it is like RA), connective tissue issues. I am 59 1/2. So, you might do better than I did. I was told I would have some improvement not a total fix.

Anything I can say just ask.
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straydog
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Joined : Feb 2003
Posts : 18974
Posted 6/7/2019 1:54 PM (GMT -7)
Bebbles, when you see your surgeon ask him to give you an estimate of how long he thinks the surgery will take. Each case is different, the skill & expertise of the surgeon, his technique & what is found once they can visualize things.

Keep in mind during surgery they give often use like a block to help with the pain. Once it starts wearing off things can go south, this is after you get home. This is why you need to take your medication on a schedule. Don't get in the "oh, the pain is not so bad, I won't need my pain pill". This is exactly how a patient often ends up in ER in severe pain. Hopefully you will be given muscles relaxers, this is a big complaint is muscles spasms. Ice packs, have those on hand.

If you have a positional bed great, if not a recliner is fine to sleep in. People often find it too difficult getting up & down out of bed at first. You do not want anyone to try to pull you in an upright position.

Consider liquids or soft foods like apple sauce or even yogurt. If you have trouble swallowing pills, put them in either of these. Stay well hydrated.

I would not focus on loss of range of motion & flexibility. Do not be surprised at first if your head feels very heavy. This is common, some have said it felt like they had a bowling ball sitting on their shoulders at first. You
should be sent to physical therapy at a certain point. This is very beneficial, it helps strengthen muscles & help a lot. With the newer fusions they do today patients do much better than the old style especially when there were several levels involved.

Your first 6 weeks can be a challenge. You are not going to be feeling great in a week or two. The surgeon does his part, then it's up to the patient to do his part for a successful surgery. It takes months for healing to happen & then around the 18 month mark you will know if you have any residuals from the surgery.

Start making a list of questions now to ask the surgeon; such as how long will surgery take, what activities should I avoid at first such as lifting, when can I drive, when will I do physical therapy, I think you have an idea where I am going with this. Just be smart about your activities, this is a surgery you only want to do once.

If I remember right, you have a daughter at home & she can be a great help to you too. Has your wife made it home from deployment yet?

Best thing I can tell you is when discussing surgery with others, 9 times out 10 you will be given the very worst case scenario. All of this will do is stress you out to the max. Kind of like telling someone I have a bad tooth that needs pulled & then you hear all about the worst tooth pulling case ever, lol.

You will do fine as long as you are reasonable about your recovery.
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bebbles
Regular Member
Joined : Sep 2016
Posts : 79
Posted 6/7/2019 2:12 PM (GMT -7)
Thanks Darla for the info and straydog! I had a bunch of questions when I saw him early last week to where he almost had to put me out of the office. I had asked about the MRI that I had from the VA (Aug 2018) and if that was current enough to go off of but turns out next Friday they scheduled me for CT Myelogram "with" contrast. This of course combined with the results of the series of injections will let them see exactly what levels needs to be fused. Injections as I mentioned were not effective. I do have one of those sleep beds that recline almost to 90 degree angle of so. I have been seeing the PA but I guess the notes get back to the neurosurgeon. I will make sure I ask how long it will be if in fact the Myelogram results see the need for a 4 level fusion. Yes my wife is back from deployment and between her and my daughter will be a big help! smile
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bebbles
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Joined : Sep 2016
Posts : 79
Posted 6/7/2019 2:29 PM (GMT -7)
I take it a CT Myelogram with contrast is equal to or greater depth than an MRI stray dog?
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straydog
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Joined : Feb 2003
Posts : 18974
Posted 6/7/2019 3:24 PM (GMT -7)
Bebbles, when there is questionable levels involved such as your situation, the myelo, with post CT is how they do it. You will still have the contrast in you so they will do the CT right after. It's like a road map in a way, they will see how everything is filling out. Each level of the spine from the neck down affects certain things. Since it's questionable which level is causing the numbness & tingling this is the right move on the surgeon's part. Depending on what shows up, you may only need a 3 level instead of four. Regardless, it sounds like you have a good surgeon in your corner.

Very glad that your wife is back home!!
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Darla
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Joined : Jun 2018
Posts : 508
Posted 6/8/2019 4:29 AM (GMT -7)
I hope I did not sound like a worst case scenario! I am pleased with my results considering what I had going in. We are here for you bebbles!

Post Edited (Darla) : 6/8/2019 5:35:03 AM (GMT-6)

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bebbles
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Joined : Sep 2016
Posts : 79
Posted 6/8/2019 7:48 AM (GMT -7)
thanks Straydog for that breakdown and easy to understand! Darla, by all means don't sugar coat it! smile I don't mind hearing the good and bad. In fact I watch you tube videos on the actual procedure beforehand. I actually have studied some anatomy and it is fascinating to know how perfectly put together we are and how every part of the body functions. Even when we perform movements with our limbs how you think it in the brain and signals are sent out to perform any type of movement! Just simply amazing!
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