I'm new to the forum and this is my first post.
I would be very happy about
advice or a link to a similar entry (I haven't found one yet). I'm very sorry that it's long but I'd be really glad if you took the time. general
So, I have been having a constant chronic headache for the last 7 years, like every day, ever hour, every second. It started at age 14 and now I'm 21. I frequently have other pains (stomachaches, back pain, in my throat, ... ) as well but they usually come and go, so I have breaks in between so that's pretty ok as long as it's not all very strong at the same time. Since October 2019 my backpain has also been there nonstop. My back pain only reacts to NSARs (which have also relieved my joint pains) although I do not have Rheuma. The back pain's not gone through that but it when it's really bad it takes the edge off and I can settle at 8.5/10, so I'm really glad about
that. chronic headache
My headache however, does not react to any medication. I have been to a lot of doctors, tried a lot of different therapies and medication, nothing ever just slightly changed anything to the better. The doctors have never found anything that could explain my pain, they don't know what it is, which is hard for me because I don't have a diagnosis and bc of that a lot of people think by "constantly" I mean 2-3 times a month, that I'm just exaggerating or even lying (unless it's really bad I'm not letting the pain I'm in show on my face bc I don't want to let the pain define myself), I'm sure that's familiar to you guys. severity
For the severity of my headache, I'll just say that 5/10 is a pretty good day for me. I mean, it's not fun, but it's a pain level that I'm so used to and it's just a relief in contrast to the frequent 7-8/10 days.
When my pain is really bad, like 10/10, I lie in my bed and at first I cry a lot, and my eyes roll into the back of my head and my spine like arches, and I just wanna scream and then at some point I'm just past crying bc the pain's so bad and I would just like to kill myself, bc of how severe the pain is - don't worry, I'm honestly not doing it, the pain's so bad anyway, so I can't move anymore - then I just lay very still and hope to fall asleep with the medication I have for sleeping. This usually lasts like 20 hours, the longest I had 10/10 pain in a row was 72hrs. In those times music, light or anything similar is just a no-go for me. My head can't process it anymore. It already feels as if I've got a 100 pound flaming hot iron block inside my head with a lot of sharp needles attached to its ends. My eyes, or especially the place behind my eyes, down to my nose and my jaw is all in similar pain. Do you have any advice for me?
Does anyone of you have like a similar experience with chronic headaches or know someone who does? Do you or they have a diagnosis or if you don't have a clear diagnosis, how are you dealing with that? For me, I would just like to know what this pain is and what causes or could cause it. Do people understand your chronic pain when you explain it? Do you have any tips for me? Thank you very much
for reading this and for taking the time!
I wish you all the best, God bless you.