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Mysterious Foot Pain - Please Help!

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Chronic Pain
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Severous1
New Member
Joined : Dec 2020
Posts : 2
Posted 12/6/2020 8:57 PM (GMT -7)
about 5 years ago, I started experiencing sharp painful spasms right below my left ankle on the exterior side. It primarily happened in the evenings close to bedtime. I dealt with it for about 3 years and considered it a nuisance until about 2 years ago when it got worse. At that point, it was keeping me up at night and I even started experiencing similar pain when turning or twisting my ankle while doing things like putting on boots or socks. I’ve spent those last 2 years seeing an unending list of doctors and specialists who have not been able to make any diagnosis or progress on my issue. Below is a summary, in order, of who I’ve seen and what they’ve done:

Chiropractor – first person I brought it up to after visiting them with an unrelated issue (sore back). They also specialized in sports medicine. He thought maybe I had injured it so he took X-rays and said nothing looked wrong. He then asked me to put it in ice water first, which did nothing but trigger the painful spasms. He then immobilized my ankle for 3 days and that didn’t do anything either, so I moved on to my normal family PA.

Physicians Assistant – they thought the painful spasms could potentially be related to a nerve issue, so they ordered me a nerve conduction study. That ended up coming back negative, and they said maybe it had to do with nerves so small the test didn’t pick it up. As a result, she sent me to a podiatrist. The podiatrist injected the nerve right below the ankle with a numbing agent and had me come back after a few days. At no point did the spasms or pain subside after the injection, so I returned to the PA. Next, she sent me to a foot and ankle orthopedist who ordered me an MRI. The only finding on the MRI according to the orthopedist was a small amount of bruising on the bottom of my cuboid bone. He didn’t elaborate beyond that and gave me no additional information. When I returned to the PA her last idea was having me see one more foot and ankle specialist, who I drove quite far to see. He was also perplexed, took additional x-rays, found nothing, and said we would proceed with a two step plan. The first was to wear an insole, which I’ve been doing ever since (about 1 year now) and if that didn’t work he would potentially consider exploratory surgery.

So I never returned to this doctor. Like before I’ve just dealt with it, but now it has progressed once again to where instead of it being painful spasms primarily at night and a few during the day, it’s now developed into it being very dull and achy at all times with increasing severity at night. I’ve had to take Advil every single night for the past few years just to fall asleep, sometimes waking up when it wears off in the middle of the night and having to take more before I can fall asleep again.

So here are some key facts on the history of this issue

1. Never has their been any noticeable swelling, discoloration or physical deformities of the area
2. Almost all physical examinations by doctors don’t result in any significant “pain points” especially when the issue was originally just confined to the spasms at night. However, in the past month it’s essentially now to where I can push on certain areas to replicate the pain at any time as well as certain orientations of the foot always triggering the pain
3. The pain itself when I both push on the area or roll it/step wrong is identical to the pain you feel when you press on a good sized bruise.

While I can deal with the pain, it troubles me to lose sleep and also take as much Advil as I do, which I know can’t be healthy. I usually get through the night with one pill, but when you multiply that by a few years it’s very concerning. I am not even 30 yet and I can't stand the thought of dealing with this for another 40+ years!

Post Edited (Severous1) : 12/7/2020 6:00:23 AM (GMT-7)

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straydog
Forum Moderator
Joined : Feb 2003
Posts : 18241
Posted 12/7/2020 7:18 AM (GMT -7)
Hi & welcome to the forum. I am at a loss too as to what could be going on with your ankle, it sounds like the obvious things drs look for has been checked out. Perhaps consider getting a 2nd opinion with another podiatrist. Have you tried any OTC analgesic rubs? I think I would switch to Tylenol for awhile at bedtime. One thing you said that caught my attention was it felt like a spasm on the exterior side of your ankle, this sounds similar to what happened with me. It only happened at bedtime & sometimes it would wake me up. I finally realized my water intake was my issue. I now drink water only, gave up my iced tea. As long as I drink plenty of water I do not have this happen any longer. This may not help you, but it worked for me.

Take care.
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Severous1
New Member
Joined : Dec 2020
Posts : 2
Posted 12/7/2020 7:24 AM (GMT -7)
Hi Susie,

Thank you for the quick reply!

I have tried 3 different rubs with no relief. I did actually switch to Tylenol for a bit but didn't really notice any relief like the Advil provided. As far as water intake, I actually did exponentially increase it recently for a "health challenge" through our workplace over the course of a month and didn't notice any difference. The biggest thing that stands out to me is that the spasms are few and far between now and have been replaced by a throbbing achy pain that gets worse into the evening and doesn't go away until morning. When I originally saw the doctors years ago they couldn't find any tenderness and the only way I could "trigger" the pain was by rolling my ankle in certain directions. Now, at any time of the day I can basically "poke" my cuboid bone area and it feels the same way it does if you poke a big bruise.

-Shane
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GreenBeans
Regular Member
Joined : Dec 2016
Posts : 94
Posted 12/7/2020 7:25 AM (GMT -7)
I have something similar with a place interior to my knee. Mine is most painful if I try to put weight on it in the morning, I have found that warming it with a heating pad first almost totally alleviates the pain. Then in the evening I ice it 20 minutes on, 20 minutes off, then 20 minutes on again - seems to help calm it before bed. I am also thinking there may be a dehydration component, so am focusing on drinking more this week to see what happens. Best wishes.
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Mercy&Grace
Veteran Member
Joined : Jun 2013
Posts : 1869
Posted 12/7/2020 11:04 AM (GMT -7)
Have you tried Aleve (Naproxen)? It is suppose to last longer. NSAIDS can cause gastric bleeding. I took them twice a day for years. Several months ago I ended up in the emergency room and had to have a blood transfusion. My hemoglobin was 6.3. I had not felt well for several months. But due to the pandemic, I was not comfortable going to my doctors office or urgent care. They did a endoscope and determined the bleeding was caused by taking NSAIDS for years. They also discovered other damage. Thank The Lord I am responding well to the medications my gastro intestinal specialists prescribed. I am scheduled for another endoscope in Feb.

Maybe the pain is caused from issues not directly connected to your foot. Maybe your hip, back or knee are out of line. Sometimes unknown problems in other areas can cause issues in our feet and ankles. Did you buy a new pain of shoes or start wearing shoes you rarely wore shortly before the pain started? Did you change your routine? Maybe sitting in a new chair at work or home or sitting up in bed more. Did you start a, new activity like riding a bike? Or maybe change the position of your seat when driving or a passenger? Sometimes we can put pressure on nerves or muscles when we make changes to how our bodies are positioned without realizing it
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pitmom
Veteran Member
Joined : Jan 2015
Posts : 2755
Posted 12/13/2020 5:24 PM (GMT -7)
Sounds like Cuboid Syndrome.
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