Posted 1/5/2021 8:21 AM (GMT -7)
Hi Stephanie & welcome to the forum. Yes, the drs always start out a patient at a low dose originally & slowly titrate the dose in the pump. What's important is you need to know the dosage amount of the Dilaudid that you have in the pump. You should have a printout from the drs office when the pump was filled, it will state whether it's 5mg or whatever. Every time your pump is adjusted or filled request a printout before leaving the office. The percentages you listed just show the amount of the increase, you need to know the dosage of the Dilaudid.
Typically with new patients the drs will increase the pumps anywhere from 10% to 20%, it depends on the dr. I have to wonder since your dr is being so conservative is it because of the spinal leak? Dilaudid never gave me a headache.
about the PTM, you should have one! If whoever was with you at the hospital was not given the box from Medtronics with your PTM & booklet, then it's sitting on a shelf at your drs office. Do not let the dr tell you he doesn't have it if it is not at your home. A call to Medtronics will confirm you were given a PTM, this is a call you can make. PTM's are now a part of the package.
When do you see your dr again? If you don't have an appt scheduled you need to call & make an appt. Tell them how bad your pain levels are that you need another increase. With my first pump my dr was very conservative because I have lung issues. I finally told him at 6 months let's take it out because my pain is no better today than it was before the pump was put in. He started doing 20% increases until we got me at a decent level, everyone is different. Also, let them know you need to discuss with the dr programming your PTM. Be firm with the dr about using the PTM & having him program it. Now is the time for the dr to program it & to gauge how often you are using it in 24 hours. The PTM will release a tiny amount of medication at a time. The purpose of it is to replace oral medications. Do not let this dr fob you around about the PTM. I do not know the cost of a PTM now, back many years ago they were a little over $1,000.00. Insurance only pays for one too, so it's not something you want to lose.
Six weeks out, yes, you are still new to the pump, but it's time for the dr to give you your PTM & program it. Do you have the booklet that came with your pump? I tried getting on Medtronics website this morning without any luck. However, go to TameThePain.com & you can access the site & get phone numbers. They will not give you medical advice but they will tell you about your PTM.
Keep us posted.