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Texas4Life

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Texas4Life
Regular Member
Joined : Mar 2022
Posts : 69
Posted 8/11/2022 3:19 PM (GMT -8)
I thought about you the last couple of days. Too ashamed to respond.

Post Edited (Texas4Life) : 8/11/2022 5:22:46 PM (GMT-7)

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straydog
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Posts : 19339
Posted 8/13/2022 8:53 AM (GMT -8)
Well, it is what it is. I just hope that you have found a place to start your physical therapy, it's very important.
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1 day at a time
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Joined : Nov 2012
Posts : 319
Posted 8/13/2022 8:49 PM (GMT -8)
Yes physical therapy is the best way to get moving again. Hope you're doing ok.
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straydog
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Posted 8/20/2022 10:45 AM (GMT -8)
Nothing to be ashamed about, it's just sometimes we are our own worst enemy. You are not the first, nor will you be last.

Take care.
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Texas4Life
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Joined : Mar 2022
Posts : 69
Posted 10/4/2022 7:02 AM (GMT -8)
Hi Straydog,

A lot has happened since I last posted. First, I had a very difficult time finding P/T. I tried for weeks to find someplace, but no one would take me. IDK, like they were afraid to work on someone who'd had spinal cord therapy. After a couple of stop-n-starts and going back to my pain mgmt. doctor, he finally alerted me to a Novacare 20 paces from his office, I never knew was there.

I've officially completed my first full month of P/T. It's slow going as you can imagine. But I'm going religiously and haven't missed a session.

Second, the weight is coming back and I'm not happy about that and I don't see my P/T, who is a female-hawk letting me lift weights or do any cardio in the foreseeable future and I'm afraid I'm going to end up with other diseases that I didn't have because my body is taking on weight. IDK what I'm going to do about this. We've changed exercises so far 3x and in all honesty, I haven't broached the subject with her. I will on Friday to see what she says. I do P/T 2x a week and my insurance covers 35 sessions.

Next, and I think this reason and the next brought me back to posting. My pain mgmt doctor took me off Hydromorphone because the side effects were tough. I'd only taken a few of the 30-day supply and then his office called me and requested that when I come in for my next visit, to bring the bottle back with all of those pills in it. I thought that was odd.... especially, since I paid for the medication. Is it me or is it normal to take unused medicine back to a pain mgmt doctor after he's prescribed it and you've bought it? I'd just assume flush them down the toilet. I'm still on the Gabapentin and Robaxin 3x a day and I am supposed to be on the oxycodone 4x day, but I'm running low on it so I'm taking it when the pain gets out of hand, while I'm trying to not get addicted to it.

Not eating or sleeping much from the job. The good news is that I can sleep on my left side and stay asleep when I actually do sleep. I came back too soon because of my boss. I alluded to it in earlier posts. He knows I've had the surgery but ignores it because the work must get done. Stress is bad and I know it's not good for recovery. That's the long and short of it. I'm in a fair amount of pain every day. I'm now using my VersaDesk which is a lifesaver for long workdays. I never really took off Susie. Not in reality. I'm guessing you realized that too.

My swallowing has gotten better. Not great. I still have minor, sometimes scary bouts of swallowing but it's still to be expected for up to 1 year after surgery. But every once in awhile, the Robaxin will get stuck in my throat or a piece of food gets stuck. I've learned to have lots of fluid around for each and every time I eat. That helps.

On a brighter note, most of the remodeling work I had contractors working on, is done. I still have more work to do in the living room, but I'm generally pleased by the work that has been done all about the house.

Post Edited (Texas4Life) : 10/4/2022 12:36:52 PM (GMT-7)

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straydog
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Posts : 19339
Posted 10/5/2022 7:40 AM (GMT -8)
Good to hear from you. Glad to read that you are in physical therapy, hang in there with it, it can feel like a slog after awhile. You may or may not need all 35 visits, depends on how well you do.

Yes, I have heard of pain mgt drs requiring a patient to bring in their pills if they switch them to something different. I suspect he looked at the date of the script & saw it was fairly new. As long as you take your pain meds as prescribed you will be fine.

Sorry to hear about your work, but you are right, I'm not surprised. Since you are working from home, can you take breaks? I am sure the desk does help, so glad that you found one. Are you by chance one of these that will work weekends?

I think it's awesome that your home is almost finished. Take some time to enjoy it.

Overall, it sounds like you are doing good in spite of everything! Keep us posted.
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Texas4Life
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Joined : Mar 2022
Posts : 69
Posted 10/5/2022 7:50 AM (GMT -8)
I cut back on working weekends.

So it's been slightly more than 4 months. What can I generally expect from 5-6 months. The P/T is, in fact, rough especially when she does the adjustments.
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straydog
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Posts : 19339
Posted 10/5/2022 7:58 PM (GMT -8)
Cutting back on the work load is a good thing! Question, what do you do for yourself that is relaxing?

In some ways you are ahead of the game, each person heals differently. You were driving a car, out shopping & working from home very soon after surgery. How you will feel in 5-6 months depends entirely on you. Completing Pt should help you a lot. PT 2x7, feeling a little rough is normal & should get better as you progress. Just remember, if something in particular gives you a problem, bring it to the therapist's attention.

I wasn't exaggerating when I said it takes a year, some times longer to completely recover from this type of surgery.
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Texas4Life
Regular Member
Joined : Mar 2022
Posts : 69
Posted 10/5/2022 9:13 PM (GMT -8)
This is going to sound cheesy: I love listening to different types of music: I have an Sirius XM radio in my truck and I also have a portable one too. I love listening to jazz, Watercolors (jazz); I love that Spa station (don't laugh, it's very relaxing).

I saw my parents today for the first time in years. They came up from Texas because we were having a wake (tonight); funeral tomorrow. I told them I had surgery...and why. They were quiet. My dad was previously married to the love of his life and a female drunk rammed our car and killed my mother. I was 3; brother was 5, older sister was 7; youngest sister: 14 months. She went through the windshield; mom was killed. That accident was the cause of the ACDF surgery. My mom went through the windshield with my 14 month old baby sister. All of us survived, except my mom. That was 1971. Now you can how long I've been living with pain. The MRIs starting telling the story of my life...and in May, 2022. It came to a head that required surgery. I didn't tell them that I had major. My dad stared at me. I told him I didn't want him to worry about me. More radio silence. I learned more about what I was doing when the accident happened: me and my other brother were asleep in the backseat and I think that although that was a terrible event, if I was awake I might've stiffened up my muscles, freaked out and the damage and trauma would've been. As it happened, I was able to have a somewhat regular childhood. Played sports. Love fishing. But as I got to college, all hell started to break lose and the pain started coming. Then in my 29s, I was in the military. They still took you then, especially if you had a great SAT and ASVAB score. Then in my 30s the pain kept getting worse. Grinned and beared it. Forties, more pain. Severe pain. Slow onset of numbing. Until my 50s, when I started really understanding my MRIs and started seeing specialist, neurosurgeons and the rest is history. But tonight, at my uncle's wake, I told my dad that that was the beginning of lifelong struggle with pain.

We both hugged each other and we both told each that we loved each. And it felt genuine.

He used to take me fishing as a little boy. Pick me up and put me in the front see of white pickup truck and we'd ride through small town USA, with the radio going. That's me. That's who I am. And that is very relaxing for me to take those trips back down memory lane.

But as you probably guessed, I'm considered the one that if I don't show up Thanksgiving, no one else. My cousin Tia, was coaxing me to go over to my aunt's house (she lost her husband). I said are you going to go. She said, No...not if you don't go. And so I'm getting back in touch with all of my siblings in family members and it actually feels good. If I had to do it all over again, and we were on better terms...I would told my sister, who is 14 months behind (she's the one who went through the windshield.....and lived). We're very close. I think everytime there's a funeral, it makes people look at their lives and appreciate who's really truly around you.

Stray, I completely forgot my job listening to my dad talk about a plumbing incident that happened at our family's business or the fact that he can't take down trees encroaching on his property. Stray, I want to him a secret and take those big trees down as father and son. I'm his youngest son and we've always been very close and I've been very protective of him. I saw him tonight. He's 80 now. Please tell me that soon, I can help by climbing trees, cutting branches, wedging and roping trees because they want to charge him over $10,000 to take them down and I screamed that ****in' bullcrap. I want to do it for him. It's important to rekindle that relationship with him and have that quality time to some of those things around the house that he can't do because it doesn't make sense or for his age.

I feel like I'm waiting for the all clear sign from the P/T and I just want to show up, unannounced ready to help with chain saw and ropes, or hit the boat and go deep sea fishing again. I feel like I don't want to waste anymore time with him. Wash his truck. Steal by brother's ATV. Shovel ice and snow down our long driveway.

That's what I do for fun as a country boy.

Coming back to life (reality), I had P/T last Friday and I was flat on my back all weekend with gel ice packs all weekend. It's been one month now of P/T and I still need ice.

Before the surgery, my girlfriend and I like to hike on the weekends; travel to tropical destinations. I'd love to go roller-skating again. We both like to be very fit as you know: She kicks me out and her and her gf who introduced us, do weekend Tai-Bo kickboxing training all Saturday long. I got into serious weightlifting and light cardio training and finally, get together with a few close friends on a secret dinner night out. Here's how it works: I tell my buddy, who food I want to eat; he and his wife find the restaurant. I'm not allowed to know what the restaurant is or where the restaurant is. We show up at their house. Leave my car. Jump in their car...and arrive at a restaurant. The men take turns picking the wines and we order off of the menu. Then "I" get to grade the restaurant! We've been doing this for more than 20 yrs. and now all the restaurants in the DC/MD/VA area know who we are because we are motley crew coming through their doors. I'm white; My gf is also white. He's Black his wife is Asian and is the "keeper of the book". It has gotten to the point where we go into a restaurant and read my rating. Weird, they never like to see how we rated them.... it's always how we rate someone else. And as soon as they see this interesting demographic group come though, we get going with a good time.

Did that answer your question? Now can you see why I didn't want to do the surgery? I'd miss out on all of that. But yet, I just told my parents I'm glad I did it. 100%

Post Edited (Texas4Life) : 10/5/2022 10:27:59 PM (GMT-7)

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straydog
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Joined : Feb 2003
Posts : 19339
Posted 10/7/2022 5:32 PM (GMT -8)
Nothing cheesy about listening to any type of music. My husband has the Sirius in his truck, on his trike motorcycle & in the garage. I love listening to a variety of different music.

So sorry to read about your uncle, same with the loss of your mother for you & your siblings. I agree about you & your brother being asleep when the impact happened. I was hit in the rear end & saw it coming. All I could do was tense up, natural reaction, there was traffic on both sides so I had no place to go.

Considering your dad's age, spend as much time with him as you can. Does your family live in Texas? You need to take things one step at a time with your recovery. It will not be up to the physical therapist to give you the go ahead on anything, this is up to your surgeon. I would run the tree cutting by the surgeon for his take. My husband did this after his back surgery & it did not end well. He ended up finding someone that removed several trees at a decent price. It is very expensive getting trees cut down, but if a person checks around they can find someone more reasonable.

Keep doing the best you can.
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Mercy&Grace
Veteran Member
Joined : Jun 2013
Posts : 1918
Posted 10/22/2022 7:46 PM (GMT -8)
I understand you wanting to do the tree work for your dad. How would he feel if you did it and it worsened your condition ? Stray dog is right about talking with your surgeon before you do anything. It is important to remember that sometimes the best thing we can do is not do something. Know what I mean? Maybe you could go down there and find someone that would do the work cheaper. You might be able to try and find to do it cheaper from where you are. You could find businesses that do that work in the area and email and/or talk with them in the phone.

You might want to look into asking on NextDoor. I live in Louisiana. Neighbors often ask for recommendations. Real names are used on NextDoor. It reduces people that are scamming but you still need to be careful. If you want to look into businesses. You do need to check them out at the BBB there online
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Texas4Life
Regular Member
Joined : Mar 2022
Posts : 69
Posted 10/25/2022 12:53 PM (GMT -8)
Hi all,
Some updates: I'm now five months post-op. Amazing how time flies! I went through a period where the swallowing issues, "went away". But the last couple of weeks, they've seemed to have come back. I just keep reminding myself that the surgeon (and Straydog) said that's a 6 month-1 year proposition. So....I just thought I'd gotten beyond that. Taking pills/meds has now become a bit of scare...again.

Speaking of meds...I have not been taking them as regularly as I should. I'm not sure they are even helping anymore. I don't know. Work has consumed me as if I never had the surgery.

My weight has remained steady/slightly increased, as my eating has fluctuated and varied; it's not regular --. Part of it is work; part fear, part the drama of work has left me nauseous to the point that I don't want to eat. It's an ongoing struggle.

With respect to my dad and the tree work....I wanted to do it with him as me and my siblings did when we were younger. The cost of having a 3rd party remove the necessary trees, is over $15K. So I thought it would be great to have that time with him. Though, I know that my body probably isn't quite ready to do that yet.

That said, Straydog....you're about to be mad but my P/T told me I could start doing cardio again. Yesterday was the first day back. I only did 32 minutes and didn't really notice that it went that fast! No residual pain or anything like that. I don't intend to go crazy with this right off the bat and he hasn't cleared me to do weight training....yet.

With respect to the P/T, there are times when I can't tell if it's helping or hurting me. I go twice a week: Mondays and Fridays. Up til now, I'd end up spending all weekend with icepacks or heating packs on my spinal cord all weekend. Last weekend, nothing. I didn't need any ice or heating packs and no meds.

So, my surgeon told me a month ago, that he was going to leave it up to my P/T to decide when I could resume physical fitness. Part of the reason I want to keep my weight low is because the holidays are coming and I don't want to put on weight that I can't take off. I managed to take so much off before the surgery that I'm still benefiting from having plenty of space in the waist of my jeans still.....and I want to keep it that way.

My mother's side still live in Texas (what's left of them) and I had cousin based at Lackland who's now out of the military too. He's from my father's side of the family.

I have good days and bad days; stiff days and some not-so-stiff days. I still can't believe I'm five months out of surgery.

Does your husband ever feel like he would get his life back this many years after the surgery? Does he do physical fitness?
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straydog
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Posted 10/27/2022 7:19 AM (GMT -8)
Yes, hard to believe it's been 5 months already, time flies. I think you are doing well overall. If you can tolerate the pain fine, however, the muscle relaxer will help a great deal. You will hit some speed bumps here & there along the way, just don't panic thinking the worst.

I wouldn't be too quick to discount therapy not helping much. Nothing wrong with doing cardio again as long as you pace yourself. I suspect this will help you in more ways than one.

As for my husband, we were at the neurosurgeon's office Monday & he is being scheduled for injections. He is older & not doing well at the moment. His myelogram a few months ago shows he's got some issues, however, between his pre-existing conditions he's not a good surgical candidate. His activity level was really good after surgery, but he made some very bad choices with his outdoor activities & as a result he is not in a good place now.

Keep up the good work.
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Texas4Life
Regular Member
Joined : Mar 2022
Posts : 69
Posted 10/27/2022 4:43 PM (GMT -8)
I am so very sorry to hear that about your old man, Straydog. What's his prognosis?

I never really told you (all of you guys), how much this forum has helped me. I remember months before the surgery coming in and silently reading all of the (horror) stories, anecdotes and "things to do" before the surgery.

It's funny.... Now in retrospect, most of it didn't apply to me though it was incredibly useful for anyone who is going to have the surgery to know what to be thinking about. It just really goes to show how very different each surgery and every patient is. I ended up giving away all of the baby food, apple sauce, Swanson's chicken broth, etc. to my neighbors LOL! I know I'm not completely out of the woods yet, but I just had a chance to reflect on the last five months of recovery and the worst part has been: my job!

You're right about the bumps in the road: I really thought I was past the whole swallowing thing. Remember before the surgery I was really freaked out about that? lol Then over the last couple of weeks, I've noticed that I'm having a little bit of a problem taking more than one pill. I was taking the Gabapentin, oxycodone and the Robaxin -- just fine for months. Then, one of them started getting stuck where the surgeon made the incision. I used to panic. (Remember the guy having to do the Heimlich maneuver on me this past Summer?) Now, I have TONS of water beside me and when it gets stuck, I stop the swallowing process and drink until the water pushes it down and dislodges it. It's a process and I hope to God that after 6-12 months, I don't have to worry anymore about it. But it's a "learned process" for me. I had to figure out how to swallow again and I think one of the posters on this forum mentioned something to that effect a long time ago. I think I recall reading something like that, but you don't know what he's talking about until after you've gone through the surgery. Now, I get it.

On a bit of a low note, because of my job I'm back to working 12, 14 and even 16-hour days: yes, I can see you now Straydog. They won't stop. HE won't stop. My boss. He just pretends the surgery never happened. Anyway, because of the hours, I accidentally forgot to take my meds on Tuesday and when I woke up on Wednesday, my left arm was radiating, and I admit I was mad because I thought that this wasn't going to happen again. A setback? Expected? Does the Gabapentin build-up in your system because I immediately took it and hours later, it stopped radiating. I absolutely will let the surgeon know next month when I see him, but really...what happened Straydog? One day and I get whacked with numbness and radiating sensations down my arm? Is there really a big difference between 5 months out and 6 months out? 9 months out? 12 months out? Was it the P/T that was "waking up the nerves" and causing this "setback"?
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straydog
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Posted 12/4/2022 4:05 PM (GMT -8)
Any updates, checking on you, I hope you are doing well.
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Texas4Life
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Joined : Mar 2022
Posts : 69
Posted 1/12/2023 7:57 AM (GMT -8)
Hi Straydog,
Eight months, post op.

Yeah, still having problems after completing 3 months of P/T. Surgeon ordered new MRIs to see if areas he didn't do surgery on (i.e. C1-C2 and/or C6-C7) are problematic. It's at the base of my neck, right side, shooting down to the scapula area and radiates out to right arm.

I really want to re-start facet blocker/trigger point therapy badly because it may end up being just muscle related. Fingers crossed. But the base of my neck...that's a different issue. Still have that tweaking sensation on the right side when I bend my neck.

Have, basically 100% use of my fingers and toes again. Numbing is gone and can open doors and jars. No problems there.

Swallowing is still an issue. Went to see a speech therapist yesterday. She examined and tested me for about :30 minutes and made temporary diet changes and ordered a barium test to see what happens in pharynx and throat area when I swallow. I almost choked on Thanksgiving when I was coming home from seeing family and needed to take some Tylenol. I was driving and was about 200-300 yards from home. I took 2 Tylenol. The first went down, no problem. The second, got stuck....like that blueberry did this past Summer. I couldn't get it out and I started choking and couldn't get it out. After choking for a bit, I hacked it out at the last second into the water bottle and immediately contacted the surgeon and told him that I had had enough of this and he gave me the referral to the speech therapist.

I've dropped in weight as a result of being terrified of eating food and choking. I went from 190 lbs. down to 175 lbs. in a matter of weeks. Dropped a couple of pants sizes too...but not in a good way and not for the right reasons.

So, that's kind of where I'm at. I'm sorry it took so long to get back to you. Again, my boss is acting like I never had surgery. I did fire my Deputy PM and got someone in who wants to work and take a lot of the burden off of me because I've been working equally as hard now as I was before the surgery. So he wasn't any help and was causing more problems than he was worth. My new PM, I've had to train her to bring her up to speed and that's been time-consuming but she is not only willing to learn and work but she is slowly taking the weight off of me. But it will take some time. I am in a lot of pain Straydog and these work issues are not helping. I just had to take another Oxycodone 15 mg. and I'd been priding myself on trying to wean myself off of all of my meds. But I'm back on all of them at full schedule -- 3 and 4x a day with the Oxy, Gabapentin and Robaxin. And I'd been kinda doing good.

I hope those disks didn't collapse onto C6-C7 but I have bad feeling about this and I want to be wrong, but I have some serious pain at the base of my neck there. But when looking at the pre-surgery MRI, there was plenty of room and fluid that I could see on the MRI between those two disks. I just wonder if, given how I feel, they collapsed. I hope I'm wrong and it's all just muscular-related but I don't like what I feel right now.

I will more updates after 30 Jan. So I'll keep you posted. What do you know about people who've had the ACDF on 3 disks and then they still have problems and then have to go back because of a possible collapse from the non-surgical disks? I'm curious what you know.
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straydog
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Posted 1/13/2023 10:28 AM (GMT -8)
Glad to see you check in, sorry to read you are still having some issues. The few members here in the past that had more surgery were ones that some issues show up on their MRI, it just wasn't bad enough to warrant surgery at that level. This is why surgeons will tell the patient, some time down the road you may require further surgery.

Until you have the MRI & get the results back, there is just no way what of knowing what is going on with your neck. Like you, I hope this is a muscular issue & something trigger points can help. Without a doubt, stress can be a huge trigger for muscle pain & spasms.

Just a thought, so I will ask you this. When you are eating or trying to take a pill do you ever feel like your throat is a little dry? Perhaps taking a drink of water before taking a pill may help.

Nice to see that you have a new helper, hopefully this will take some work off of you. Keep us posted.
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Texas4Life
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Joined : Mar 2022
Posts : 69
Posted 1/13/2023 1:01 PM (GMT -8)
I've got the new MRI. I'm waiting to go over it with the surgeon on 30 Jan.
He did bless me to go back to my pain mgmt. doctor to restart facet blocker and trigger point therapy after months of wasted time doing P/T. It just didn't work for me.

No, I always drink TONS of water all day; everyday and I take it on the road, into doctor's office...I am a perennial "water carrier". It's always in one of my hands or in my laptop bag. When I choke, it's while I drinking fluids too.
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1 day at a time
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Joined : Nov 2012
Posts : 319
Posted 1/14/2023 1:33 PM (GMT -8)
Are you working at a desk? Sitting and looking at a monitor can mess up your neck if for extended periods of time. A standing desk can help as long as you ensure you are in a neutral position and move around every so often. When I was sent home from my office in the beginning of covid I had horrible neck pain from makeshift work stations at home. Ended up doing a makeshift sit/stand desk. It was ugly but it helped.
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Texas4Life
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Joined : Mar 2022
Posts : 69
Posted 1/17/2023 8:02 AM (GMT -8)
Remember, I bought a VersaDesk prior to surgery and use that every so often, but can't use it for the 12-14 hours a day that I'm in front of computer.
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straydog
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Posts : 19339
Posted 2/3/2023 7:27 AM (GMT -8)
Did you get the results of the MRI? I thought I would check on you.
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Texas4Life
Regular Member
Joined : Mar 2022
Posts : 69
Posted 2/3/2023 7:59 AM (GMT -8)
Yeah, I did. I have narrowing (again) at C3:C4. The narrowing still shows fluid going through it, but I told the surgeon, who I saw on Monday, I still have radiating issues down my right arm. He said it wasn't necessarily cause for concern/another surgery. However, I pressed him hard and told him that I still have that sharp impingement feeling on the right side. So, he ordered an EMG and a follow-up with him afterwards. I have the EMG scheduled for next Friday @ 0830 hrs.

....and we go from there.
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straydog
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Joined : Feb 2003
Posts : 19339
Posted 2/5/2023 7:09 AM (GMT -8)
I was hoping for better news from you. More waiting for testing & getting results back, jeez.
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