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Chronic Pain

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Chronic Pain
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Dinosaur Girl
New Member
Joined : Jan 2023
Posts : 3
Posted 1/23/2023 6:14 PM (GMT -8)
I filed disability 5 years ago at the age of 45. It took me 5 yrs to finally be approved. I'm fused L3/4,L5/s1. 3 back surgeries and 2 neck. Neck is C1-7. I've been on 2 opiods a day for 15 years. Ibs-D, I've had sooo many steroid shots it's ridiculous. 2 years ago I was diagnosed w/ankylosing spondylitis, I hv the Hbla-27 gene, and take humira weekly. I've had surgery w/both my feet. Heel fractures, bone spurs the size if golf balls,torn tendons, and plantar fasciitis. I hv pain so bad on my left side and my leg goes numb. I think my leg keeps popping out of socket. It feels like someone is pulling and stabbing me at the same time. I've had back mris and neck mris as of this yr. It's definitely changed since last year but the neurosurgeon says i'm stable, my pain Dr says i'm stable. Next is a spinal stimulator. I keep having many days my pain level is a 9. The pain dr calls it break through pain and go to the hospital. I got a sports medicine massage and she did cupping, And popped my leg back in place. I immediately felt better. It's been 4 days and I'm back to hurting again. And my bi monthly humira went to weekly because it was wearing off too quickly,3 days before im due for the next shot i can feel its wearing off. Sulfasalizine in addition to it made tge tops of my feet and hands kill me, i could only take for 2 days. I saw a orthopedic 2 years ago and I'm trying to get in again. Any stretching, swimming, & yoga makes it worse. Anybody in a similar experience and hv suggestions?
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straydog
Forum Moderator
Joined : Feb 2003
Posts : 19339
Posted 1/24/2023 11:18 AM (GMT -8)
Hi Dinosaur Girl, you've been through the wringer with multiple surgeries & a variety of treatment in an effort to get your pain levels down. What your drs are saying about you being stable is from a mechanical standpoint. Either your pain stayed the same after surgery or got worse. Unfortunately, sometimes people end up with no relief after having surgery.

You mentioned the dr talking about a stimulator. Do your homework on this. Ask the dr if a stimulator will help with both the pain in your neck & back? Unless things has changed, stimulators only worked on one source, IF they worked at all. It's been a few years since stimulators were discussed here, back then, very few got any relief. They went through the trial, got some relief, however, once implanted the units did nothing. There is also a real potential problems with PM drs cutting off any oral pain meds once the units are implanted whether they work or not. Patients got told, you have the unit you should not be hurting. Another thing, the PM drs do not know the knowledge of these units. If you need any adjustments or help the tech from the company has to meet you at the drs office. I'm not trying to scare you, you need to everything involved with the units & be fully informed.

Other than the 2 pain pills per day, are you on any other medications? Have you ever tried a jacuzzi? We are on our 2nd one, it helps both of us. It's not a cure but the heat feels good & it helps loosen up knotted muscles. What about OTC analgesics, even though relief is temporary. My husband swears by horse absorbine that he gets at a feed store, lol.

I'm sorry that you are having such a hard time, pain just sucks.
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Dinosaur Girl
New Member
Joined : Jan 2023
Posts : 3
Posted 1/24/2023 1:15 PM (GMT -8)
Thank you for the suggestions. I've researched stimulators but I just don't think it's right for me. I'm on 23 pills a day btw. The drs say I'm stable because it is too much trouble to go in. Rhizotomy works good but doesn't last 6 mos and I can only get it then. I always thought something w/my sciatica or my hip going outta socket. Running Luke a hamster on a wheel. Need to excercise more but it hurts to even walk far. I'm at a crossroads to figure it out. I'll try acupuncture next. We do hv a hot tub a jetted tub but I can't get the black stuff to stop coming outta the lines. It disgusts me. I've tried everything. I just take a bath w/o the jets.
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