Posted 8/2/2007 11:37 AM (GMT -6)
Tracey, I'm so glad that it's not a train! It's nice to hear that you've got all these great Docs working to get you feeling better. We'll all be sending good thoughts and hoping that everything goes smoothly for you. It'sbeena long road and you deserve the relief.

Be well.
Keah a.k.a. Wormy
 God helps those who help themselves.
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Posted 8/2/2007 7:05 PM (GMT -6)
Thanks, Guys,
I am very grateful that I have these Dr.'s. peole come from all over Canada too see these guys, and the best thing about it is they are NICE!! so easy too talk too,answere's all my qoestions plus my husbands, nurse's,secretary's, all nice, they all treat you with dignity, I have been to so many!! Dr.'s that just treated me like dirt, so this is just wondeful, Thank-you for all your support and good thoughts' I will keep you updated, on Sept.6th I find out if I can have this surgery, he will have all the test results then, I am so happy and relieved, that finally I have a Dr. who can help me, for all of you that are having trouble with your Dr.'s I would advise you to switch, there are so many Dr.'s that really do care, it just takes some weeding out, and some heartache, but it can happen, and I trully hope all of you find some peace and some hope in your life, it's a undescriable feeling,
Take Care All
DX; Loin Pain Hematuria Syndrome, A Very Rare Painful Kidney Disease,No Cure for this disease at this time, only thing is to Control Pain,
RX, Fentanyl Patch,Oxycodone, Amitriplyne,Ace Inhibitors 

Posted 4/7/2008 6:04 PM (GMT -6)
Hi,I am brand new to this site and am soo happy to have found you all. I have been suffering (since 99) from repeated kidney stones (had one in 99 the size of a "golf ball" that passed down thru my ureter...(you get the picture) Since that time, I've had too many to count "procedure" for stones,strictures,you name the way, it's my LEFT kidney only that I have pain (where I have all the problems) It's like a constant, dull ache, with sometimes "spasms"(like when you pass a kidney stone (they call it: Renal colic)...I also always have hematuria and almost always can count on an infection becoming a kidney infection at least 1xmonth! I am currently on Norco 10/325 can take up to 6 prn. I take no other meds. At my last visit with pain dr (have been going to PM dr's office for over a year now) the owner of the practice would give me this rx w/3 refills, now I'm seeing his partner..(they're trying to build up his clientele) and he had me sign a "contract"yada, yada...(I worked PM for over 5 years as the DR's assistant, so I know the routine) although I was ALWAYS respectful and understanding and helped as much as I could for our patients (I loved this job, but left when had to move out of state to take care of my parents (who are now deceased) To make a long story short (will get into it later) I am now at work (at an OBGYN"S office and it's almost time to leave! 5pm! I just want to talk to people who are in pain too...and oh yeah, my dr said he wants to "convert the same amount of medication into "long-acting" same dose...just distributed differently" Now, I've been taking this amount for over 7 years with NO increase, NO request for increase, and it helps my pain just fine (he knows this)...My question is WHy would you want to change if it's still working? I know better not to "question his decisions...dr's don't like that" but....(my MRI (first one ever) was done 2 weeks ago and showed a 2.0 cyst inside the medullary region of left kidney...of course my urologist is "not concerned"...Does anyone think this is LPHS? He never mentions this possibilty...I'll type more tomorroow...gotta go eyes

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