Oh Dash!! I"m so sorry for the pain you have. I've never heard of this disorder but am here to hold your hand thru it all. Does your doctor prescribe pain meds for you? I hope he/she's easy to work with.
Co-Mod Fibromyalgia & Chronic Pain Forums
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)