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New Member

Date Joined Jul 2007
Total Posts : 11
   Posted 8/30/2007 12:19 PM (GMT -7)   
If anyone has any information on having the pain pump and what
levels of medication you are at, how long it took you to get there,
how activity has or has not improved i would appreciate any information.

I am at 6.5 currently, still going through the adjustment phase, new
to having this installed, but glad I did it already.

New to this forum and love it, just have not been able to sit for long
periods to learn the ropes of being in here.
Please respond to:

Thanks d58 yeah tongue confused
Have a well day!

Veteran Member

Date Joined Mar 2005
Total Posts : 4305
   Posted 8/30/2007 7:10 PM (GMT -7)   
Welcome to the forum,

We are glade that you found us and please know you are welcome any time and we will do our best to answer any question you may have.I can not help with with the pain pump because I don't have one but there are a few on here that does and I'm sure they will be along soon that will be able to answer your question's.

Forum Moderator

Date Joined Feb 2003
Total Posts : 15153
   Posted 8/31/2007 11:33 PM (GMT -7)   
Hi D58,
I too wanted to welcome you to Healing Well. I have a Medtronic Pump implanted. My pump was implanted June of 05. It has been the best thing I have done by far for relieving pain and getting some sort of a life back together.
It took a year to get my meds straigthened out. They had morphine in it originally and did not do well on it at all. I just  flat could not tolerate it. I tried waiting it out and seeing if it would settle down but never did.
Then my dr did one of those combo things add its worked like charm. The main drug in mine is Dilaudid 15mg concentration level, Clonodine and Sufentanil and Bupivacaine. With this combo of meds I am gettingg 0.127 mg per hour and 3.038 mg per every 24 hrs. I just went last week and had it refilled. The nurse could only do a 10% increase if the dr is not on site. Had my dr been there I could have been given a full 20% increase. I will get the other 10% when I see him again next week. In addition, I have 2 mg of Dilaudid pain pills I can take for BT pain.
It took a year to get me where I am at now. It should not take you that long.The reason is took so long on me is I have many other health problems and we had to really take it slow & easy. These medication can affect your respiratory system and slow down your breathing really bad depending on how the individual reacts with respiratory problems. I am now on oxygen 24/7 not because of the meds though.
I think I am really close to a plateau because I am doing so well. Yes, I am limited, but the pump did not limit me, I was limited long before the pump was implanted. I just know I am so glad I had it implanted. I was struggling really hard with oral meds and we were running into problems finding something that worked and did not give me horrible side effects. My activity level has really increased considering I was in bed more than out of bed for a year. This year I planted flowers and made one small flower bed by myself. That was a milestone for me trust me. I push myself but not enough to get me in trouble. Thats the hardest part is making adjustments. But again, I was so limited before the  pump it has not limited me at all the way I see it.  Now, I feel like I have a life.
I really can't answer your questions about how long or the doseage. I don't know what medication you have in your pump, also your weight has something to do on just how much you cn be given of a drug. I just know I went in for a lot of increases due then they were only half shotting me there for a long time, but we made up for it. I would always ask my dr if I was getting close to the mark they stop increasing the pump and even now I have quite a ways to go before we would ever consider stopping the increases. I think if I got up pretty high in the numbers and the pain was not under good control he would look at changing the meds.
One thing you need to do is every time you go in for your increase have the nurse to give you a print-out and you need to know what meds are in your pump and how much. This info needs to be carried in your wallet at all times.  This would be needed if you had to be taken to a hospital. I also make sure my PCP has a copy for her file.
SOrry I got so long winded . Please let me hear from you on how you are doing. Susie

Regular Member

Date Joined Nov 2011
Total Posts : 96
   Posted 12/20/2014 4:58 AM (GMT -7)   
I am 10 days out from a pump install. Still dealing with some of the surgery effects, but so far I am a big fan. I have about zero pain most of the time. I can start feeling some later in the pain but a bolus takes care of that.

The amount of meds and type is very individual. All i can offer is that i was on a VERY low dose of methadone for 2 years, no increases. Because further surgery was off the table, and i had a clear mechanical problem, he suggested the pump. I thought about it for months, did my research, and went ahead. I did not have to wean off the methadone, and stopped it cold after the surgery. Still do not feel a thing from that, but it was a low dose.

Best thing I ever did, makes up for all the mistakes along the way!

Timewise, my accident was in 2009. Six shoulder surgeries, including three replacements in 2 years, now with a reverse replacement and about 15% left of original muscle to support the joint.

He zeroed the tip of the catheter in the exact perfect spot. Said it would work for neck pain too, but thankfully I do not have neck pain

Veteran Member

Date Joined Apr 2014
Total Posts : 945
   Posted 12/20/2014 8:52 AM (GMT -7)   
Talon, it's great to hear you are doing so well with your pain pump. That's good info that others might need sometime. How about starting another thread to let all know about your success with a title that would identify the topic? If you have already done that, excuse me please.

Zanghue, welcome to Healing Well. You have posted on a 2007 thread-the posted date is just above what is written. There is lots of good information in the older posts but the people are often no longer here. Please start your own thread and ask any questions there. We would like to know you better.

This older post will probably be locked when the moderators see it. Use it for reference but comment on current threads.

Post Edited (Abilene) : 12/20/2014 11:42:13 AM (GMT-7)

Forum Moderator

Date Joined Feb 2003
Total Posts : 15153
   Posted 12/21/2014 1:33 PM (GMT -7)   
I am not sure why or how this thread was brought up its dated 2007 & the original poster has not been here since 2007.

I will lock it so no one else will post on it.
Moderator Chronic Pain & Psoriasis Forums
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