Posted 9/24/2007 6:08 AM (GMT -7)
Thanks for your response Chutz. Humm, brought the subject up b/c thought it was something that people with chronic illness have to deal with, at least I do. The lack of response is interesting to me, either people are happy w/their intimate lives or this is a very sensitive subject. I guess it's not just about sex, but sexuality, whether you're in a relationship currently or not. Maybe I brought it up b/c for the first time in ten years my partner actually got mad at me one night b/c I got sick and they did not think I was taking enough care of myself--over exercising (believe me I do NOT exercise a lot, can't) and not taking enough pain meds (I cut back for multiple reasons)--it's funny if you think about it, to actually have a partner who wants you to work out less and take more narcotics, lol. I spent most of yesterday sick and I'm not able to sleep very well tonight b/c of intense stomach pain (and, yes, I took my pain meds) and there is a very concerned look in my partner's eyes, different somehow. It's a lot of work making chronic illness not who you are, but what you have; not letting it overtake your relationships with people, or becomming the main topic. I went out with two friends on Fri. night, saw Eastern Promises (good by the way, but very violent) and while they munched away on popcorn and what not, I can't. We went out after to get something to eat, they had coctails, I gave up alcohol years ago, b/c of UC/IBS, they ate appitizers and salad, etc and I had a small cup of soup which I ate very slowly and still ended up with bad stomach pain. I didn't want to turn the evening into my illness so I just dealt with it silently. O.k., I don't know what my point is anymore, just free flowing. Maybe someone can relate.
Dx Ulcerative Colitis 1999; IBS; CP: Asacol x3 x3/day, Rowasa, Proctofoam, Prilosec, Bentyl, Prozac, Endocet (as needed), multi vit, probiotic, fish oil caps x2/day, calcium 1200 mg./day, Prednisone (off/on, unfortunately).