Feeling Abandoned

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Regular Member

Date Joined Apr 2007
Total Posts : 47
   Posted 9/28/2007 2:40 PM (GMT -6)   
Hi everyone... I know this is going to sound very very silly...but I just got home from my neurologist and I'm still kind of in shock. This doctor has been treating me for my neck and severe headaches since 2001. She was the only doctor that appeared to have given a rats ass about the way I was feeling, the pain I was in and what she could do in order to make me comfortable. After long months of tests, x rays, mri's, eegs etc, she had done everything she could do as far as procedures to fix what was up with my neck and the headches and we worked on finding me the right medicine to take the pain away without me being some zombie. It took awhile because of reactions to medications, allergies and that whole ball of wax. What worked for the most part was stadol for pain. For those of you that are not familiar with it, it's a nasal spray form of meds and along the lines of morphine I guess would be the closest thing. This medicine was a blessing to me. The doc and I have had a close dr, patient relationship and I actually *trusted* her...which is a rare thing for me. (Dont like or trust doctors at all).  We have been through a lot together and she took care of my mother during the last years of her life. 
Today when I was there for my trigger point injections (in my neck) she told me that she is no longer going to perscribe narcotics. She went on to tell me about her close friend that just got her lisence suspended for writing narcotic scripts in her practice. I was stunned. I just sat there for a few min after she told me. She said that she didn't want to cut me off on such short notice, so she gave me enough perscriptions for two months worth of medicine. But that is it. I asked about the xanax I was taking.  It was  .5 mg at night when I cant sleep. She said no, it was a narcotic and she wouldn't right anymore scripts for that either. She went on to say that she worked so hard etc for her lisence. You know, I can understand her not wanting to get into any crap with the FDA and the medical assosiations..but she is a freaken neurologist! She deals with peoples pain etc. And she wont be perscribing narcotics anymore to her paitents?
As I said, I know it sounds silly and all. But she has been taking care of me for almost 8 years now. And for her to just cut off meds, knowing now that I have all these new problems with my back... I don't know. I feel abandoned by her. Now ontop of trying to find a doctor that can take care of my back, I have to find a new doctor for my neck and severe headaches. I am grateful she gave me enough medicine to get me through until dec..but I feel so lost.
I'm really depressed.

Forum Moderator

Date Joined Jan 2005
Total Posts : 9249
   Posted 9/28/2007 6:30 PM (GMT -6)   

I'm so sorry for you being caught in the middle of this. Sounds like she let her fear overtake her oath to take good care of her patients. Do no harm? Harm is cutting someone off of their meds because they're a coward. If she's not done anything wrong then she should have no problem. She could cut back and find you a new doc, but to just send you packing is a disgrace.

Unfortunately, you're gonna have to keep your anger to a minimum and get going on a search for a new one. Get copies of all of your record from this doc right away. If she balks you might remind her that you are entitled legally to them. Then hit the street. Ask friends, find a local support group and they will tell you who the good docs are, see if your local hospital or insurance company has a patient advocate...whatever it takes.

Keep us posted...
Co-Mod Fibromyalgia & Chronic Pain Forums
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)

Regular Member

Date Joined Apr 2007
Total Posts : 47
   Posted 9/29/2007 2:46 PM (GMT -6)   
Thank you Chutz. I appreciate your kind words. I've been so depressed these past few weeks, now to get hit with this crap from the one doctor I always thought I could trust and be on my side. I feel like such an idiot. I'm so sick of nothing going on the right track for me with these health issues. So I guess next week, I start hunting for a new doctor for my neck and head. sad Gonna give myself a week or so before I ask her for my records and stuff. I dont want to snap at her..and thats all I feel like doing right now..well, not snapping, actually telling her off is what I feel like doing.

Regular Member

Date Joined Apr 2007
Total Posts : 47
   Posted 9/29/2007 3:27 PM (GMT -6)   
Gramps said...
It's sad but more & more doctors are using this excuse to not treat patients. True, the DEA is prosecuting physicians who illegally prescribe narcotics but there is no war against doctors as many have led us to believe. However, more & more doctors are using this so called war to get rid of patients or to cut patients' meds. The sad thing is many patients believe it. I tell anyone who is denied treatment like this to file a complaint with their state's medical board. The doctor will not be able to use this excuse as a reason for refusal of treatment & will find themselves with more worries than if the DEA had come around. If a doctor is prescribing medications for legitimate medical conditions, there is no reason for the DEA to investigate them! Also, the denial of medical treatment can be grounds for a lawsuit in most states & the doictor would have to explain why they let you suffer rather than treat you & a fear of an investigation won't hold water in any court.

You know, the more I think about this, the more I want to do this. It's not like this is a doctor I just met and she just handed me some medicine. We have gone through every test known to man, she has done lots of work on me to get to the point where she found a medicine that does help with the head and neck pain. This is why all of this makes no sense to me...why she would just up and say this to me and basically saying, I'm done helping you. Everything was fine 6 weeks earlier when I was there for my trigger point injections. I just don't get it.

Thank you Gramps, I appreciate your help. :) Means alot to me.

New Member

Date Joined Sep 2007
Total Posts : 4
   Posted 9/29/2007 4:12 PM (GMT -6)   
I'm new here, but I am NOT new to the world of pain, neurologists, pain clinics, neck trauma-I've had two surgeries for a torn disc since 01-and I'll never be healed from that. Now, my lumbar area and both hips are all messed up! I'm taking (4) 10mg lortab and (4) 10mg methadone a day-just prescribed soma for the constant aching in my legs, and valium to help me sleep.
If my PM doc took me off my meds, I'd LOSE MY MIND-it IS the only thing that keeps me going!! I have a full time job, 2 teenagers, and soon, I'll be planning a wedding-my own. :)))

So let me tell you-what you are facing is NOT silly!!! I'd be devistated if I were facing this!! Find yourself a new neurologist NOW. One that cares more about your health and your comfort level-a level that you can function at and live with-if you find one and that one doesn't pan out, move on until you do. Your rights are at stake and you need to be cared for.

Please don't be hasty-in the medical community one can be labeled as a doc hopper and heaven knows-they'll start thinking you are looking for narcotics. So just be careful. You know what I mean-my fiance had a HORRIBLE abcess in his mouth, and was due to get the tooth pulled the next day. The pain was so severe-and he has a very high level of pain tolerance-he was on his knees, shaking. I drove him to the ER, and I guess cause he is a young man (mid 30's) and is of the "blue collar" profession, they naturally thought he was looking for a script-well, he was!! but it was for real. I'm tired of these jerks labeling people that really need help. They gave him a shot of novacaine IN THE ROOF OF HIS MOUTH w/o even a swab of numbing stuff on it, it made me cringe-and 2 five mg hydrocodone. What a joke. Then charged him 800 bucks for it!!

Sorry I tend to get off track when I am ranting about the docs and such.

I wish you luck. I can't imagine what you must be going through. Please hang in there, at least you've been given enough time to find another b/f your medication runs out. Ask for ALL of your records, tests results, etc so the next doctor won't go through it all again and put you off.

It will work out!!! Keep positive. That is what everyone says to me, and it works.


Stella Marie
Veteran Member

Date Joined May 2005
Total Posts : 601
   Posted 9/29/2007 9:42 PM (GMT -6)   

Unfortunately this is a sad but growing trend.  I am curious why she would not retain you as a neurological patient and refer you to a pain management specialist for your pain control and narcotic needs.  I found myself in the similar situation some time ago.  My neurologist no longer felt comfortable prescribing narcotics in his practice, so he referred me to a PM specialist for my pain needs and retained me as a neurologic patient.  I was taken back as first, but actually the division of responsibility has worked out fine.  The PM specialist is more experienced in this field of medicine and had more options to offer me and in the long run. 

I am adding this after I read your other post.  From what I read, It appears that you were getting narcotics from the neurologist in this thread.  In another thread, you mention your OS writing narcotics for you.  Then you mention a first visit with a PM specialist who RX'ed narcotics.  Even though these are different doctors writing narcotics for different disease states, I can tell you this does not settle well with doctors.  Most PM specialists will demand a contract that they will be your solo provider of narcotics and they are very serious about infractions.

Stella Marie

Dx:  Rare progressive neurodegenerative disease called Multiple System Atrophy (brain rot, autonomic system failure, neuropathic pain and a whole lot more).  Added improvements:  Intrathecal pump and a spinal cord stimulator and a new brand new power wheelchair with shiney horn,.

 Medications: Sinemet, Requip, Klonopin, Baclofen, Provigil, Lyrica, Fentanyl patches, Lidoderm patches, Dilaudid, Fentora and Zofran

Post Edited (Stella Marie) : 9/29/2007 10:06:50 PM (GMT-6)

Regular Member

Date Joined Apr 2007
Total Posts : 47
   Posted 9/30/2007 12:19 AM (GMT -6)   
Actually it's only two doctors. My neurologist who gives me the meds for my headache, the stadol. I've been seeing her since 2001. The other doctor, a PM doctor, is new. I had gone to the orthopedic for my back, (thought it was my hip that was bad and he found all the stuff with my back) he sent me to the PM doc. I dont know if they are uncomfortable with each other or not, but I'm up front about them with all parties involved. I want to make sure they know what I'm taking so they don't give me something that would have a bad reaction if mixed with anything else I'm taking. I no longer see the orthopedic, just the PM doc and my neurologist. And now, no longer the neurologist.
I just dont understand why my neurologist has gotten so odd. If she is uncomfortable writing scripts, why give me 9 scripts to cover the next two months? I dunno, after 8 years...all this cloak and dagger stuff is crazy.

Regular Member

Date Joined Mar 2007
Total Posts : 413
   Posted 9/30/2007 2:15 AM (GMT -6)   
I feel ya. After going to Kaiser's pain clinic for approx. 3-4 yrs, I was "dumped" (that's how I felt). I was told that my condition is chronic and all I needed was ongoing pain meds and "anyone" can prescribe that; if patients stayed at the CP clinic forever they wouldn't have room for new people (I've posted about this in the recent past if you want more details of frustration/specifics about what I did). Just wanted to shed some positive light, which, hopefully, will be your outcome--I did find a primary care doctor who is great, wonderful and, in my opinion, provides me with much better care than the last pain doctor I had (takes more time with me, actually read my chart/history, listens to me, treats me with respect--I'm gushing b/c I'm still not use to this kind of treatment for CP, plus I just saw him this past Friday, my fourth visit, and I'm still surprised by his compationate behavior). Oh yeah, he wasn't the first MD after the pain clinic, had to look for the right one, which is a another whole frustrating story, but, hang in there and good luck.

Regular Member

Date Joined Apr 2007
Total Posts : 47
   Posted 10/2/2007 9:31 AM (GMT -6)   
Thank you again everyone for your support. It really is a blessing to have a place to go to where folks understand what you are going through. I'm sure family members are sick to death of hearing me complain or hearing me be cranky because of pain. And frankly, if you don't go through it, you have no idea. Even the doctors that don't have the pain can't understand what it's like. As far as I'm concerned, this government blows when it comes to helping people in pain. I really really hate to see what it's going to be like in 10 years to try to get some kind of pain relief...if it's this tough now, it will be downright impossible.
Thank you again everyone, your kinda ears and words are a great blessing.

New Member

Date Joined Oct 2007
Total Posts : 16
   Posted 10/4/2007 8:07 AM (GMT -6)   
ugh...how awful. Hang in there, there's some awesome advice in this thread. You'll get through this. Look for another doc ASAP. I'm sending my good houdou your way. =D
"In Babalon's eyes, you can find me there...."

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