Quahog....actually, just the layman's research that I have done since I fell ill with my initial series of "superbug" Staph infections which triggered all this other stuff, has caused me to know all sorts of stuff that virtually no doctor has a clue about.
Certainly not any in this region of the USA, nor most other places around the globe. It's beyond tragic.
There need to be true chronic pain specialists -- not this cop-out "pain clinic" BS where they try to consume your time with useless crap so that you don't have enough time to advocate for your real needs.....which they KNOW they can't meet! At least not on the terms they want to do business on.
And that's all it is for most of these idiots -- a business. Compassion doesn't enter it to it; at least not if it requires any real work or any real risk to the doctor in terms of liability or financial loss. Boo hoo, you might not be able to afford that yacht because you saved a father and husband with small children from suicide due to intolerable agony?! Shucks, I'd take that trade in an instant personally. But it seems that a lot of people aren't these days.
Alas, I know I'm preaching to the choir but I'm at a big big turning point in my war with chronic pain/illness. I have to enter a new phase of the relationship with my primary doc, who is a saint but is only one man and can't control MaineCare's policies which are what is really getting in the way of my care......I have to find a rheumatologist who will take on a case as weird as mine, and a pain mgmt. specialist who isn't afraid of a case requiring as much pain medication as mine.
With our second child on the way early next year......I have to be as functional as possible and that means not wasting all my time coping with the slings and arrows of the specialist-finding process. Plus, my general doc is understandably eager to get on with things, and I've dragged my heels long enough. I need to start seeing as many of the following as possible, as soon as possible:
*Rheumatologist (preferably not afraid of "fibro-like" weird/poorly understood conditions)
*Pain Clinic/Specialist (must be willing to do whatever it takes to enable maximum quality of life without lots of cop-outs such as: injections, implants, surgery, etc -- I already have world-class pain coping skills and am well trained in multiple techniques; I don't need help in those areas, or physical therapy.)
*"Pain Psychologist" -- e.g. someone with primary skills in helping people cope with the mental, emotional and lifetstyle etc. stresses that go along with chronic pain
*Massage therapist (My wife is one of the best massage therapists in the world but she's only one person and I need basically 24/7 massage to cope with my severe myalgias......I hope I can find a way to get MaineCare to pay for at least some massage......)
BTW, Quahog: my primary is a great guy, very smart and much better in many ways than most docs.....but even he tends to forget significant things we've talked about in the past and sort of makes me feel rushed (after all he only gets about 1/3 as much from my MaineCare coverage as he does from regular insurance).....but he has been a godsend in so many other ways.
Conditions: Chronic Pelvic Pain, Severe Lesioning of the Spermatic Cord, Reiter Syndrome (Reactive Arthritis and Myalgias along with a slew of other symptoms), Sacroiliitis, Costochondritis, widespread Tendonitis, and on and on. Typical daily pain levels exceed 8.5.
Medications: Oxycodone, Fentanyl, Dilaudid, Opana (Oxymorphone), Lidoderm (lidocaine) Patches, Flexeril, Soma, many herbs & supplements.