This is my first post here...some of what you say has been in my history. I had been to the rheumy and gastro docs. In fact, the gastro almost killed me. She thought nothing of me having a high blood serum ammonia reading. Nothing ever found. Finally through research on the web and comparing my symptoms...I found a rare metabolic disorder that seemed to fit. But yet it was suppose to be found in children. It also can be caused later, usually in women because of trauma or injury. The problem was I had been sick since a child and wondered. Like you, I have lost up to 7-8 babies.
I met with the metabolic specialist. I took my complete medical history as I could remember and had had mom fill in since birth. I had also sent the last 5 years of medical records from the five doctors that were trying to treat me.
I tested negative for what he thought I had...but we knew I could have false negatives. Finally had liver biopsy -- and there it was. I have Urea Cycle Disorder. For years doctors had told me it was fibromyalgia, chronic fatigue, etc. Those were all symptoms of a deeper problem. Am now on special medication.
So don't close your doors on hope. Never stop believing in what your body is telling you. Here is my box of rox that I was carrying around (just some of them):
Migraines (neurologist says I have 5 types of headaches -- now know the tension and migraines are triggered by too much ammonia in my blood)
Bone aches -- deep achy bone pain
Vision issues, ringing ears
Burning feet and hands
Muscle cramps, tremors
Restless Leg Syndrome
Stomach aches and IBS
Shooting pains in colon and even anus (found out tied to migraines)
Brain fog Memory loss
The sleepies -I would fall asleep for days, could barely wakeup; during that time ears would ring. They still are trying to find out what triggers
High uric acid -- causes the arthritic pain
Low body temperature --around 95
Miscarriages -- 7-8
Endometriosis --extremely severe--ultimately had to have hysterectomy
Depression mood swings, Anger (regretably a common issue with UCD)
All of the above and more are tied to the urea cycle disorder -- mine is ornithine transcarbamylase dificiency. There are more metabolic disorders. Look them up on wikipedia. Basically -- all the ads saying a body needs protein, so I was eating lots of it -- was really killing me. My body can't process correctly because enzymes are missing. Am now on medications that help. Can you see how difficult it was to try to catagorize me? One even told my husband that it was all mental. Fooled him!! I have to eat a low protein, high carb diet which can cause other problems. So basic doctors are overwhelmed --treatment was like the blind men and the elephant. "And, I ain't no elephant!!"
I am now tied to a major university and metabolic genetic group.
I now believe that many of the chronic illnesses are deeper based to the mitochondria of our body. I do live with chronic constant pain. I take pain pills if absolutely necessary. But I hurt 24 hours a day deep down in my bones. Juicing, fresh fruits and veggies help rid all of the above symptoms. But the disorder keeps me on my toes fighting an unseen foe at all times. I may get depressed but I try to never give up.