It's hard for our families to really understand what we are going through. My family tends to think that I am invincible, which is partly my fault because I tend to keep going, even when I really should just spend the day in bed.
After my first surgery, my husband became very concerned because I was in tears trying to move, the pain was so intense that I couldn't take a breath at times. He saw it. He was right there with me at doctor's appointments telling them that in all the time we've been married, he never saw me cry from pain and that he knew that if I did, I was in tremendous pain. I had RSD in my right shoulder, arm and hand after a shoulder reconstruction surgery and he was involved in my care for that as well, so he knew what I am normally like when dealing with pain...
My kids on the other hand, think that mom should just drop everything and do whatever it is that they want me to do.....they have gotten better about it, but there are moments when I'm in pain and I just can't do what I would normally. It's been a battle at times but I tried to educate them , and took them with me to doctor's appointments at times so that they could understand a bit better. My PM talked to them and explained things to them as well.
It's frustrating not being able to stand or sit for long, or do household chores that I did for years.....and I have moments of being depressed by the whole situation but it is what it is and now we all have to find a way to live with my new limitations.
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..