hmmm...very interesting reading all of this.
I was experiencing bloating/gas and occassional pain and saw my GI. He sent me for a SBFT and found out I had developed strictures in my terminal illieum. My crohns has been localized to about 12 inches there since diagnosed in 1995 and has not spread but has now developed the strictures.
Note: I was hositalized in June for a partial blockage. I was admitted and got through that issue with antibiotics, iv steriods and entocort once I got home.
Anyway, my GI told me that at this point the entocort nor the Remicade is going to help THIS issue (strictures) and that the only option I had if my symptoms were to get any worse was surgery. (He continued that w/strictures you are at higher risk of developing partial blockages.) He said he wanted to prolong surgery as long as possible. He asked me how I was feeling and I told him I was feeling pretty good at the time. He said to just let him know if things started to get more difficult for me, and if so, he would have to schedule me for surgery.
It has been since right after Thanksgiving that I had the test and so far I still feel pretty good. I have been watching my diet very carefully and continue to take my methotrexate and remicade.
After reading about what skitt wrote about possible preforation, peritonitis and possible bacterial overgrowth, I wonder too if I am just prolonging the inevitable and just putting myself at a higher risk of other complications.
I too thought it was a good question to ask, how long have people gotten through with holding off on surgery? I mean since my GI (whose opinion I respect) has told me he would like to hold out for surgery, as long as possible. But now I wondering if I'm doing the right thing?
Anymore comments out there? Maybe it's time to schedule an appt. w/my GI and talk about these possible issues.