Keep on learning everything you can about Crohn's Disease so that you are able to continue supporting and understanding your husbands disease. Although it is scary to think that your boys could also be diagnosed with Crohn's Disease because there chances are higher with your husband don't let the worry and anticipation eat you away. For example I am the only one in my family to have crohn's disease or ulcerative colitis, and I have also known people where all of the kids have crohn's, as well as a parent. It really varies from family to family and specifically person to person. In terms of him waiting a long time for a diagnosis, this is unfortunately normal for IBD. I wasn't diagnosed until 2003 when I was 18 years old, and looking back I had digestive issues (which were clearly crohns now) since I was 12 years old and just entering the 7th grade. It can take a long time to be diagnosed, and an even longer time to figure out the ideal mixture of medications and various therapies. I have used Asacol. Imuran, 6-MP, Remicade, Prednisone, Entecort, Cipro, Flagyl, Methotrexate, as well as natural remedies as well....needless to say all of my options have been retired and I had to have surgery this December. If you ever need any advice or just a person to talk to please send me a message and we can chit chat. Best of Luck!
Diagnosed: 2003, age 18 (had issues with it since I was 12)
Meds for crohns: Off all meds for 1 month until I heal. Still on 10mg Prednisone, and 20mg Oxycodone every 3 hours, and Oxycontin 5mg every 12 hours. Also on a bunch of other meds for crohn's and my other glorious diseases.
Other medical issues: Hereditary Spherocytosis (hemolytic anemia) iron deficient anemia, polyarthralgia, ovarian cysts, Migraines
Surgeries: Spleen and gallbladder out at age 6, Tonsils and Adenoids out at age 21. Ileocecal (small bowel) resection on December 13th. Appendectomy during small bowel resection