Hi to all you other moms of CDers -
In case you haven't already found it, you might want to check out the Dragonpack IBD parents forum at http://www.dragonpack.com/ibdsupport/parents/
My son was diagnosed with Crohn's at 10 after more than 6 months of bloody stools and severe constipation. Because he had an unusual presentation it took a long time to get a diagnosis - he wasn't rail thin, he didn't have diarrhea, he had some belly pain but not much, he wasn't throwing up. But he did have fissures, a skin tag and lots of blood in his stools. Turned out he had a bleeding ulcer in the TI along with extensive ulceration in the jejunum and inflammation with ulceration throughout the colon. He had growth failure going back at least 3 years and I believe he has suffered from Crohn's flares since infancy but no one would listen to me when I said there was something wrong.
The gold standard for a Crohn's diagnosis is a combination of colonoscopy w/biopsies, endoscopy w/biopsies, SBFT and, if no strictures are found, an MRI or CT scan or a capsule endoscopy to fully examine the small intestine. But if it were me, I would ask the doctor run a Prometheus IBD Serology 7 test along with a comprehensive battery of blood tests - CBC, liver panel, kidney panel, H&H, ferritin, ESR and CrP and a battery of stool tests including occult blood test. Even if you have to pay for the Prometheus 7 test, it can be very helpful on many levels. It now carries a much higher accuracy rate for diagnosing IBD than it used to do (92%). If positive, the combination of positive markers may indicate whether your child is at risk for more aggressive disease pattern than would warrant starting with immune-modulating or immune-suppressing meds ASAP.
Besides being thin, most boys with Crohn's have short stature. You might want to check your son's growth curve over the past 2-3 years and see if he has continued to grow at a "normal" rate or not. If not, then be sure to point this out to your doctor. You can figure out your son's growth trajectory at this website https://www.nutropin.com/patient/3_5_4_growth_velocity.jsp
Best wishes and maybe we will see you all over on Dragonpack too.
Patricia (Badger, 12, CD, Humira (clinnical trial), 6-mp, omeprazole, miralax, sertraline, supplements)