I'm new here but I'm hoping someone can help me. I have Crohn's disease. I was diagnosed almost 5 yrs ago. It's a long story, just like everyone else's I'm sure. Basically I was pregnant, had URQ pain, vomitting, etc. Was hospitalized for pre-term labor & when my son was born 10 weeks early, they found a perforation in my small bowel. It was really bad. I had peritonitis & the doctors told my husband to say goodbye to me because they didn't think I would make it. I later had the SBFT & was diagnosed with Crohn's, had a bowel resection, etc.
Anyway, my son is now showing some of the same symptoms I had when I was a kid. Strange rashes, joint pain, skin tags around his rear and complaining of stomach pain. His stools are very inconsistant. Diarrhea one day. Constipated the next. He's also had blood in his stool twice. One was as a baby when he was still in the NICU & the other was when he was about 2 and the doctor did a rectal exam because he was complaining about stomach pain.
The thing is, now that I look back, I was showing signs of Crohn's as early as 6 when I was hospitalized for joint pain and fevers. At the time no one could figure out what it was but now all the doctors say it was Crohn's. I also had all kinds of weird rashes on my legs and went to the doctor all the time complaining of stomach pain, only to be told the rashes and stomach aches were because of my nerves, which is funny (now) because I'm actually a really, really calm person. Of course, they also now all agree that the mystery rashes (that I still get) are also because of Crohn's.
I've talked to the doctors before about my concerns but they just tell me that Crohn's doesn't normally show up in kids his age (almost 5). They pretty much chalk it up to me being a crazy mother. My fear is that he does have Crohn's and it will go undiagnosed for years until he has a catastrophic event like I did. I don't want him to go through all of that if I can avoid it. Of course, I don't want him to go through all of the tests to diagnose it either. Especially if everything is normal.
After my son's latest bout of stomach pain, combined with a mystery rash, my husband is getting worried now too. We are taking him to the doctor tomorrow. Does anyone have any advice about how to talk to the doctor?
Thanks for your help!