elcome prayin4healing :
I am 41years old male with crohns since age 13 and had my ileostomy surgery in 1997 do to perianal fistula’s I just went back to my Doc to see about a reversal as my case back 10 years ago they would not consider one…things are better now a days and have come along way with new meds like you were on that may allow me to choose a reversal.
You most likely will have an ileostomy that will disconnect your colon so it will help dry up the fistulas and make them dormant my Doc said they will never go away but just not active (this is my greatest concern in getting reversed).
I at age 31 was not willing in my mind to go to a iliostomy and I had all the same thoughts that you have.
Let me address what my thoughts are for your questions.
How long is the hospital stay?
My stay at John Hopkins was 10 days, but may very for individuals.
Does it hurt?
(I take it you meant the surgery)
It only hurt when I left the Hostpital (I was on morphine 9 days) discharged July 4th 1997,
The next day my wife and mom went to fill a prescription for Oxicodone and I started on one but it was no match for the morphine I was on so I took two and it help mange pain but was no match again but stayed at two pills.
I had Home Care Nursing (prior to surgery) with my fistula packing and they stayed with me after discharge it was the best thing and if your insurance will allow I recommend it.
Does it smell?
(for the most part no it does not smell, but you play a big part in making that so) Only when the stoma wafer is ready to be removed and a new one put on does it put off a odor that you will smell first before others (they last 3 days for most brands) this is a sticky back wafer that will fit over your stoma.
Mine is a two piece application were the wafer and bag snap together like Tupperware, this makes it easy to release air as you can burp it…I joke with close friends and say I will save all my gas and let it out once. sorry its a guy thing.
The other is one piece and you will most likely have that after you wake up from surgery and when you come home, but a ostomey nurse will cover all the different types to you so you can buy what you want after you leave the hospital. They will send you home with a small supply that should last you a week.
Is it really noticeable?
(I take it you meant “is the bag noticeable in public.(NO) Its never been noticeable problem for me and have co workers for ten years that still don’t know (except swimming in public more hang up for me than anything but I have gone and will go).
You may have a mucus stoma and this is you large intestine/Colon,you will put 4x4 gauze and tape over this as it produces a clear natural fluid from your large intestine it will be located above you wafer stoma that is at/around your belt line. Most people will see this if swimming in a bikini but not a one piece (I don’t have that option it would look funny .
My home nurses before surgery all said you don’t see it and they were right they
also said that it does not stop you from doing anything you want to do as far as activity.
True to that I camp,swim, hike,wresltle with oldest son work on jeeps and go four wheeling,coached baseball and football with out issue.
No one will know unless you tell them.
Can you chose where your stoma is placed?
(NO) your Ostomey Nurse will decide and then the Surgeon will check the location and concur with the ostomy nurse (the ostomy nurse is a specialized nurse that will work with you on what to expect/how you feel about it and how to take care of it use her to ask about you fears and anxieties.
Hope this helps feel free to ask anything we all have had dinner discussions at the table.
Post Edited (MDdave) : 12/28/2007 8:51:40 PM (GMT-7)