Hi, I have been diagnosed with light Crohn's disease (a cancker in my Ilieum) since Dec. 2004. Being pregnant brought it out, but it took 2 years for them to decide what it was. I was passed from my family doc to my OBGYN to a GI specialist. I thought the burning in my stomach was a hunger pain. I thought I was hungry all of the time. I also have a light case of sleep apnea. I was recently (just this year) diagnosed with fibromyalgia. I am tired AALLLL of the time! I take Vitamin D, Calcium, and Entocort for my Crohn's, Lyrica for my fibro, and my family doctor put me on Provigil because I am so tired. I take that only as needed. Provigil was designed for people with narcalepsy. Please forgive me for my poor spelling. I take it sparingly because it is expensive and I don't like taking any meds if I don't need them. My GI's nurse is always saying stuff to me because I go off of my meds as soon as I hit a remission stage.
My last family doctor told me I ought to see a Psychiotrist because I kept coming in with pains in my left side at the bottom of my rib cage. My GI and my family Doc kept passing me back and forth saying it was the other's responsibility to find it. Finally my family doc decided I ought to see a Psychiotrist, claiming that it is recomended to patients that have pains that doctors can not find the causes for. I stopped ALL meds, and ignored the pain as much as I could. I felt betrayed. I assumed that since my family doc decided it was all in my head, like a hypocondriac, I had better start treating the pain as if it did not exist. I lasted about 9 months or so. I couldn't take it any more and called my GI. His nurse scolded me for dropping my meds and going to extremes. She said that it was not in my head, that I really do have Crohn's disease and the tests she has, proves that fact. I quit seeing that family doc. I started seeing walk-in docs instead. This year I hurt my neck and back at work. I did not want to be passed around again, so I asked my cousin, who is a registered nurse, who she recomended, since she worked for the medical system I am in. She recomened Dr Gordon. I am so thankful! Dr.Gordon found the real problem with my work injury (unlike the doc I was supposed to be under, but he didn't bother to see me until the last day I dealt with the office he was in)and Dr. Gordon diagoned me with the fbro, and he put me on a C-pap (breathing machine for when I sleep)and the Provigal.
Things are starting to get better. I KNOW when I don't take my Lyrica! My left rib pain is the first thing to show up when I forget to take my Lyrica. It is sharp like someone has just poked me in the rib with a sharp fingernail. (My cat finds it everytime he walks on me :) ) I was in a work hardening program (basically therapy to get me back to working condition after being off for so long with the injurys). I must have forgotten to take my meds the last time I went, because my therapist lightly patted me on the back ( which was weird because he usually gives me a good pounding back thump to encourage me if I am doing well)and I jerked from the pain. He was immediately sorry. He went to touch my back again to say he didn't touch me that hard, but I flinched so bad that I almost fell off of the treadmill. He was shocked that a light touch can hurt as bad as if he had actually slugged me. That is how it felt too, like he had slugged me hard in the upper left back. I suggest checking with your doctors to decide if you have fibro or arthritis. Lyrica has helped immensly for me. I hope they find something for you soon! - Teeny