it seems you are all women, I commend you all for dealing with this dreaded aspect of Crohn's.
I myself am a guy, so it's a bit different for me, since I can't get a recto-vaginal fistula. Since my body couldn't give me one of those, it decided to attach a fistula or two to my scrotum, leaving me very unconfortable at times, like today, which is why I am on the board right now. Posting and reading here is one of the few things I can do when the frustration is so bad and the isolation of this disease kicks in from these kinds of syptoms that just won't seem to ever go away for good.
I had surgery and got an ileostomy back in April of 07 (i can say back in 07 now!) with the idea that it would give my lower end time to heal and the fistulas a chance to get a break from the constant irritation that comes with regular digestion. IT worked amazingly at first, but now the fistulas seem to drain just as much as before and are just as uncomfortable some days and I really don't know how I cope sometimes. I guess I have been living with it all for almost 15 years now, so I don't really know there is any other way.
I have heard about
the plug, in fact my surgeon is one of the pioneers of that treatment out of Cedars-sinai, but the idea seems like a waste of time to me. Just how i feel at the moment.
I am almost convinced that the next appt I have with the colo-rectal surgeon, I am gonna ask for the full recto-colectomy and have em' close me up for good on that end. will that bring relief? i pray at night and in the bathroom during the day. I am sure you have all given similar prayers form the porcelain throne.
anyway, I wanted to say I understand your pain ladies and i guess I ended up whining more than I meant to.
Talk to you all soon.
p.s.: i think mine are orange. i don't look that often anymore either....it's too scary
"The things that make us feel so abnormal, are actually the things that make us all the same" - from PostSecret: Extraordinary Confessions from Ordinary Lives - by Frank Warren