I was diagnosed with UC in 1995. I had a patch of ulceration in my left side of my colon. Blood in stool, mucus, frequent bms, weight loss, frequent abdominal pain. Somewhere around 2003, I had a colonoscopy which revealed entire colon looking perfect, but two ulcers, one deep, in my rectum. Symptoms changed to severe constipation with bouts of diarrhea, more bleeding, less abdominal pain, severe rectal pain, body weakness, less mucus. In August 2006, the rectal ulcer was tunneling towards my vagina, GI said about 1 inch deep. Took Remicade after that and Nov 2007, only have the one same ulcer, now at about 1/4 inch deep. I keep asking my GI if I really have Crohn's and he never gives me a straight answer. Says well you were diagnosed with UC because of biopsies and the diseases are pretty much the same and same treatment?!? I want to know for sure what I have. What tests can he do or how can I know? What do you all think I have?
Diagnosed with Left-sided Ulcerative Colitis 1995 at 15
Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcourt, Colazol, Proctocort, Anamantle, etc...
Diagnosed with Ulcerative Proctitis with almost rectovaginal fistula in 2004, put on Remicade,ulcer shrunk in 3 months, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia Current meds:
Remicade 700mgs every 6 wks ( had reaction, will start Humira in 6 weeks) Lomotil, Darvocet, Clorazepate, Proctofoam HC, Tapering Prednisone again :( for joint pain