No longer confused... Newly diagnosed.

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Regular Member

Date Joined Dec 2007
Total Posts : 298
   Posted 1/3/2008 8:03 PM (GMT -7)   
After a year of strange symptoms--and about six months after being hospitalized for liver problems and fever--I finally have a diagnosis... Crohn's of the small bowel. No one was expecting it, not me, my family, and especially not the GI doc. But the Serology 7 test came back so it's official. I called this morning at 8:30AM and got the result. I still went to work today but didn't get much done, I've been pretty upset about it. I'm giving myself today to get rid of the tears, maybe a few more days if need be, after that I need to work on being positive, it could have been a lot worse.
I'm guessing my original liver issues were related to the crohn's, and probably aggravated by being on birth control pills. I'm off those now and (maybe not surprising?) am scared of going on any other drugs. sad
A question for everyone...
Between my hospitalization in July and November I did not receive any medical treatment (except going off pills) yet my liver function tests normalized and my sed rate went from 70 to 27.  I also felt pretty good, no fevers, only mild discomfort in the URQ on occasion. Then I had another episode of fever in the beginning of December and my sed rate was back up to 50-ish (at the time I also had a cold). Does that mean I was getting better/going into remission on my own, but something stopped it? Or was I still just in a "flare"? I guess I'm wondering too, how do you define a "flare" for someone that only has small bowel Crohn's and doesn't get D or "true" C (I had usually 1 or 2 BM's a day, but was taking fiber to soften them).
Anyways, the doc moved up my appointment from Jan 31 to the 17th, but I still have not spoken to him yet, just to his nurse. In addition to seeing issues with the terminal ileum, the CT picked up some weirdness on my right kidney and liver which will have to be investigated... mad

Forum Moderator

Date Joined Apr 2007
Total Posts : 32602
   Posted 1/3/2008 8:41 PM (GMT -7)   

Hey there, I am sorry you have Crohn's but I am relieved for you that you now know what is going on.

Sed rates:

The ESR (Erythrocyte sedimentation rate) is an easy, inexpensive, nonspecific test that has been used for many years to help diagnose conditions associated with acute and chronic inflammation, including infections, cancers, and autoimmune diseases. ESR is said to be nonspecific because increases do not tell the doctor exactly where the inflammation is in your body or what is causing it, and also because it can be affected by other conditions besides inflammation. For this reason, ESR is typically used in conjunction with other tests.

Does that help explain a sed is only one tool to use in determining what is going on.

Gentle hugs to you and please know we are here for you.


Co-Moderator Anxiety ~ Panic Disorders
Co-Moderator Crohn's Disease Forum
*~* Not a mental health professional at all *~*
Dx: Anxiety/Panic, Depression, GERD, Osteoarthritis
*Wife of a Crohnie*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~

Veteran Member

Date Joined Nov 2007
Total Posts : 4386
   Posted 1/3/2008 9:06 PM (GMT -7)   
It is hard to get the initial can have more than one day to be sad! It does help though to have a diagnosis, so you can start treatment. It took about a year before I had a diagnosis, and my symptoms would completely disappear and then return...I think it's the nature of the disease. Hang with us...we'll get you through this together!
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007
currently taking Pentasa 2750 mg- 9pills/day and on and off Prednisone for flares

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