After a year of strange symptoms--and about
six months after being hospitalized for liver
problems and fever--I finally have a diagnosis... Crohn's of the small bowel. No one was expecting it, not me, my family, and especially not the GI doc. But the Serology 7 test came back so it's official. I called this morning at 8:30AM and got the result. I still went to work today but didn't get much done, I've been pretty upset about
it. I'm giving myself today to get rid of the tears, maybe a few more days if need be, after that I need to work on being positive, it could have been a lot worse.
I'm guessing my original liver issues were related to the crohn's, and probably aggravated by being on birth control pills. I'm off those now and (maybe not surprising?) am scared of going on any other drugs.
A question for everyone...
Between my hospitalization in July and November I did not receive any medical treatment (except going off pills) yet my liver function tests normalized and my sed rate went from 70 to 27. I also felt pretty good, no fevers, only mild discomfort in the URQ on occasion. Then I had another episode of fever in the beginning of December and my sed rate was back up to 50-ish (at the time I also had a cold). Does that mean I was getting better/going into remission on my own, but something stopped it? Or was I still just in a "flare"? I guess I'm wondering too, how do you define a "flare" for someone that only has small bowel Crohn's and doesn't get D or "true" C (I had usually 1 or 2 BM's a day, but was taking fiber to soften them).
Anyways, the doc moved up my appointment from Jan 31 to the 17th, but I still have not spoken to him yet, just to his nurse. In addition to seeing issues with the terminal ileum, the CT picked up some weirdness on my right kidney and liver which will have to be investigated...