Well I had my fistulagram in mid december, had my colonoscopy 12/20/07 all in preparation for my 4th yes 4th surgery for my CD since 2-12-07. I hve had this DD for over 20 years now and it took til 07 for meds to no longer help my CD without Sx. That in itself is great that it took so long before I needed surgery.....but so many in such a short time...I sure am making up for the years with no CD related surgery....although I had 2 other abdominal surgeries non CD related prior as stated below in my sig. My surgery was scheduled for 1-4-08 but over the holidays I cought a cold so I had to postpone my surgery and make an appt with my PCP before the doc would reschedule my surgery. My PCP was on vacation when it was turning to a sinus infection so my colorectal surgeon called in some ABs for me and awaited my PCPs remarks as far as if I was well wnough for my surgery.
My surgery is now scheduled for this Friday 1-11-08. I have a CD related enterocutaneous fistula that wont heal any other way the drainage increased quikte a bit when I was unable to give myself my weekly dose of Humira on the 28th of December, my GI and I as has my colorectal doc have determined that I need humira weekly as opposed to the regular maintanance dose of every other week. My GI was happy that I did not give myself the Humira the week while on ABs for the upper respiratory infection. He was also glad in a way that my CD symptoms increased greatly by just having to miss that 1 shot. Not only did the drainage from my fistula increase but so did the abdominal pain and joint pain. This made my GI happy only because he knows I definitly am not overmedicating and that I do indeed have an extremely noticable change in symptoms if I do the shot every other week.
This is what I hope for after surgery.....
I hope that the lawyer I call (I am going to use the same disability lawyer as my godmother did) will be able to help me get social security disability approved on the first go around. My PCP wants me on permanent disability and never work again since I do not only suffer from CD but many other ailements as well inclusing asthma, severe food allergies, inflammatory arthritis, migraines, carpal tunnel, vision issues from meds, osteopenia, severe anemia even with iron supplements, insomnia etc. My left lung no l;onger functions fully they even did an MRI to see if my CD had migrated to my lungs since my "normal" breathing test came back as abnormal.
I hope that after this surgery so many adhesions he has to remove since I vomit from obstructions from adhesions and get constipated from the adhesions will not return. I am tired of being nauseaus every day and vomiting most days.
I hope Humira continues to help me post op and finally place me back in remissin with no more fistulas ever....I know the ever part is a lot to hope for but at this point I need to keep my spirits up somehow.
If I have no complications I also hope to start a family this year. The GI said if at 6 months I feel well and have had no surgical or CD complications we have the okay to start a family.
I hope to get all these darn medical bills paid off or written off especially since had I remained in the hospital the insurance would have covered 100% of the wound vac but since I took it home they only cover 2500 per year....so I am getting bills for 1500 just for the vac...cant believe insurance would rather pay over 1000 per day just for my hospital room and the vac on top of that plus the other things u pay for while hospitalized rather than 120 per day for the vac. even my doc said to fight that....my co pays are insane 250 per hospital ADMISSION...150 if it is an er visit if not admitted crazy huh
well wish me well and luck this time around!