nervous about GI appt

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Regular Member

Date Joined Dec 2003
Total Posts : 494
   Posted 1/8/2008 3:20 PM (GMT -7)   
im really nervous about my GI appt tomorrow. i havebeen having symptoms since soming off pred about 10 mgs it started. its confusing though. i have the LRQ pain, big D 4-6 times a day, nauseas everytime i eat, and mouth sores. but what confuses me is that some days ill have bm's 4-6 times and some days only one or two. none of my flares have been like that. some if that has to be due to going on my crohns diet but who knows. ive had 4 treatments of the double dose remicade and was on pred 5 months before the taper and im  just frustrated. what im most nervous about though is that my GI wont believe me, this hasnt happened before but im nervous anyway. and he probably will send me for a cat scan or a scope but what if it doesnt show any inflammation? while on pred a few months ago i had a clan scope but i know with me that can change in a moment. oh well. i dont know why im so nervous but i am i just hope he believes me because i think this is the start of another flare. and i cant handle prednisone again, i cant.
thanks for listening to my vent,
Crohn's Disease Diagnosed 12/24/03 and Bipolar

Im 26 years old, and am currently only taking remicade and protonix for my CD. am on quite the cocktail for my BP however: Geodon, Lamictal, Celexa, Buspar, Wellbutrin and Klonopin.
Im also on lipitor for high cholesterol caused by a prior BP med. im on fentanyl patches for pain also, and i take some meds prn for my allergies, asthma, and migrianes.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 1/9/2008 7:59 AM (GMT -7)   
If it is a flare, maybe you can try Entocort instead. Its a steroid also, but with WAY LESS side effects. Good luck and I hope you get feeling better soon.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 1/9/2008 8:42 AM (GMT -7)   
I agree with Nanners,try the Entocort........Please let us know how things went today as well ..........thoughts and prayers

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Regular Member

Date Joined Oct 2007
Total Posts : 289
   Posted 1/9/2008 10:28 AM (GMT -7)   
Good luck,I totally agree about the Prednisone.The first few times didn't bother me too much,but boy,when I was on it last year it was HORRIBLE,I really sympathize :-)
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