Posted 1/10/2008 4:25 PM (GMT -6)
today i saw my GI. since thanksgiving i have been having symptoms again after 5 months plus 2 to taper on prednisone. i was ok while on it but once i hit 10mgs it started all over again. so i have been on remicade for 2 1/2 years now but since my last flare its not been working even though my doc doubled the dose. soooo today, i saw him and he agreed that i should come off of remicade. i have all these neruological symptoms that my neuro attributes to remicade. ok so the scary thing is right now im not going to be on any crohns meds. he wants to see me in 6 weeks to see how im feeling and we will make a plan from there. i am so scared to be off of meds though. i would be due for a remicade at the end of this month so it not like ill be off them for long, technically, but it still scares the crap out of me. i hope that when i go back to see him he will out me on humira but i didn't ask today, i could kick myself for forgetting to ask i was just so surprised that he actually is taking me off of cade. i mean thats what i wanted in the first place given the neuro issues but i didn't want to be on nothing. he also doesn't want me back on prednisone for awhile because it destroys me and messes with my psych meds. im probably rambling and not making any sense but i am trying to deal with this surprise. i have has luck with meds and i believe in them so im just nervous.
im also freaking out because i am facing losing my Medicaid. my case worker is a jerk and i have been trying to contact him since september. i finally got ahold of his supervisor and he told me that my caseworker said that he has talked to me several times. what a bunch of lies. however i found this program that they have for working people who are identified as disabled. with the bipolar and my other physical issues i think i qualify so imna work on that.
ok, im done. ill try to calm down now. its just stressful. thanks for listening.