My problems have involved all other parts of the legs and feet (not toes per se) especially ankles, calves, and tops of the feet. After reading the posts (thanks), I now think that whether it's steroids, or the Crohn's -- the immune system is the general explanation for swelling. Similar to joint and muscle pain. I have been on a steady max dose of entocort for a long time and know I have some of the other systemic steriod problems I recall from when I was on Prednisone. As we know, when we talk to our docs (GP's and Gastero) along these lines, not much happens of a helpful nature. Not their faults, just the realistic lack of good treatment options that don't eventually cause problems of their own.
Male, in early 60's; diagnosed age 39 with Crohn's although I had intermittent symptoms in
childhood. Had bowl resection 1989. Treated with Prednisone and Asulfadine or Asacol, then started Remicade infusions every 8 weeks in 1999. Clean colonoscopies for most part since then. Currently, lung infiltrates seen in CT scans (no breathing symptoms) are being evaluated. Remicade stopped, then restarted. On Entocort and Asacol with Tylenol w/Codene and steroid suppositories as needed.