I have a 4 yr old and 2yr old son and just had boy/girl twins in November. I was diagnosed about
5 weeks after my first son was born and was hospitalized for 2 weeks with severe inflammation in the entire colon. My doctor said he had never seen a case as bad as mine. Needless to say, I had a good 6 months of recovery and had to quit nursing. I would AB****LEY NOT get pregnant unless I was in remission. So I finally was a year later and had a fairly uneventful pregnancy with my second son. If I am honest I started flaring almost right after he was born but didn't get the fevers, not holding anything in until about
8 weeks after. I had to start the predinsone and it really took almost 6 months before I felt better. I did however nurse him (with approval from doc, peditrician, and pharmacist) for the first year. I then flared again after quitting nursing and I let this one go for like a month and half two months before I did anything and again went on pred. and added the 6 mp all when we wanted to try to get pregnant again. After about
3 months I never felt better in my life with the 6mp and another 3 months later I was off the pred. and feeling great. We waited a month and tried again and got pregnant with the twins. I went off the 6mp because of really bad headaches for some reason. I had the best pregnancy EVER! I flared very suddenly again about
5 days after their birth. The same with every other pregnancy I would be feeling fine and then wake up one day with 103 temp. joint pain abdominal pain and pooping every hour. But this time I called the doctor that same day and started 40mg of pred that same day! It took only 2 weeks for me to feel once again better then ever! I really think by not waiting is what did the trick! I am currently nursing my twins and they sleep anywhere from 6-7 hours at a time at night and they have even made the growth charts at their 2 month check up so they are totally getting enough and high calorie milk. I did just start the 6mp again and I am down to 5mg of pred with no symptoms of crohns! (Again approved by everyone to nurse on my meds)
Sorry this is so long but I am just so happy that I feel so well so soon with this birth. I truly think my condition is brought on by some hormone change after pregnancy and possibly after nursing. I think you did it right by getting pregnant while in remission! Please, just call your doctor with the first sign of a crohns flare after your baby is born. I can't tell you what a difference it makes in how well you can care for your baby. I feel just as awesome as I did while pregnant with just some crazy hectic and tired days with 4 under 4. Best of luck to you and like my ob doctor said whenever I was worried about
my crohns "hey your not the only person to be pregnant with crohns your doctor probably treats pregnant women everyday".
Many wishes for a healthy pregnancy and baby!
Diagnosed with UC in July of 2003 then diagnosed with Crohns in August of 2006.