starting remicade today...advice?

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New Member

Date Joined Dec 2007
Total Posts : 13
   Posted 1/15/2008 7:12 AM (GMT -7)   
Hey everyone,
I am finally starting remicade today, just wondering how I will feel after getting it done and how I will feel the next day.  My next colonoscopy is on the 30th and the second remicade therapy is on the 31st.  Whatever feedback people can give me is appreciated.  I really like this forum, its great to get feedback from people in the same boat.  Hope everyone is hanging in there.
43 yr old F, diagnosed: June 93
1 surgery, have a stricture right now mad
meds: pentasa 500mg 2 pills 4x a day
zoloft 50mg once a day
yeah  looking forward to a few more 5k's in the spring and hopefully a 10k before next winter..God willing!

Regular Member

Date Joined Nov 2007
Total Posts : 24
   Posted 1/15/2008 7:41 AM (GMT -7)   
If you have a good IV nurse ... great. But, don't hesitate to switch clinics or request a change in IV nurses if you get several bad sticks, black-and-blue marks, etc. There is a huge range of skills out there. I get my infusions from a hospital based clinic that also does cancer chemo. My experience with a home visit type of arrangement is not good ... pets locked-up, blood on the carpet, intrusive checking of medicine chests, late arrivals ... Hope this helps.
Male, in early 60's; diagnosed age 39 with Crohn's although I had intermittent symptoms in
childhood.  Had bowl resection 1989.  Treated with Prednisone and Asulfadine or Asacol, then started Remicade infusions every 8 weeks in 1999.  Clean colonoscopies for most part since then.  Currently, lung infiltrates seen in CT scans (no breathing symptoms) are being evaluated.   Remicade stopped, then restarted. On Entocort and Asacol with Tylenol w/Codene and steroid suppositories as needed.

Regular Member

Date Joined Jul 2003
Total Posts : 481
   Posted 1/15/2008 9:24 AM (GMT -7)   
Hey Runner!  I take Remicade as well.  I definitely advise you to take a book, or an MP3 player to your infusion.  I get benedryl before mine, which makes me sleepy.  So I found out that if I take some music to block out the other noises in the infusion room, I can sleep through most of it!  Also, I didn't notice a big change in my symptoms until after my 3rd infusion.  I know people can see results sooner, but if you don't, just be patient.  I'm usually kind of tired after my infusion.  When I first started my infusions I got headaches afterward and the ady afterward.  I don't anymore, though.  (I've been getting them since Aug or Sept, I can't really remember).  Remicade has really worked well for me.  I hope that it works as well for you.  Good luck!

Regular Member

Date Joined Dec 2006
Total Posts : 177
   Posted 1/15/2008 10:29 AM (GMT -7)   
I always got sleepy about halfway through my infusion and usually I'd take a nap as soon as I got home. I was fine the next day. Good luck with your infusion!

Aimee =)
Veteran Member

Date Joined Jun 2004
Total Posts : 1020
   Posted 1/15/2008 10:33 AM (GMT -7)   
Bring stuff to do! I used to bring books, magazine, work, cell phone (depending upon where you get it, I used to catch up with my mother 5 states over!), movies to watch on your laptop.

When I was at the hospital, they gave me a TV with cable so I just brought magazines to flip through.

I didn't get premeds so I wasn't tired. I returned to work immediately after.

Oh - I also brought in food to eat. Esp since it went over lunch. Every place I had it done were fine with that. At the hospital, they actually brought me a tray!!

Veteran Member

Date Joined Nov 2005
Total Posts : 722
   Posted 1/15/2008 10:37 AM (GMT -7)   
I bring reading materials but I bring my ipod and usually end up sleeping. Yesterday I had an infusion and slept for 1 1/2/ hrs!
36 year old female. Dx'd and undx'd a few times. Was just redx'd again 04/2007.
History of rectal abscesses and fistulas (28 surgeries including abscess I & D, exploratory surgeries, 2 C-ton drains and 1 fistula plug) Count does not include self bursting abscesses.
1st Remicade infusion 6/5/07.  Lots of joint pain, and a new fistula since the 2nd infusion 6/19.
Praying I'll get better soon so we can have a baby.
Ginger :)

there's Hope
Regular Member

Date Joined Nov 2006
Total Posts : 145
   Posted 1/15/2008 11:34 AM (GMT -7)   
I have been on Remicade about a year now.
I have a tv to watch movies on at the infusion center so there is usually a movie on. Def bring music or a book or something cuz it takes a few hours. I always bring a snack and water.
I take Claritin before I go and normally go first thing in the morning so I tend to pass out during the infusion.
Afterwards I usually take it easy for the day. I am usually a bit more sleepy and about 3 days after an infusion I always get a headache. Remicade is my miracle drug and I am so grateful for it. I hope it works as well for you as it has for me!!!
26 year old female. Dx with UC in June 2003. Flare up in June 2006 led to CD dx.
Current Meds: Remicade, Asacol, Bentyl, Phenergan, Reglan, Ultram, Celexa and Seaonale, Fish Oil, Lacto and a Multi Vitamin

"There's Hope. It doesn't cost a thing to smile; You don't have to pay to laugh; You better thank God for that!"

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 1/15/2008 2:53 PM (GMT -7)   
Hi I have on Remicade for over 2 years and I usually take a nap during my infusion.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

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