Ok so, I've been out of the hospital for a little over a month now just from having another seton placed. This is the longest it has ever taken me to feel totaly recovered or like my old self again. B4 this I'd been hospitalized a few times,but always for psain from abcesses and fistulas. This obviously meant that my crohns was active but the docs said I wasn't n a flare.
Now I'm currently on 2 pentasa pills 3 times a day and that's all b/c they took me off of azasan during one of my stays.
I've been out for all this time and I still have very little energy, can't walk for long periods of time, and my stomach has been acting funny (which it hadn't been)
I was wondering what meds u guys are on that have brought relief, so I could ask my gi about them when I go.
O! Also I just started humira 2 weeks ago and am scheduled for my ileostomy at the end of this month.
25 y/o female- crohns disease since 14
Ileostomy pending-very worried
Tried asacol,pentasa,prednisone,remicade,6mp,azasan, no avail
Worst year ever!
"For God has not given us the spirit of fear....."
Where does mine come from?!