I'm so sorry to hear of your diagnosis. : (
I would like to add that I, too, agree with Marci. I've been out of work since I was diagnosed October 9th, as I've gone the route of starting out with the little guns, and moving up through the drug ranks. Started with Lialda and Entocort. Very little relieft. Switched out the Lialda for Pentasa. A bit more relief. Started taking prednisone. Complete remission, but then the side effects came on very strong, making me discontinue pred. Now I'm waiting to move up to the next tier next week. So much lost time and lost wages going this route.
Since he has diagnosed you as being a severe case, I definitely think it's worth asking him for an aggressive treatment plan. My only other advice to you is to NOT be shy. Go in there, look him/her right in the eye, and tell him every gruesome detail about
every symptom you have, and take an active part in deciding what course is right for you. Do your research. Learn all there is to learn about
CD, and all you can about
all the different medicines. Go to your office visit as well-educated about
your disease and it's treatments as you can possibly be. I hate to say this, but you are going to have this diesease for the rest of your life. The more you know about
it and it's treatments, the better off your quality of life is going to be, and the quicker you'll be able to improve it.
Edit: I just noticed that CrohnsDaddy is now a forum "Regular Member". Could it be a sign of good things to come?? : )