As some of you may have noticed, I am no longer a moderator. Peter was kind enough to encourage me to stay on even when I was not pulling my weight, and I did so for as long as my conscience would allow (well, longer, actually.) I did not leave Healingwell, and even when I wasn’t posting at all, I still read what I could and included all of you in my prayers. It just wasn’t right for me to be listed as a moderator when I wasn’t acting as one. Besides the Crohn’s, I had a bout with tailbone pain and couldn’t sit for very long. I have neuropathy, too, which is just a nuisance. It was a bunch of little things, plus trying to get moved and organized, that set me back.
Now for the update. It will have to be more of an outline. I moved in with my brother and his family in September, and I am happy here. I stopped Remicade because it was no longer working. The doctor had mentioned Humira, but just before Christmas I had my first ambulance ride and my first ER visit due to Crohn’s. It was an obstruction, but I kept my record of 25 years since diagnosis and no resections – so far. The hospital stay is pretty much of a blur, thanks to dilaudid and phenergan, but I wish I had gone somewhere that my doctor has privileges. If it ever happens again, I’ll swallow my pride and go earlier so I can get to the hospital I know. My problem is that I’ve had many partial obstructions, but they all worked themselves out before I got desperate enough to call for help. I thought this would be the same.
Anyway, I saw my regular GI and am on Entocort now (and eating very carefully.) When I go back in February, if things haven’t settled down a lot, he’s going to do another CE. If the inflammation is diffuse, he’ll have to treat it medically; if it is localized, my first resection may be looming. What will be will be.
I pray for you all. In order to give some meaning to the frustration of having to drop everything and run to the bathroom, I have decided to regard nature’s call as a call to prayer. My bathroom is re-named my prayer room. So be assured that I am praying for you often! From now on, I’ll try to post more often and not so much at a time.
Take care. Lois