my 12 year old son is currently being tested

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New Member

Date Joined Jan 2008
Total Posts : 3
   Posted 1/18/2008 6:52 AM (GMT -7)   
Hi, i'm new to this forum but it looks great and really helpful!
My family dont know much about crohns but my son who is 12 is having tests to diagnose either crohns or colitis. It sounds very much like crohns though. He started with diarrea last september which the doctor said was gastoenteritis but it hasnt gone away. He gets terrible pain in his abdomen especially on the right side and has occasionally seen blood. He has lost 35 pounds and hasnt been able to go to school. Paracetomal doesnt take the pain away and he has no appetite - it is a great worry as im sure all you know. Does anyone know of anything to increase his appetite or to give him more energy.

Veteran Member

Date Joined Apr 2006
Total Posts : 1885
   Posted 1/18/2008 10:13 AM (GMT -7)   
The following link takes you to the introductory phase of a diet that has helped some people with Crohn's or Ulcerative Colitis. Depending upon whether it works, then you can decide whether you want to continue with the diet (SCD diet):
Some people promote Ensure as a way to boost calories, but I hate to recommend it because it is filled with sugar, corn syrup, maltodextrin, soy oil, carrageenan and other ingredients that aren't really good for anybody. Some of the ingredients, like sugar, can make diarrhea worse. 
The BRAT diet, (only on a short term basis - a few days or moments when things are at their worst because not much nutritional value) sometimes helps people with diarrhea, but I'm not sure it is good for Crohn's because of the grains included. It means bananas, rice, applesauce, toast. 
I hope they diagnose him correctly, a parent, I know just how worrisome it can be.
Please keep in touch with this site with any other questions or if you just need to vent:)
Meanwhile, there is another web site, targeted more at parents: When you get to this site, just click onto "IBD Support Community"
Daughter (20) Dx'd Crohn's 3/06. Misdiagnosed for two years, including by top pediatric Crohn's specialist as stress and needing more fiber but landed in hospital in 3/06 with cramps, vomiting, stricture. Now in remission with Entocort 3 mg (one pill), SCD multivit, yogurt, vit D3 1800IU, 900+ mg calcium, 50 mg B complex vit, 25 mg iron. Off SCD diet but wheat was iffy so back on SCD modified to include potatos and rice.   

New Member

Date Joined Jan 2008
Total Posts : 3
   Posted 1/18/2008 11:00 AM (GMT -7)   

Thanks very much - i have had a look at both sites and they both look helpful.

I hope he is diagnosed soon as he is feeling really down at the minute.

Forum Moderator

Date Joined Apr 2007
Total Posts : 32602
   Posted 1/18/2008 11:05 AM (GMT -7)   

Hello and welcome to Healing Well and the A & P forum. You will meet many warm and caring members here with a wealth of information.  I am sorry your son is ill and I am sure you are very worried about him as you have every right to be.

You might also request a consult with a nutritionist as he is young and still growing.  He needs his nutrients and it would be helpful to sit down and talk face to face with someone so you could ask questions.

Stay with us and keep posting. Again a warm welcome.

Kitt, Co-Moderator: Anxiety ~ Panic  ~ Crohn's
*~* *~*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~

Regular Member

Date Joined Mar 2006
Total Posts : 57
   Posted 1/18/2008 12:30 PM (GMT -7)   


So sorry to hear about your son.  My son was diagnosed with Crohn's disease 2 years ago when he was 11.  I have found this site and the Dragonpack site to be extremely helpful.

When my son was first diagnosed, his GI suggested that I give him Pediasure (found in the baby aisle) and Carnation Instant Breakfast.  It won't help with his lack of appetite, but at least he will get some vitamins into him.

I hope you get some answers soon so they can start working on making your son feel better.

Take care.

Son Ben, 13, diagnosed 3/06
Asacol, 6-MP, Culturelle, Fisol, Seacure, Multi

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 1/18/2008 4:23 PM (GMT -7)   
I self diagnosed at 13, my Mom had it so I knew what I was looking at. So I really do feel for your son. And as a parent of two, I can feel for you. I have been watching my daughters for signs since the moment they were born practically.

If your son is in pain, he is probably flaring, so I would be careful of anything with too much fiber. I would recommend the Carnation instant breakfast too, but I would suggest making it with Lactaid milk or Soy milk. Just in case he has a sensitivity to lactose. A lot of CDers do. Also, any of the meal replacement drinks, Ensure, Boost, even Slimfast. But not as a replacement, as a drink with a meal or as a snack. You want to give him things that are high in calories for their bulk, if that makes sense. Like if you make him scrambled eggs, add an extra egg yolk, because that is where the calories are. Put Peanut butter on his toast instead of butter. Anything you can think of to increase his calorie intake without overloading his system. He probably doesn't feel much like eating, so let him eat whatever he feels like, even if it isn't the proper "time". Like if he wants ice cream for breakfast, let him, its calories. Of course these are all assuming he can tolerate these things.

You can try to get the following cookbook from Amazon. I got a used copy for just a few dollars. It has chapters on how to increase calorie counts, what to eat for low residue, what to eat when you need to keep to liquids, what to eat if you need just soft foods. It really is very helpful. The woman who wrote it is a registered dietian.

"Cooking Well for the Unwell" by Eileen Behan

Best Wishes and I hope your son feels better soon

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Veteran Member

Date Joined May 2003
Total Posts : 2481
   Posted 1/18/2008 10:14 PM (GMT -7)   

As you can tell, diet is important in our fights against crohns. What will definitely help reduce at least some of his symptoms is eliminating sugar, processed foods, preservatives.

If he has trouble eating veggies and fruits, try mashing or pureeing them.

Check out the Maker's Diet or the SCD. The Maker's Diet let's you eat alot of the things we normally eat, they're just prepared a little more wholesome. Butter, instead of margarine. Honey, instead of sugar. Sourdough breads, instead of yeast breads, etc. And organic where possible.

The two main diets ppl tend to follow are the maker's diet and the SCD. Some ppl achieve amazing results with these diets.
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