mcleaver 1969 wrote:
"My best advice is to take your disease very seriously and treat it as effectively and quickly as possible. We are each blessed with only one body...
Please take care of yourself and good luck to you!"
I guess he means the most common treatments like prednisone, imuran and so on. I have another suggestion: There is a medicine, called naltrexone, a lot of people use it in a lower dose, only 4.5 mg each night. Naltrexone has been given to block the opioid receptors in addicted for app. 30 years. They get 50 mg per day. All of us others with auto immune diseases like Crohns, Ulcerative Colitis, Multiple Sclerosis, Reumatoid Arthritis, Lupus and a lot of other autoimmune diseases uses only 4.5 mg each day. It's almost a homeopathic size (really minimal doses) on the medication.
This treatment is to be taken every day all the year, and you can't mix it with the ordinary medications rx for Crohns disease. Low dose naltrexone is said to make a balance within the immune system, it does so by blocking the endorphine production some hours early in the morning (before 2.00 am) and tricking the body to produce more endorphins than usual. Our immunsystem will then get higher and better and directly influence the health by attacking the cells that is making the inflammated guts or in other diseases, the inflammated areas.
I have Crohns. I got my diagnose in june last year, I got prednisone for three months, and then I started low dose naltrexone. LDN. I use no other medication. This medication, that is used in treating humans for 30 years in bigger doses than ours, is a medication making almost no side effects. The side effects usually is:
insomnia (some), tiredness (less) and vivid dreams (some), the side effects fade away after 10 - 30 days, sometimes a bit longer. Some wake up in the middle of the night having some more energy that is usual at that time
...All side effects that low dose naltrexone brings is going away quite soon. This should not frighten anyone, this is just a piece of cake...
The medication is a typical off label medication, that means that the doctors do write rx to a group of patients that it's not approved for. FDA has not approved it for all of us with auto immune diseases. But then remember: 50 % of the doctors prescript
ions are off label prescript
ions. For example: Humira is not approved at FDA to use for Crohns. It's a medication thats FDA approved for reumatoid arthritis. Still there is a lot of Crohnies using it.
If you just have got your diagnosis and your symptoms are mild, I would like to suggest LDN for you. I guess that you are not using pain meds containing narcotics. If you are, you have to taper off those before starting with LDN. LDN is not to be used with no painkillers containing narcotics. It is not to be used with immune modulators, immune suppressors and those medicines. Asacol is allowed to be used w. LDN.
I got rid of all my symptoms within 14 days. The first day all the bloating was gone. My swelled feet, the cramps in my feet and legs, my red eyes, my daily abdominal pain, my diarrheas, and my vomiting and obstructions disappeared within two weeks. I was considered as having a mild Crohns even if I had obstructional problems as a severe part of the disease. (Cramps, vomiting for 8 hours....the fibrous foods made stop in an inflammated, narrowed patch of the intestines).
Almost 4 months now since I started. I am even getting better and feeling really good every day.
My GI tells me to continue using the medication. He says this is SO interresting. He is going to discuss this with his colleagues to ask what they think. I have no other medication. I haven't had one obstruction episode since I started using low dose naltrexone.
If any of you wants to learn more: go to yahoo and registrate, make your own email adress there, you'll get a lot of posts every day. The group that is the most active has over 5000 member. Newbies arrives every day. Some are lurkers, never writes anything, they are as welcome as the other. But they read and learn about
a lot of auto immune diseases that suits for LDN. You need to stay there and read every day, there is a lot of postings. You are also able to search amongst the posting only for Crohn LDN.
The name of the group is lowdosenaltrexone. If you register and just wants to lurk to read, noone knows you are there. People there are friendly and answers every question there is.
P.S: I don't get any money to tell you about
to visit a site explaining more:
here is descript
ions what to ask and tell your doctor. The most doctors are not familiar with LDN. You will be the one that has to tell your doctor. In my country 200 doctors are prescribing LDN now. In US a lot more.
Good luck to you,
Diagnosed CD June 2007. Have only used prednisone. Did make a difference while max dosed. Got my problems back when tapering.