Update from docs

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Veteran Member

Date Joined Mar 2005
Total Posts : 2486
   Posted 1/24/2008 5:11 PM (GMT -7)   
Hey everyone. Saw each member of my "team" (PCP/GI/nephrologist/endocrinologist) in the past two days. PCP is changing my anti-depressant to Effexor, which is a dual serotonin/norepinephrine-reuptake inhibitor (so slightly different from Zoloft); GI wants me to just keep on keepin' on with the VSL#3 and see him in a month; endocrinologist just sat there like a bump on a log; nephrologist was very nice but, of course, wants to do 293847 tests on my blood and urine, followed by a renal ultrasound, with a follow-up in six weeks. My proteinuria was again 3+ today and the weirdest thing was that the urine was so opaque it looked like orange juice! For crying out loud. He says it's stage 1 chronic kidney disease. Which can be caused by 2394872 things.

I seriously don't even care anymore. That's the worst part. I don't care about anything! I'm hoping the anti-depressant change has some effect because I am more worried about my mental health than anything else. There is no joy, enthusiasm, or motivation in my life right now. I felt a brief uplifted feeling for about a day after I volunteered at the homeless shelter clinic a couple nights ago, but then I just got more depressed because I realized there was no way I could truly help these people other than giving them Tylenol for their headaches.

I have to stop being a downer, I'm so sorry, I am going to snap out of this one way or another.
Co-moderator - IBS Forum

Forum Moderator

Date Joined Nov 2003
Total Posts : 7122
   Posted 1/24/2008 5:30 PM (GMT -7)   
You do care...that's why you are somewhat depressed. I bet you are much like me - impatient to get answers. If I detect a medical problem, I want it confirmed and to get to work on correcting it. The waiting causes my mind to run wild imaging the worse case scenario. All of that causes me to get down. Hang in there chica! I hope that the Effexor kicks in quickly.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?

Forum Moderator

Date Joined Apr 2007
Total Posts : 32602
   Posted 1/24/2008 5:48 PM (GMT -7)   

I am sorry for the 23769042 tests that your going to have.  I am so sorry that you are feeling depressed and I think, sweetie, that you have some very legit things going on that would keep you in the depressed zone.
I have heard good things about Effexor.  I went to my Dr. and told her I wanted to try Effexor as I don't think the Cymbalta is so great.  She looked at me and said you already did, you didn't like it............I said "chit". I still continue to  hear people that do wonderful on it.
You don't have to be the life of the party right now, we just want you feeling better so it is ok if you did not save the homeless today.  Your chance will still come.  I believe that for you great things are in your future.  It is the mountains and the mole hills you need to get over first.
Take Our hand and let us pull you up.  I hear the view is great at the top.  I keep slipping back and keep on climbing up again so maybe we will see it together.
Mucho hugs to you my friend.

Kitt, Co-Moderator: Anxiety ~ Panic  ~ Crohn's
*~* http://www.healingwell.com/donate *~*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~

Veteran Member

Date Joined Nov 2007
Total Posts : 4413
   Posted 1/24/2008 6:16 PM (GMT -7)   
Hey Sarita,
Do all the test the nephrologist wants...you need to figure this out. I hope the Effexor is helpful...as you probably already know it works on different receptor sites than SSRI's alone. Did you follow up to see the psychologist too?

I am a social worker in private practice doing psychotherapy. You have helped me so much. If there is one thing I have learned from my own illness, is that when you are sick for long enough it is impossible to not get depressed, even if you have the most optimistic personality in the world. I had a bad month myself, and my true confession is that I actually cried all the way home from work today because I feel like my therapy clients are doing better than I am!!!! I am so exhausted, not only from being sick, but from trying so hard to be positive with my friends and family. I agree with Kitt, that you just have to hang in there, and your time will come to feel better...I really believe that..

I also know for sure from all of your encouragement and kind responses on this forum that you are a wonderful, kind, and caring person. Please keep writing. I think about you all the time!!!!
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007
currently taking Pentasa 2750 mg- 9pills/day and on and off Prednisone for flares

Regular Member

Date Joined Dec 2005
Total Posts : 124
   Posted 1/24/2008 8:12 PM (GMT -7)   
Hi Sarita-
Sorry things seem so frustrating. I would be frustrated too.
I'm wondering if you may need a second opinion from another GI doc. Putting you on a month of VSL for non-stop diarrhea just doesn't seem right. Did you have a kidney biopsy by any chance?

Hang in there...you'll feel better when there are more concrete answers...it will ease your anxiety

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 1/25/2008 3:34 AM (GMT -7)   
Hi Sarita-
I always enjoy reading your responces to help the ppl here you are a very caring person. I hope you feel better soon.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

Veteran Member

Date Joined Mar 2005
Total Posts : 2486
   Posted 1/25/2008 7:21 AM (GMT -7)   
Thank you so much, friends. I am up early today and getting ready for a full day of school. I am not going to let this crap keep me in this down-and-out mental state. When it does, it worsens the downward spiral. I will do the stupid kidney tests but not before I bust some arse on my next set of exams (3 in the next 10 days). Luckily the big D hasn't been very terrible the past few days; seems my guts are giving me somewhat of a break. I am definitely soakin' up the positive energy here, so again, thanks for your responses :) You guys are my lifeline!

Sue, I think my poor GI has my guts' best interests in mind and I would venture to say that he's the best GI I've had in all these years, so I trust that he won't just "let it go;" I did tell him my D has improved somewhat on the VSL#3 and I think that's why he didn't want to pursue other avenues, especially during this kidney saga, but if it gets worse again I might ask him about the Flagyl route. Nephrologist will probably want a kidney biopsy but not before my next visit to him in six weeks; he wants to more closely check my GFR, autoantibodies, rheumatoid factor, creatinine, etc. and get an ultrasound. I'm glad he's not going all invasive before it's absolutely necessary!
Co-moderator - IBS Forum

Regular Member

Date Joined Jan 2008
Total Posts : 100
   Posted 1/25/2008 7:37 AM (GMT -7)   

I am so sorry that you are going through all of this. I understand completely how you feel and I hope that you can find some relief with all of your stress and depression. I am here anytime if you want to talk just send me a message!
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