I had my GI appointment today...

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Regular Member

Date Joined Jan 2008
Total Posts : 100
   Posted 1/24/2008 5:53 PM (GMT -7)   
Soooo...I finally had my GI appointment today. It went a little different than I was expecting. He insists that I probably had a blockage on monday when I went in to the emergency room. He sat and explained more to me about the size my ileum should be and how at this point a pencil couldn't fit through it. He says that if the Pentasa or the prednisone works that he is majorly concerned with the scar tissue making it go fully closed causing a full blockage anyhow. He says I am in a situation where at this point that he wants to get me on remicade IV. He also says that this may bring on the need to have surgery even sooner if it does get the inflammation down we are still going to have to deal with the scarring. He did say that having the remicade in my system will help me heal faster after the surgery. Something about the white blood cells. He says that i'm going to need at LEAST 10 inches cut off. I wanted to do whatever I can to prevent having surgery and it looks like my hopes have been completely shot down. He seems like a great doctor and he took the time to let me ask any questions and to try to comfort me but I was still extremely frustrated. I've started to think about going to see a dr for my depression because its starting to catch up with me. I'm just tired of being sick and sick of being tired...All around just wore out. I sort of feel like I went from some what accepting that I have it to gone to being angry as heck about it. I just feel if the drs would have listened to me years ago then I wouldn't be this bad off now...! I guess I can't look back and wonder what if but its just angering and frustrating. So now I have to watch for a blockage...he says to be very careful..how can I be careful I thought I already was!!!

Veteran Member

Date Joined Nov 2007
Total Posts : 4366
   Posted 1/24/2008 6:26 PM (GMT -7)   
Hi Amanda,
Everything your doctor is saying seems to make sense from what I have read, but you can get a second opinion if that will help you with your choices. This is all happening so fast for you, that it makes sense that you would feel completely overwhelmed. Lots of people on this forum have had great success with surgery and Remicade. Read through some of the old threads...maybe that will help. I have a stricture with scarring in my ileum too. I don't think it's as bad as yours and I haven't had a blockage yet, but I live in fear of it too! Probably staying on a low residue, low fiber diet is what he means by being careful. Going for therapy may help you get through this, but feeling healthy and better will help even more! If Remicade and surgery is what it takes to get you better, then maybe you should consider it, even if it's scary! Keep writing...I'll be thinking of you
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007
currently taking Pentasa 2750 mg- 9pills/day and on and off Prednisone for flares

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 1/24/2008 8:25 PM (GMT -7)   
I'm sorry that things are worse than you expected, but you can't play the what if game. You need to do whatever you have to to help yourself get better and move forward. Get a second opinion if you want/need to. Seek help for depression. Watch your diet very carefully and follow your doctors advice. I'll be keeping you in my thoughts.

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Regular Member

Date Joined Jan 2008
Total Posts : 100
   Posted 1/25/2008 6:44 AM (GMT -7)   
He is a good doctor and I trust what he says I guess I am just sort of beating myself up about it which is definitely not helping myself any. I just feel like I have fallen into some type of rut lately and I need to pull myself back out and try to get back on my feet. My GI doesn't want me working but at the same time I need the money just something else thats putting a ton more stress on me. I am actually going to call today and see if there is someone that they would recommend me seeing for this bout of depression that I am going through. Thanks for listening to me vent and giving great advice as always. I appreciate it.

Forum Moderator

Date Joined Apr 2007
Total Posts : 32602
   Posted 1/25/2008 12:05 PM (GMT -7)   

Dear Amanda, my friend, you are thrown into a tailspin by this new disease, you are caring for 3 children and you have had some family issues this week.  You have every right to be rattled, upset and yes, depressed.  This is not what you planned for your life and now you are looking at possible surgery.

I think seeing your physician for depression is a great idea.  Anything that will help you deal with change and help you is good.  Using the online support is awesome as you can write it down, send it off and someone somewhere will hear what you have to say and understand how you feel.

Most important is to be kind to yourself, allow yourself to accept that yes, you do feel bad, you have a right too.  Rest and try to eat healthy.  Ask questions here as everyone is so knowledgable and know that we care about you.  Your in our prayers and on our minds.  You are not alone in this.  Gentle Hugs (((((((((HUGS)))))))))))


Kitt, Co-Moderator: Anxiety ~ Panic  ~ Crohn's
*~* http://www.healingwell.com/donate *~*
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~

Veteran Member

Date Joined May 2003
Total Posts : 9448
   Posted 1/25/2008 9:41 PM (GMT -7)   
A wise decision to seek help for the depression! Its too difficult to make a good decision when depression bars the thought processes from working efficiently. I hope they are able to refer you to someone who can help you work your way thru the depression so you can make the best decision for you. Good luck and God bless!!!! With a few (((hugs))) thrown in for good measure!
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.

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