I recently was diagnosed with CD (Jan 2,2008). We have begun the medicine game and all that goes with that. This past Sat. I had a bad flare and ended up in the ER and then 5 days in the hospital. The hardest thing for me is trying to figure out what is "normal" with CD. Friday it all started with some cramping, and then it moved into throwing up, and then a high fever. At the hospital I had 185bpm heart rate, a fever 103.7, and shakes that would knock California off the map. I have come home from the hospital on 120mg prednisone, 50mg Mercaptopurine, and 2 antibiotics. I am feeling pretty good now but I stay terrified.
Every small cramp makes me think it is all starting again. So here are some questions that I have for you guys, that maybe will help me understand what the "norm" looks/feels like.
1- What foods (for you) are trigger foods?
2- Do you randomly have cramps with some foods?
3- If you feel a flare up coming is there anything that you do to try and stop it?
4- What do you drink?
5- Raw veggies? Fruit? Seeds?
6- I have a doctors appointment next week, and I was going to ask for a prescription of sleeping pills (to offset the prednisone effect at night), fenegrine enlight of my episode Sat. Are their meds. that you keep on hand "just incase"?
Thanks for any help.