Well GI appointment went well today. In the past, we have really felt a personality hiccup with this guy and have been talking about finding someone else. Today was very, very different. We asked some intelligent questions, and we let him know that we've been really trying to educate ourselves and become informed and blah, blah, blah.
Suddenly this guy opens up and becomes a wealth of information and and explanations, showing his pictures, reports, notes he made, etc! We know now exactly where DH's problem areas are: defninate ulcerations at end of lower GI (isn't that the terminal ileum?) and lower portion of left colon.
Doc finally says "this is still out of control" and now we need to try prednisone. So, we started that today. Schedule is 40mg for 2 weeks, then 30mg for 2, 20mg for 2 and 10mg for 2. Does that sound about right?? I assume this is considered a slow taper?
GI seems confident that this will knock the Crohn's into remission, take care of the fistula, and also relieve him of his pain (acknowledging that the pain is related to the Crohn's). He says he sees no need to go to a rhuemy yet, that the prednisone will do the trick. YAY! Never thought I would be cheering for the steroids, but he needs something for this excruciating pain he is in constantly.
GI also upped his pentasa to 9 pills per day from the current 6.
OK, so, please tell me the good, the bad and the ugly about the prednisone! I don't want to know what I can already read in printed material: I want real life stuff. What did you experience, how did you cope with side effects and was it worth it? Did you get the relief you were hoping for so that the side effects made it a fair pay-off? Hoping here to not regret requesting this meeting with GI to ask for prednisone in the first place!
Thanks and be well.
Learning can only happen when a child is interested. If he's not interested, it's like throwing marshmallows at his head and calling it eating. Make him interested!